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Sleeping problem

papillone profile image
17 Replies

Hi every one

I was diagnosed with AF two weeks ago and put on Bioprolol 2.5mgx2 and Apixaban 5mgx2.

Since than I have slept and now effecting my general health .

Anyone have this experience and if so if so how they overcome the sleep issue

Please advise as I am suffering very badly , do not know if it caused by medications or stress

Thanks

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papillone
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17 Replies
CDreamer profile image
CDreamer

More than likely it will be the Bisoprolol, many people struggle with the effects. I would go back to your doctor if I were you and asked for another medication. Bisoprolol is always the first medication they try - it is used to lower the heart rate when in AF but if you aren’t in AF 24/7 it can lower your HR and BP to undesired levels, make you drowsy, breathless and just not good. Do you keep a track of your HR & BP? If not suggest you try keeping a journal - measure x3 daily for a week - you will then have evidence.

Are you in AF 24/7 or just have AF that comes and goes? Known as PAF. If PAF infrequently you could ask if you could just have the Bisoprolol as a PIP - Pill in the Pocket ie:- only take when you have an episode.

Are you going to see a specialist cardiologist? If already not referred, suggest you insist that your GP refers you.

Where and how were you diagnosed makes all the difference - if A&E they tend to treat and street.

Hope some of that helps.

DiyChas profile image
DiyChas in reply toCDreamer

I'm not sure that answers the question. I have PAF and very irregular sleep well before Bisoprolol and Apixaban started. The Bisoprolol lowered my HR effectively and BP had always been where it should be. The solution may not be PIP.

The problem may be sleep apnea. Papillon should discuss with GP.

CDreamer profile image
CDreamer

PS - just read your bio + previous posts. Have you a date for the cardioversion and have you found a private EP consult yet?

I can’t keep my HR less than 100 walking in NSR but if you are in AF just walk slower and pause more often. I know the stress of first diagnosis is a difficult time but you are right, in will exacerbate things so please find some method of mangaging it and suggest you start with breathing exercises - taking LSD breaths - long, slow and deep through your nose. Lots of stress management techniques really work, exercise may be one the helps and obviously is the one that helps you but because you now cannot exercise to the level you were used to, you won’t have the ‘high’ that comes from exercise so you will need to find something else that you enjoy, pleasure releases endorphins - feel good hormones which counter the stress hormones - adrenaline, cortisol, and norepinephrine. Bisoprolol is an adrenaline blocker so will affect mood as well as physiology. I have to say I felt dreadful on it, as many do.

papillone profile image
papillone in reply toCDreamer

Hi thanks

A& E was first and the Ithen confirm ed later on

How I know I hain in AF

Yesterday all day my HR was 52 to 104 depending I am resting or doing small activity BP is ok no other symptom Just HR Seen the GO no help They quickly sit the door and do not fallow up

thinking to call 111 as I am suffering without sleep Going for prepping for cardioversion end this week what are the alternative from Bisopolol?

papillone profile image
papillone in reply toCDreamer

Thank you for your suggestion trying my best

As I have been just duagnosed with flyer AF

is it normal to have high HR as soon as you do something as in my case while sitting I have HR 69-80 while just walking move to 95-100

Does anyone experience this

CDreamer profile image
CDreamer in reply topapillone

Yes I do, at the moment, not sure why so booking a cardiology appointment tomorrow as my BP is up a bit as well so may need some tests.

Sleep Apnea is worth exploring. I have been treated for SA for the last 10 years with CPAP and although it really takes a while to get used to, my sleep has improved so much that I normally sleep 6-7 hours straight through. I sometimes need to get up to pee but not every night. It also stopped all the nocturnal AF episodes, which had been most nights so can be a cause of AF.

Vonnegut profile image
Vonnegut

I was taken off 1.25 mg of Bisoprolol daily after only three days as it brought my heart rate down too low! It seems as if the dose you have been given is too much for you. Do check your pulse and report back to whoever prescribed it.

papillone profile image
papillone in reply toVonnegut

Very good question

I was given 2.5 mg when I was in A&E crease bu consultant to 2.5 mg X2

NHS shut the door as soon as you leave

No one to contact tell they will contact you

Try to make appointment with GP yesterday e consultation in three weeks . so you are on your own ,

My HR 24 hours is 47 to 105 resting day time is 69-77. I am not doing very much activity for the time being till my cardioversion done

I am having serious problems with my sleep so I am planning to do the following , take 2.5 mg at 05:30 and 2.5 mg around 11-12 am . See if it helps my sleep if not I will go back to 2.5mg mornings only. to help my sleep I thinking to take some sleep supplements

Is anyone there have any suggestions please advise

thanks

Teresa156 profile image
Teresa156

Hi,

Are you not sleeping, or sleeping too much? Your initial post says that you are sleeping which may be a mistake, which is why your responses are suggesting that it’s bisoprolol as it can make you tired and drowsy.i suspect from one of your replies, that you aren’t sleeping.

Bisoprolol could still have the effect of not helping with your sleep, but it’s hard to tell, but if you are experiencing anxiety, that also could be the reason.

Is there anyway you would be able to get an urgent appointment via your Dr? Can you reword the E consult form so you can get seen quicker?

Ideally you should also now be referred to Cardiology for future consultations. You should have an echocardiogram at some point where they scan your heart. Has nobody advised you of this? If not, you should ask your GP to refer you for further tests. Everyone who has AF should be entitled to this after diagnosis.

papillone profile image
papillone in reply toTeresa156

Hi thanks for your response

I am not able to fell sleep so all nights turning around It is difficult to tell stress or Bisoprolol as both effect sleep

some GPs behave like godsTell you call 111 and go to A&E They just shut the door

This morning I did get appointment from A&E and may be afterword will able to see cardiologist

Vonnegut profile image
Vonnegut in reply toTeresa156

Exactly! That’s what happened with me and when I had the echocardiogram the guy who did it told me my heart was structurally sound, which was a comfort!

Teresa156 profile image
Teresa156

Hi Papillone,

You should be offered further investigations as I mentioned, so they can look at your heart in more detail. If you don’t get referred to Cardiology and see a cardiologist, please do ask about it and having an echocardiogram. Unfortunately it’s very easy to fall through the cracks after you get diagnosed for AF and get left behind. Don’t let that happen.

Many of us do book to see Electrophysiologists privately, ( you’ll see them referred to as EPs) privately, to save waiting and then they transfer you to NHS so you can be in their ‘books’ If all else fails. Cardiologists are like the ‘plumbers’ of the heart and EPs are the ‘electricians’. Both work alongside each other. If you can stretch to it, they’re approx £200-250 for a consultation. If you google these local to you, then details come up. You often contact their secretary at your local hospital as most work for the NHS. You don’t need a GP referral either.

I’m sorry I can’t help with the lack of sleeping, as it’s hard to say if it’s the bisoprolol, or stress. I hope it improves for you.

Good luck.

Morzine profile image
Morzine

oh bless u such early days you just feel all over the place with worry and unease about all this.

I was you bavk in 2018 and thrn I found this forum thry saved me in as much I thiyght my life had ended as whrn u r told there’s something wrong with your heart you think his I’ve only got ine heart and your works folds

Trust me it won’t and you will get your life back

Your sleeping may be stress it could be getting used yo bisiprolol it’s a funny drug that really takes a while uo get settled in the system

Plus you may need it tweeted I found whrn they reduced me yo 1.25 it helped

You are in early stages of the doc juggling the drugs to suit you

It’s not the apixaban and most tolerate this well so I don’t think it can be that

I’d say give it all a bit longer maybe??

Check you pulse and makes notes fir your dic

Sue

TaffinSussex profile image
TaffinSussex

Gosh you're lucky to be sleeping on Bisoprolol...do you mean that or is the 'not' word missing perhaps? I've developed chronic insomnia since taking it, despite being so tired. Had only 2 hours last night so am in zombie mode today.

AAW2024 profile image
AAW2024

I too am on the same drugs and dose for AF as you. But now been 6 months. I did suffer with bad sleep. Tiredness in the day , swollen feet and bad dreams. For maybe three months. With continued palpitations especially at night.

I was about to start a second beta blocker tablet as advised by the GP, when everything settled.

I've had 2 months feeling almost normal until contracting the virus thats around with coughing and mucus etc. Then the bad sleeping and palpitations started again. I think as I feel better things might settle back but staying calm is so important.

I'm sharing as I think the body needs a few months to settle down and my GP said that it probably would and to keep relaxed.

So hopefully you will find the same.

I've only just been given my first consultation appt. By phone, for next week. After 6 months from after diagnosis!

Art_lover2022 profile image
Art_lover2022

Hi Papillone, It's definately the medication. They are very strong drugs. I went through exactly what you are going through. I felt terrible, night terrors, exhaustion and nausea, very scary. I went back to the hospital and they reduced the Bisoprolol to 1.25 and I started to feel a bit better. It took a month for my body to accept the drug. I hope you feel better soon.

papillone profile image
papillone in reply toArt_lover2022

HiArt_lover2022

Thank you for your response

You are right about Bisoprolol It had a serious sleeping problem and contact the dr at the hospital He confirmed that some people get insomnia problems blame with Bisoprolol and yesterday he has change my location

Now I am taking Ditalizem 60x3 lets hope it improves

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