What do you think about this everyone who has AMN?

[artortega78]

adrenoleukodystrophynews.co...

[KennyInPA]

I actually went to one of the SwanBio meetings last year and spoke to them about my life with AMN. A great group of people with a fantastic vision.

[COwithAMN Administrator AMN EASIER Volunteer]

Good news, obviously. But don't expect any practical therapies for a while. Worth watching.

Thanks for picking it up.

Chris

[SongStream]

"ALD is a rare genetic disorder caused by mutations in the ABCD1 gene, which provides the instructions to make the ALD protein. This protein is needed to clear toxic molecules, known as saturated very long-chain fatty acids (VLCFAs), that damage myelin, the protective coating of nerve cells, and the adrenal glands."

This is a clear and concise description of AMN. I had forgotten that these were "saturated" VLCFA. I also like "to clear toxic molecules" as it is more visual and descriptive.

Thanks for this!

[artortega78 in reply to SongStream]

Saturated VLCFAs are Saturated Fats that have 22 or more Carbon atoms.