Minnesota ALD Registry Study (MARS)
Are you interested in helping researchers at the University of Minnesota learn more about ALD? The Leukodystrophy Center at the University of Minnesota is uniquely positioned to answer important questions about ALD related to biomarkers, imaging, initiation of cerebral disease, neuropsychology, oxidative stress, and possible genotype-phenotype correlations. We need your help.
Why are we conducting this research? Our goal is to assemble a large resource of clinical and biological data from families affected by ALD to help us understand the natural history and outcomes of disease.
What are we asking participants to do? If you agree to participate, we will ask you to complete a survey every six months. We also hope you will consider sending us biological specimens.
How will I benefit from this study? Although your participation in this project may not have a direct benefit to you, it can help lead to exciting scientific advances in medicine that can help future patients. You are not obligated to participate, and if you choose not to enroll in this study, your decision will not affect your relationship with the University of Minnesota. All information involved in this project is completely confidential.
Click or copy this link to the browser and fill out the survey to join the registry:
Thank you!!
