Posts - Parents of ALD Newborns | HealthUnlocked

Parents of ALD Newborns

All posts for December 2018

Standards of Care as defined by UMN doctors

Bloodwork to check for adrenal insufficiency should be done at 4 months and repe...
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fightald
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ALD prenatal genetic testing for moms?

Does anyone know of any efforts being made to include ALD in the prenatal geneti...
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TwoInsomnias
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ULF Meeting in June

I wanted to give all you parents a heads up that the United Leukodystrophy Found...
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fightald
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Hydrocortisone question

It was recently determined time to begin daily oral steroids for my son. We hav...
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How does new born screening of ALD help?

Could anyone share some info on how does the new born screening help in treating...
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Identify the carrier.

How to diagnose if I am the carrier or my wife is. The doctors just assume that ...
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Father of two son's diagnosed with ALD

I came here through aldconnect.org. I have two son's. Both of them are diagnose...
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    All posts(7)
    Adrenoleukodystrophy(5)
    Standards of Care(2)
    ACTH Test(0)
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