Has anyone had a similar experience? - Atrial Fibrillati...

Atrial Fibrillation Support

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Has anyone had a similar experience?

Summerlily profile image
10 Replies

I had a PFA for Afib December 26th last yearAt my consultation on 6th February it was found that I now had Atrial Flutter

I was told to stop Flecainide and booked in for an ablation yesterday

I was on the operating table when I was told that they could not do an ablation for flutter as I was back in Afib

I had to have a general anesthetic and then was given a cardioversion

They then proceeded with the ablation for atrial flutter

I am now on Amiodarone 200mg X2 , 3 times a day

I now wonder if I should have had another ablation while still in the blanking period

Feel I am back where I started now with scars on my heart and much stronger medication !

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Summerlily profile image
Summerlily
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mjames1 profile image
mjames1

Not unusual for flutter to surface after an an afib ablation or vice versa, as both often coexist with one dominant,

Also not unusual to go into atrial fibrillation during an ablation which requires cardioversion.. That happened to me twice and yet my ablation has been successful. Hopefully, after things calm down, yours ablation wull be too.

Jim

Summerlily profile image
Summerlily in reply tomjames1

Thank you so much for your replyThe reassurance I was looking for

37Polly profile image
37Polly

Dear Lily,

my heart went into atypical aflutter during mapping phase of pulse field ablation for afib and aflutter. The team withdrew mapping device and inserted basket design pulse field catheter and flutter stopped while they proceeded with afib on pulmonary veins, when again the atypical flutter began. The immediately successfully ablated the flutter on back wall of heart where there was major scarring using the PFA catheter, unlike plan.

I have never heard of such a procedure. They continued to finish afib procedure and though the whole process was longer than normal for PFA, (3 hours ) it has been very successful.

I was able to stop all rhythm meds that day. My age was a small factor ( 84 and small female ) I believe was factor, so we crossed fingers and it was a good bet.

You will likely be fine, but another example of anything can happen, and occasionally does. Good luck. Trust your team. 👍

Summerlily profile image
Summerlily in reply to37Polly

Thank you 37PollyWorth the 3 hours , so glad it turned out such a success for you

' Trust your team ' is very good advice

I will do my best !

Karendeena profile image
Karendeena in reply to37Polly

Same happened to me, I went into flutter during the ablation for AF, so they did both, my EP says 'two for the price of one' 😂Both successful, well at least for the time being! 🤞

Summerlily profile image
Summerlily in reply toKarendeena

Long may it last !

Karendeena profile image
Karendeena in reply toSummerlily

I hope so 🙏❤️

DawnTX profile image
DawnTX in reply to37Polly

what a wonderful team it sounds like you have thought outside the box like my EP always did when they ran into a problem. You are so right you never know what can pop up. I hope you continue with everything good. I’m glad you mentioned team because it is the whole team. The ones that worked with my EP were all phenomenal. I had them several times they became like family. We need to remember the specific work and then he has trust and faith in his team to help him because he just can’t do it all. My procedures took about six hours. Imagine how exhausting that is for all of them.

mike1961 profile image
mike1961

All sounds logical to me.

Flutter and AF so often go 'hand in hand'. It's often a very brief (as little as a second or two) run of flutter that rapidly morphs into AF. As such, there's a really good chance here that ablating the flutter will also stop AF too.

Keep us posted !

Mike (UK but also ablated twice in France at Bordeaux)

DawnTX profile image
DawnTX

I have been doing fairly incredible since my pacemaker two years ago. I knew what you mean about you feel as though you’re starting again because I have not had breathlessness at all since getting the pacemaker. I forgot what it was like to breathe, and as though I cannot get enough air. I just got over two months plus of some type of viral. They weren’t sure what I had or still have in quite possibly. They treated the symptoms, but it didn’t help. I’m hoping it’s something simple like pericarditis which I have had a few times. I see the Monday. I usually hate going to the doctor. I am doctored out but this time I’m glad I have an appointment.

I would think that if you need another ablation, it would be up to your doctor to tell you that a lot of trauma on your heart. It could be months before you know how you are feeling from this one. My EP will not do another on me not that I need it now with the pacemaker, but I had so much scarring and I had only had three ablations since they found my a fib and flutter. The last ablation was a new method and failed miserably. I went downhill so hard. I have that’s where the scarring came from because I had major tachycardia constantly with no break close to 200 was helping. talk to your doctor about another ablation. I think I would be surprised if he agreed.

I am concerned there is some kind of new bug around and for those of us with heart issues. It hits us extra hard. I also have heart failure besides the flutter it mentions and atypical a fib. Usually, it’s the I can feel not very not enough to bother. I admit this is the first time since my pacemaker that I am a bit concerned because I have taken at least three bad falls in the past month and a half or so now I’m concerned I may have hurt something.

has anyone seen anything about when there is damage to your pacemaker in someway, including the lead the reason I ask is I found several list of symptoms of problems with your pacemaker and I check off almost everything. They had seven listed including hiccups. I get hiccups. Every night, probably a dozen or so and then they stop. it pain, pain in the back and neck. It also feeling as if your pacemaker is slipping. I have had that for not a feeling it’s very real. When I roll over on my right side, my pacemaker sticks out normally I don’t even have a bump where it is. It says if the pocket is too big for it. I also feel as though I get a little bit of something sharp, where my pacemaker is just a poke. The ache in the middle of my chest reminds me of when I have had pericarditis. Normally, I am so tickled feeling so well. Has anyone else had any of this? I have a unique pacemaker. It’s a but it was created by my EP for including three leads and HI. Now it’s probably old news but at the time a major hospital invited and requested my EP teach the EPs at their hospital about this. I was just reading about the newest things they are doing.

if you get curious, go on LinkedIn and look up doctor Aditya he is director at University of Florida Hospital now in Jacksonville, Florida. Yes sadly, I have lost him. He is also a professor check out the postings under him and the pictures of what they are learning now for a fib and other arrhythmia OMG what was new and exciting for me. Looks old-fashioned now and you should see the picture of the new wireless pacemaker incredible. He is young. He is humble and I am very happy for him to have become recognized. I believe there is more for him on the road ahead

I don’t know if you can understand my about what is going on with me right now. Hopefully I will be on the road to recovery when I see my and I am also working on my referral for my new. He had been my first choice until I met Dr Saini through my. They have been unable to replace Dr Saini since October. Thankfully, I have not needed a doctor until whatever this thing is that hit me and I thought it was more for my GP at the time. I know we all have weak spots for those of us with a fib, etc.. I’m guessing it’s the heart

I have what I feel are several wonderful friends on here that have communicated with since I came on this site. They are people that to have some of the same things I had so I’m hoping you might have an idea on how I am feeling and what might be going on

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