Do you have a pacemaker or have been referred to have the device?

[HollieAdmin]

Do you have a pacemaker and know the purpose of why they are implanted? Have you been referred to have a pacemaker and want to find out more about the device?

A pacemaker is a small device that is placed under the skin in the chest to help control an abnormal heart rhythm. It is a common procedure and often involves a simple recovery period. It is completely natural to feel anxious about the procedure along with having questions about the effectiveness of this device but, most individuals feel that it has a very positive impact on their lives.

Our 'Pacemaker Patient Information' booklet offers a wealth of information about all you need to know: api.heartrhythmalliance.org...

We also have a dedicated Patient Services Team who are here to offer support, advice and information via Patient Helpline [phone] or via email, please visit: heartrhythmalliance.org/afa...

Alternatively, for further information please visit our webpage: heartrhythmalliance.org/afa...

We are always here if you need us and hope to hear from you soon.

Kind regards,

HollieAdmin

[Hatten28]

I am on my third pacemaker, Had bad atrial fibrillation and also a feeling down my left side that I was very weak and could not stand up.

A/F is very much under control now has been for several years.

Ps forgot, peculiar sensation down left arm making me constantly shake my hand

First occurred 25 years ago.

Hatten28

[HollieAdmin Administrator AF Association in reply to Hatten28]

Hello,

Thank you for your response. I am pleased to hear that your AF is now under control.

If you have any concerns regarding the sensation down your left arm, please do reach out to your doctor as they have full access to your medical records and will be able to advise you personally.

If you would like any support, please do reach out to our dedicated Patient Services Team. We are always here if you need us.

Kind regards,

HollieAdmin

[beardy_chris]

I've got a pacemaker after a series of pauses of up to 19 seconds (eek!) (aka syncope). I now stay conscious which is a Good Thing!

[HollieAdmin Administrator AF Association in reply to beardy_chris]

Hello,

Thank you for your response and for sharing your experience. I am pleased to hear that the pacemaker is helping you.

If you would like any support, advice or further information, please do reach out to our dedicated Patient Services Team. We are always here if you need us.

Kind regards,

HollieAdmin

[DawnTX]

What a great and informative piece of literature thank you for sharing. Having already been there done that I was aware of things but for anyone that has not been I think that would be very helpful for them. I am one that has HIS pay bundling as well as three the is not connected right. All four chambers are involved, my pacemaker was the first of its kind because they did not have one for me so my EP actually ended up creating one hard to explain craziness all around. Thank God they’re a doctors that think outside the box or I wouldn’t be telling you this. I like how simple your information is for people. One thing I would love to see included somewhere for people with pacemakers is giving them the knowledge that they will still feel a fib and flutter. Maybe not everyone, but there is nothing wrong with feeling it but if no one tells it can be frightening.

I guess the main thing I would tell people is a fib does what a fib wants to be doing like a spoiled child but the pacemaker and ablation will protect your heart from further damage. I had heart failure by the time I got to my new PE they fitting after a dangerous time with a cardioversion when it failed three times when they were trying to just get me back at all. My first one had been wonderful. We are I just want people to not let it them so much that they do not live their life. That’s what I try to help with when they ask certain questions. If you spend all your time worrying, you won’t have much of a life. There’s no fun in that.

[HollieAdmin Administrator AF Association in reply to DawnTX]

Hello,

Thank you for your response and for sharing your journey. I do hope you are doing well.

Thank you for your positive feedback regarding our resources. I am very pleased to hear that you have found the information helpful. I will definitely pass on your feedback.

If you would ever like any support, advice or further information, please do reach out to our dedicated Patient Services Team. We are always here if you need us.

Kind regards,

HollieAdmin

[37Polly]

I had a two lead pacemaker installed five years ago to deal with bradycardia and tachycardia. The pacemaker does not stop afib but allows heart rate to be treated while in high rate of tachycardia with beta blockers without risk of going too low. The pacemaker is set to avoid that possibility. It was an easy procedure and has been helpful and certainly made my doctor more relaxed about treatment, if not me. 😊

[HollieAdmin Administrator AF Association in reply to 37Polly]

Hello,

Thank you for your response and for sharing your experience. I am pleased to hear that you found the procedure an easy process as well as helpful. It is also good to hear that you are now feeling more relaxed as this is an important part of management.

If you would like any support, please do reach out to our dedicated Patient Services Team. We are always here if you need us.

Kind regards,

HollieAdmin