Permanent AF: I've been told I'm in... - Atrial Fibrillati...

Atrial Fibrillation Support

33,207 members39,532 posts

Permanent AF

davidbruns profile image
8 Replies

I've been told I'm in permanent AF by my pacemaker clinic have I left it too late for an ablation

Written by
davidbruns profile image
davidbruns
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Omniscient1 profile image
Omniscient1

Many people, probably the majority are. Are you in pain/uncomfortable?As to 'too late', maybe ask for a second opinion. How long was it before your last heart check of any kind (how long could you have been in perm AF)?

DevonHubby1 profile image
DevonHubby1

Wife was told by AF nurse 'that boat has sailed' when she was diagnosed with heart failure in addition to permanent AF. Up to that point AF had been controlled with Nebivolol. Multiple cardioversions had failed never attaining NSR. There was a remote chance that a course of Amiodonadrone may make CV work but potential permanent side effect of COPD put us off it then, and now it's too late. And if a CV won't work theycfont offer ablation.

Hopefully once HF is under control things will return to normal as wife was hoping we'll at the start of permanent AF.

BobD profile image
BobDVolunteer

Permanent AF is merely an agreement between doctor and patient that further attemps to attain NSR are futile. That said unless a cardioversion can revert you to NSR then an ablation is extremely unlikely to do so.

secondtry profile image
secondtry

My AF currently around 7% and 85% ablation success rate quoted. If I go into permanent AF my cardiologist said this week, the chances of success (in my case) drop to 30-40%. So his conclusion, knowing my reluctance well, is it is now or I probably never will have one.

Meanwhile, I am increasing CoQ10 to 200mgs/day and considering re-starting a Magnesium compound with taurine et al, both recommended as the only necessary treatment for AF by a Naturopath. If interested, get advice first from your trusted medic and a blood test to see your starting levels; for Mg the blood test is a Red cell test which UK GP surgeries are unlikely to do for you.

pip_pip profile image
pip_pip

No. I was in persistent AF for five years before the EP in London got hold of me. I might have needed more than one ablation over the years but sinus rhythm beckoned. Go for it. In fact, press for it. You can message me any time.

Phl

beardy_chris profile image
beardy_chris

I'm in permanent AF but I'm relatively asymptomatic. My EP advised that, as an ablation wouldn't increase my quantity or quality of life, it would not be worth the (small) risk of doing it.

I'm content with his advice - though I was a little disappointed at the time. I have since heard from several other EPs that he was a Good Guy - because the height of the EPs skill is doing ablations and they don't often turn down the option to do one - even if it isn't really necessary.

So I guess it depends on how symptomatic you are.

Corazon17 profile image
Corazon17 in reply tobeardy_chris

Do you mean it would NOT be worth the small risk?

beardy_chris profile image
beardy_chris in reply toCorazon17

Yes - sorry - edited

Not what you're looking for?

You may also like...

Permanent AF

I am in permanent AF and when on Bisoprolol, for many years, had many unpleasant side effects. I...
Heartfelt46 profile image

Permanent AF

i haven't been on the forum in a few months as I have been back to full time work. Unfortunately I...
Vony profile image

Permanent AF

Hi just looking to chat to any one else who is in permanent AF. I'm 45 and have had this since...
smn100 profile image

Permanent AF

Hi I was diagnosed with permanent AF a year ago and put on Apaxibin and Bisoprolol by my GP. I had...
Suzie111 profile image

Permanent AF?

The day has finally come where I went to hospital with sudden onset AF to be told that they won’t...

Moderation team

See all
HollieAdmin profile image
HollieAdminAdministrator
Emily-Admin profile image
Emily-AdminAdministrator
Kelley-Admin profile image
Kelley-AdminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.