Posts - Parents of ALD Newborns | HealthUnlocked

Parents of ALD Newborns

All posts for December 2018

Standards of Care as defined by UMN doctors

Bloodwork to check for adrenal insufficiency should be done at 4 months and repeated every six to detect AI early. It is easily treated with oral cortisol if...

Bloodwork to check for adrenal insufficiency should be done at 4 months and repe...

Partner•5 years ago

ALD prenatal genetic testing for moms?

Does anyone know of any efforts being made to include ALD in the prenatal genetic testing done for moms, which is typically done in the first trimester?

Does anyone know of any efforts being made to include ALD in the prenatal geneti...

•5 years ago

ULF Meeting in June

I wanted to give all you parents a heads up that the United Leukodystrophy Foundation will be having their annual conference in Eaglewood, IL. June 27-29. They...

I wanted to give all you parents a heads up that the United Leukodystrophy Found...

Partner•5 years ago

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Hydrocortisone question

It was recently determined time to begin daily oral steroids for my son. We have been prescribed hydrocortisone, but it only comes in a pill form. There has...

It was recently determined time to begin daily oral steroids for my son. We hav...

•5 years ago

How does new born screening of ALD help?

Could anyone share some info on how does the new born screening help in treating the child.

Could anyone share some info on how does the new born screening help in treating...

•5 years ago

Identify the carrier.

How to diagnose if I am the carrier or my wife is. The doctors just assume that it's my wife. The reason why this is important is because I am getting a bone...

How to diagnose if I am the carrier or my wife is. The doctors just assume that ...

•5 years ago

Father of two son's diagnosed with ALD

I came here through aldconnect.org. I have two son's. Both of them are diagnosed with ALD. I came here looking for other people's experiences going through...

I came here through aldconnect.org. I have two son's. Both of them are diagnose...

•5 years ago

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Adrenoleukodystrophy(5)

Standards of Care(2)

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