Any experience with a baclofen pump?: At night, I... - AMN EASIER

AMN EASIER

1,323 members1,179 posts

Any experience with a baclofen pump?

bsc78 profile image
7 Replies

At night, I'm having severe clonus---my foot jerks upwards violently. It is starting to affect my quality of life. The hefty doses of clonazepam and baclofen are no longer working. Two neurologists have suggested a baclofen pump.

I'd like to hear about anyone's experience with one.

Thanks

Written by
bsc78 profile image
bsc78
To view profiles and participate in discussions please or .
Read more about...
7 Replies
SongStream profile image
SongStream

Go to the search field AMN Easier and input "baclofen pump" and you will find related posts and experiences. I have also read suggestions to have the spinal tap baclofen trial and see if it works before considering a baclofen pump.

bsc78 profile image
bsc78 in reply toSongStream

Thank you! Should have done that first, I suppose.

SongStream profile image
SongStream

We're all here as a community to help each other. You might also try other online AMN forums. Inspire.com had a lot of baclofen pump users from all kinds of health conditions including AMN. If you decide to go with the pump, please let us know. I am trying to get off the oral baclofen because of its addictive nature and horrible withdraws. Presently, I am reducing 10 mg a week from 60-70mg. I heard that Gabapentin (which I take for nerve pain) can help with the spasms, too. I shall soon see.

monkeybus profile image
monkeybus in reply toSongStream

Baclofen, evil stuff (when it hits your brain).

For me, the sole side-effect of Gabapentin/Lyrica is getting pleasantly stoned.

The Benzodiazapine+Baclofen combo is just plain awful.

Cheap.

If you have decent insurance, get some Lyrica. Worth it's weight in gold.

bsc78 profile image
bsc78 in reply tomonkeybus

Why, in your opinion, is Baclofen "evil stuff"? And why is the addition of clonazepam "plain awful"?

monkeybus profile image
monkeybus in reply tobsc78

It's just that the amount of Baclofen I need to stop spasms just makes me feel terrible. Also, in the morning, the colour and amount of my urine has to be seen to be believed. Likely not kind on the kidneys.

Clonazepam/Diazepam/whatever, I just find to be awful, soporific stuff.

Having fatigue doesn't help. I don't need anything to help me feel tired.

But, that's just me. Whatever works, works.

I still have plenty of Baclofen stashed away, if I had to, I'd take it. I'm seeing about a Baclofen pump in January. You can get topical, Baclofen creams from some compounding pharmacies. Keep meaning to try some/make some.

Also, Benzo's do nothing for my spasms. I just lie there, shattered, twitching away like crazy. Soon as I drift off to sleep, the spasms wake me right back up again.

monkeybus profile image
monkeybus

The big spinal injection, Gablofen. Have that first.

Is your foot-jerk clonus, or a spasm?

I'm seeing about a pump just after Xmas.

Not what you're looking for?

You may also like...

Baclofen - your experiences

Good afternoon, My neurologist recently recommended that I begin taking baclofen to help treat...
Aaron98 profile image

Has anyone had a Baclofen pump or info about it?

Hi, I saw a neurologist yesterday and said she thinks I should have a Baclofen pump? she's referred...
StevenSims profile image

Baclofen withdraw

I need help... I've been taking 35 mg of baclofen for a month..and my Dr told me I could wean off...
Emily1975 profile image

Baclofen side effects

Hi guys, Hope you’re well. I’ve been using Baclofen (a 10MG tablet every night taken with dinner)...
mjwellman profile image

Baclofen question

Does anyone take Baclofen I was told this would help with spacisity any help would be appreciated....
Roker1176 profile image

Moderation team

COwithAMN profile image
COwithAMNAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.