Understanding My Childs Health
__Kyrie0619__2 months ago
My name is Jessica. My newborn Child was diagnosed with X-linked Adrenoleukodystrophy back in June 2018. I was devastated and heart bro...
More states adding ALD newborn screening update.
fightald5 months ago
I am happy to share that North Carolina is following several other states by screening all diseases that have been added to the RUSP (Recomm...
When you were first (and or your child) diagnosed with ALD, what was your doctor’s initial advice?
KerriDeNies6 months ago
Here is my story of how I had the news broken to me...let us know your story to help others
My baby’s pediatrician/ our family doctor’s off...
Hello Everyone! I am a ALD Mom ❤️
Hello Everyone! My name is Kerri and my son, Gregory was diagnosed with ALD in thanks to California adding the test to their newborn screen...
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Welcome to our forum! Tell us how we can help support you and your family.
fightald6 months ago
As you join this group please give a short synopsis of why you are here, i.e. how you learned about us, what is your biggest concern, how ca...
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Mom of 2 ALD boys
Jen197 months ago
I am associated with Janis and know many speak very highly of her and her knowledge. Knowledge is power, I couldn't agree more. Many know my...
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MaddieHU7 months ago
Why not leave a short comment below and introduce yourselves. Give as much or as little information as you like. Feel free to ask your own q...
matt7 months ago
If you’ve just arrived as a Pioneer member this is where it all begins. HealthUnlocked is a social network for health advocates like yoursel...
Who we are!
fightald8 months ago
This forum is moderated by Janis Sherwood and Elisa Seeger who worked hard to get newborn screening implemented so that no family has to exp...
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