Just interested in knowing who is still working & if not when did you have to stop?
just looking for advice on what to do next after having to stop work due to it getting too much of a struggle.
He was working on a building site & it was getting difficult for him everyday. He has to use a stick to get around now. He struggles with his balance, & tripping up and he's often fallen over.
He was signed off for two months at the start of august & that's when he decided he wouldn't be returning to work. We have a form for PIP (personal independence payment) just getting round to it.
my partner is 24 years old, diagnosed 2 years ago even though he noticed changes in his walking a year or so before.
Would like to hear other people's experiences?
Thanks.
Nicole.
Written by
ndjsx
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The problem is we are all different and it depends on the type of work one does. I was able to work until I retired at 65 but I worked mostly at my desk in an office. I couldn't have done a manual job, especially in a dangerous environment like a building site much after 60 when I started using a walking stick. That was nine years after I was first diagnosed with AMN.
I think your partner's best option is to try to find a job where he can be seated most of the time.
I was diagnosed when I was 37 after my brother. We both have Addison's.
At the time, I was a professional singer and eventually went back to work at an investment bank. I always had burning pain in the soles of my feet along with imbalance and fatigue.
I was treated at a chronic pain clinic and went on long term disability when I was 45.
I am now 51 and have been walking with a cane for 9 years. My brother uses a wheelchair.
I still have pain and fatigue but I am adamant on maintaining my health and independence.
Seriously considering getting a scooter since my shoulders are not up to the task for a wheelchair. I regularly go to the gym and I am quite flexible which had helped the spasticity. I limit my medication (Gabapentin and Baclofen) for evening use only.
One thing I've learned on these forums is that we are all different but we are not alone.
I've learned so much from others which has been a positive influence in my life.
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