sending love

[wild_cat]

hi

How is everyone doing? I'm good at the moment, haven't been online or posted for a while so thought I'd send my love to everyone!

<3

[Spikeandozzy2]

Hi I was doing ok... had a knock back now. Been off work since Dec with dvt in leg and clots on lungs. My Hrt tablets were stopped and they started me on rivaroxaban. It's took ages to start to feel better. Then yesterday went to occupational health doctor at work when he found an irregular pulse..... I was sent to A and E they did bloods and ecg which has resulted in them referring me to see cardiologist. I'm seeing my heamatologist anyway today for my first appointment got lots of questions for him!!! Hope everybody else ok x

[wild_cat in reply to Spikeandozzy2]

good luck today! don't leave until all your questions are answered!

let us know how you get on x

[Spikeandozzy2 in reply to wild_cat]

He was fab. I've got to stay on rivaroxaban for life due to unknown cause for dvt and clots. They not taking the chance I will get more! Oh well rather stay on it than get more. They taken me off propanalol and put me on bisoprolol due to palpitations getting worse and still short of breath. They also referred me to cardiologist. Hope your ok

[wild_cat in reply to Spikeandozzy2]

im ok thanks, getting cramp again, glad you had a good doctor, mine clutched at straws and just blamed my smoking (i was 28) which was too young!!

hope for a speedy recovery x

[moo196]

Thanks - still trying to get rid of my cvst ( blood clot on the brain) - so all messages of positivity welcome !!

Managed to "hit" my target INR this time round but otherwise have to plod on with life

[Spikeandozzy2 in reply to moo196]

Hope your doing ok. I've never had to worry about this inr thingy cos I'm on rivaroxaban which is the new type of warfarin.

[wild_cat in reply to moo196]

oh my god!! are you ok??

[moo196 in reply to wild_cat]

Me ? Or spikeandozzy ?

[moo196]

Hi ...thanks. I've asked about warfarin alternative but was told not suitable for my condition as the effects are non reversible in case of any emergency.

Have a good weekend

[Hidden in reply to moo196]

Ya I love warfarin as clumsy as I am its good to know that vitamin K can kick in in an emergency lol for real

[moo196 in reply to Hidden]

Yep - I'd rather know that this is possible - particularly as my DVT is in the brain and when I was first out of hospital I wasn't even well enough to be responsible for my own medication.... Onwards !!

[nossib in reply to moo196]

Yes, I was told the same , so much prefer to stay on the  'tried & true' warfarin and the INR finger tests are effortless and my security.