Hey y’all, I have another neurologist appointment coming up and I’ve therefore been thinking about my typical days to describe to him and I thought they might be interesting/informative to the non-demented/caretakers among us. Of course, they may just be plain boring, hard to tell when your brain is scrambled.
Anyhoo, today for example, I was wide awake and looking for something to do by 3 am. Not a lot going on at that time so I just had a cup of coffee and caught up on email. Having acup of coffe used to be an adventure, adding water, measuring the ground coffee, , remembering a filter, it could lead to a memorable mess in a hurry. But thankfully we have almost entirely solved that with a single serve machine. Worst problem is when the water runs out. If I’m down it may take me 15 minutes to decide that’s why the thin.g won’t fix my elixir of life and then how to correct this. If I’m up, no problem.
After 45 minuets to an hour of this I decide I need to pack a few things in anticipation of this weeks coming move. The first box goes without a hitch, packed tight to the top, taped securely. The next one seems to go well but when I attempt to pick it up to move it to the garage I thought I had given my self a hernia. And it was a small box. My judgement was a tad off. And so it went for the next several hours, hit and miss, pack a box, unpack and repack it until I finally got it right. In the meantime, I would often just stand and look at the box for several long minutes, confused as to how I should be going forward. All in all, it only took about three times as long as it should. Thing is, I really had no idea that much time had passed, in my mind, it had taken no time at all.
By 9, I had finished what packing I was going to do, loaded the van with things the moving company won’t transport and we were going to take to the condo this morning, cleaned the downstairs for todays open house and was having another cup of joe when the rest of the family got up for the day.
After they got oriented, we were off. When we arrived at the condo, I did som final touch ups on my fireplace remodel, only had to redo 3 or 4 things because I forgot what I was doing while I was doing it or how to do it in the middle of doing it. Hey, at least I get a lot of practice at the things I attempt to do. Then I spent a couple of hours in my shop trying to organize. As far as I was concerned, it could have been 5 minuets or 2 days, time really doesn’t have much meaning anymore.
When my wife came to ask if I was ready to stop I realized that, yes, I definitely was. It was around 3 pm and I was spent. We decided to head home after stopping for lupper. We hadn’t had lunch and it was to early for supper, so, lupper. During the meal, the day caught up with me. I rapidly collapsed within myself. I became unable to accurately express my thoughts, finding the correct words became more and more difficult, and it started to seem as though I was swimming in molasses. Everything around me was moving in slow motion, almost stop motion and sound became hollow, almost distorted. I at part of my meal, packed up the rest, and participated in the rest of the meal as best I could.
When we got home all I could do was drag myself to the area in front of the fireplace where I like to lie, put on my BiPAP, grab a pillow and blanket and space out. Won’t say I slept but I wasn’t in this world either for several hours. Now, I’m still really foggy but I can make a little sense of the world again. And so it will be until I finally go to bed in a few hours.
Tomorrow, the entire process, with different activities, will start all over again ending in basically the same results. As Jeff likes to say, wash, rinse, repeat. At least life is boring for those of us with an altered reality.
Hope you guys have a restful night