fybromyalgia: Hi I have recently... - Andover Fibromyal...

Andover Fibromyalgia & ME Community Group

2,781 members537 posts

fybromyalgia

JAMES-66 profile image
2 Replies

Hi

I have recently diagmosed with fybromyalgia to add to my Oestioarthritis. ive had OA for the last 16 years im now 50. over the years i was told ive had chronic pain , then MS then it was renamed Fybromyalgia because of the degree of pain all time, having little or no sleep and on many different painkillers i function on auto 24/7.

taking meds all the time means like ive read on here leads to memory loss, tiredness and 100%pain still.

without meds its unbearable to even walk short distances form room to room without pain and unbalance..

please any advice will be greatfully recieved

LA

Written by
JAMES-66 profile image
JAMES-66
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Probatequeen profile image
Probatequeen

I was diagnosed with oa last year with fibromyalgia. I am not too bad yet so am not taking any meds, I am seeing a chiropractor which after only two visits a week for 6 weeks I already notice a difference in my energy levels and the pain is less too. I am now seeing her once a week with exercises to do in between.

happyheart77 profile image
happyheart77

James 66 ,you have my sincerest empathy.Fibromyalgia is like nothing I`ve experienced before,I`ve been diagnosed with degenerative arthritis ,have tinnitus ,aswell as fms..

I`ve been on various drugs for pain ,the most recent Zomorph and Diazepam ,supposedly for muscle spasm.These work pretty well ,but I think I`ve been on morphine too long now ,so it`s losing its` effectiveness.Naproxen makes me sick ,and gives me ulcers ,as do all anti inflammatorys...Too much heat aggravates my pain ,likewise too much cold/damp.

The only thing I find is rest when your body`s telling you to ,and ,even on a reasonable day ,don`t overdo it...(done it too many times ,and at a cost:(

I`m seeing a faith healer next month ,she is apparently specialising in conditions such as fibro.Will report back as to any relief!!

Wish this could have been more positive /helpful.I tend to take life one day at a time.Planning ahead is out of the question ,as I never know the extent to which I`m going to hurt until I wake.(I also wake with severe burning/pain ,hence lack of restorative sleep)..I`d advise anyone with FMS to nap when they hurt really badly.If ,like me your sleep`s disturbed ,give yourself a limit and set an alarm if need be.#Best of luck ,take care x

You may also like...

How are you feeling today..

area to reduce the burning pain. Been here with it so many times over the years but it still does...

Struggling to work it out!

I have dull aches pains all over my body, blurred eyes, headaches tired all the time and sometimes...

Anyone for pole dancing!!

movement to help reduce pain. Lucy Cropper has fibromyalgia, a condition which causes pain all...

How's the weather where you are..

of the greenhouse, thankfully hubby sorted it in time. We have very little covering as we live...