OMG pray for me, is this real? - Atrial Fibrillati...

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OMG pray for me, is this real?

Afibflipper profile image
90 Replies

Oh my goodness, is this real!!?

How as it happened?! Pray 🙏 it will stay!!!

After all I’ve been through, 0500am my heart suddenly went into NSR for real honest!!!

HR 67-74 is - 4 months post op ablation!!

I’m still breathless on walking short distance, bending etc but all vitals perfect! My personal theory for the latter- now on too much Bisoprolol but I’m changing nothing yet - sent all to EP - my GP was in shock like me (please let it stay)

Hope you are all well or getting there too xx

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Afibflipper profile image
Afibflipper
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90 Replies
Ludham profile image
Ludham

hi flipper do hope all will be positive from now on after all that you have gone through like you always sceptical about a change in medication

Take care xx

Afibflipper profile image
Afibflipper in reply to Ludham

Thanks so much Ludham, it’s a worry when when you have the AF now a worry will it stay but I am staying calm, happy & thankful right now - best wishes to you too x

sassy59 profile image
sassy59

Keeping everything crossed for you Afibflipper. Wishing you well. 🤞🏼🤞🏼🤞🏼

Afibflipper profile image
Afibflipper in reply to sassy59

Thank you so much sassy59, take care x

jeanjeannie50 profile image
jeanjeannie50

That's great news. I guess your body will need a few days to pick up energy again, after all having your heart out of its normal beat and going fast, it probably thinks you've been competing in a race for days on end.

Jean

Afibflipper profile image
Afibflipper in reply to jeanjeannie50

I think you’re right Jean, just going upstairs right now feels like that guy who does the London marathon in a old metal/lead weighted diving suit

Paulbounce profile image
Paulbounce

Hi Flipper

I am delighted to hear that your heart has gone into NSR and that your vitals are perfect, especially after everything you've been through. It must be an incredible feeling to have a moment of relief after such a challenging journey. I am sure that this is a sign of positive progress and a step in the right direction towards better health. I send positive energy your way - you got this.

Happy day's for you.

Paul

Afibflipper profile image
Afibflipper in reply to Paulbounce

Thank you Paul, it is - actually in shock - like when you’ve had a procedure and it gone into NSR and you constantly wait for the flutter and it doesn’t happen - disbelief & hope right now (been a long years) You take care too xx

4chickens profile image
4chickens

fantastic news.

Buffafly profile image
Buffafly

🙏🏻🫰🏻🍀🐈‍⬛ black cats are supposed to be lucky in some cultures so not trying to jinx you 💖

Afibflipper profile image
Afibflipper

I know that’s what they say but I adore them so send as many as you like (just not real ones -allergic) 😂 xx

Threecats profile image
Threecats in reply to Afibflipper

Congratulations on your return to NSR , Flipper! Long may it continue for you. Here’s one of my black cats with her paws crossed in the hope that things are finally on the up for you 😊x

Black cat with crossed paws
Afibflipper profile image
Afibflipper in reply to Threecats

Thank you, she’s a beauty - she has to be the magic power to keep me converted (I’m sure she will) 🐈‍⬛ xxx

fairgo45 profile image
fairgo45 in reply to Threecats

Another black cat to bring you luck

My black cat Jasmine
Threecats profile image
Threecats in reply to fairgo45

Beautiful cat, Fairgo😻

Afibflipper profile image
Afibflipper in reply to fairgo45

Wow she is stunning, definately a lucky charmer, thankyou x

Hilianna profile image
Hilianna

Hi Great news that your heart has settled down. I hope it stays that way - sounds like you have a supportive GP. Have a nice weekend. x

Afibflipper profile image
Afibflipper in reply to Hilianna

Hello Hilianna, how are you doing? Hoping things are on the up for you too! My GP is absolutely lovely, I cannot fault her. She has mad a point of right from the beginning of this saga last year - she contacted me every week and is still contacting me every month to see I’m Ok but always says if I need anything before don’t hesitate to call. She was concerned when I’d told her of the prescribing errors I’d had with my chest from other practice members and I’m sure that’s due to when other GPs get involved when your regular one isn’t in!

You take care xx

GrannyE profile image
GrannyE in reply to Afibflipper

gosh aren’t you lucky. May your heart stay in sinus now it has discovered how to do so again. Fingers crossed 🤞

Afibflipper profile image
Afibflipper in reply to GrannyE

I hope so, it keeps giving me these little teasers and then it decides it prefers the awful party animal feeling and throws me again x

Autumn_Leaves profile image
Autumn_Leaves

That’s great news! Let’s hope it stays that way 🤞

19591959 profile image
19591959

That is fantastic news. May it continue 🙏

Lilypocket profile image
Lilypocket

Great news! I really hope it continues 🤞🤞🤞🤞🤞🙏🙏 X

southkorea profile image
southkorea

Brilliant. Ask your doctor if you can also take a daily dose of Lansoprazole as this settles the stomach and also works to settle your heart. ( the stomach is close to the heart and an upset stomach can cause palpitations) Walk a mile or so daily and keep your weight down. I also take 2.5 mg of bisoprolol daily. That should do the trick. Good luck. Also make sure you stay on the blood thinners until the doctor says otherwise..

Afibflipper profile image
Afibflipper in reply to southkorea

Thank you, much appreciated-yes already on a similar to Lansoprazole it’s Rabeprazole - waiting for consultant to get back to me re medications

Hazel1010 profile image
Hazel1010

good morning 😊 it’s nice to hear some good and positive news , take care f yourself and don’t push to hard x

bassets profile image
bassets

That's great news! But still take care and allow yourself to continue healing x

Afibflipper profile image
Afibflipper in reply to bassets

Thanks I will, not able to rush as get light headed. I don’t really understand the heart rate variable but that’s gone pretty low so maybe it’s that. Sent data to consultant so should hear this next week xx

mesally profile image
mesally

Lovely to hear this

waveylines profile image
waveylines

Great news flipper. I'm sooooo pleased for you. Your GP sounds fab & so caring. 🤗🤗

Afibflipper profile image
Afibflipper in reply to waveylines

yes, I’m in good hands with GP & EP right now I think/hope x

Gumbie_Cat profile image
Gumbie_Cat

Great news! I’m keeping everything crossed for you. Getting my 3 month post ablation check this week, hoping to find out next steps. Can’t quite believe that I will ever be in NSR again.

Hope you will rapidly feel less tired.

Afibflipper profile image
Afibflipper in reply to Gumbie_Cat

Hi, keep everything crossed for you too, if mine is anything to go by then maybe don’t despair - do let us know how your appointment goes xx

Gumbie_Cat profile image
Gumbie_Cat in reply to Afibflipper

I will! My energy levels seem to be a little lower each day, so I’m crossing fingers for some way forward.

Afibflipper profile image
Afibflipper in reply to Gumbie_Cat

Are you anxious about the appointment or not sleeping well - could you just now be used the the post op effect and can now do a lot more so you tire yourself out more?

I have insomnia and I’m sure some of that affects my energy but not all - does rest help, are you bright &breezy in the morning then energy drops? Just a few ideas to look out for and maybe mention to Dr xx

Gumbie_Cat profile image
Gumbie_Cat in reply to Afibflipper

Mornings are the worst. It’s more when I’m out on walks - getting ever shorter - and just don’t seem to have any energy in my legs. That wading through treacle feeling. Though I did get up the three steep flights of steps to my daughter’s new flat today. Had to pause on each landing with the lack of leg oomph, though weirdly I didn’t get out of breath. (One thing that I’m lucky with so far.)

I was looking forward to the appointment, but as it draws nearer I’m getting nervous. My Apple Watch ‘cardio fitness reading has had an inexorable downward trend since I went into persistent A Fib in October. Even more so since the ablation. The GP said to ignore it, but it’s gone from ‘high’, through ‘above average’ and if it keeps tracking down then it will soon be ‘below average’. I know it’s just an algorithm, and I don’t have a higher spec of the Watch, Yet since it matches how I feel….

I had an MRI as part of a study, and one incidental finding was a lowered heart function since my echo last year. They thought it was just an underestimate due to the A Fib. So I should get an echo this week, cross fingers. They also noted a haemangioma in one vertebra - not a problem, but could be contributing to the back pain that has been around for years - and is really bad right now.

So I get worried in case the ablation has made things worse, and wondering what is next. I’ve found that I’m listed for cardioversion, so hope to find the likely timescale and whether a change of meds is advised. Just on Bisoprolol and apixaban right now - neither dronedarone nor Flecainide has worked on the rhythm.

Gosh, I sound a wreck!

Afibflipper profile image
Afibflipper in reply to Gumbie_Cat

Aww G_C you sound like you’re my twin from last years! I too have a haemangioma in the ball of my foot and when it gets inflamed it pulses and painful in shoes etc but I’ve found the apixaban seems to have helped the blood flow. I can’t remember your bisoprolol dose but that gives me that feeling you describe of wading nowhere! I take a high dose when I have the AF but now the NSR reared it’s head I think the dose is too high for normal HR

I wonder if you asked about Digoxin - it’s old fashioned hardly used but I’d been on it about 18 days the boom NSR.

I was put on Flec after the first CV and left on it - 2nd CV lasted 7weeks and the ablation put up a good fight lasting 7weeks also. I wonder if you were on a rhythm control prior to CV - maybe worth an ask!

Try to just walk and stop walk and stop which is what I have to do at the moment. I’ll try to send some of my magic your way xxx

Gumbie_Cat profile image
Gumbie_Cat in reply to Afibflipper

Magic very welcome! I’ve been thinking that the dreaded Amiodarone might be suggested for before/after the cardioversion.

I’m on 2.5mg Bisoprolol now, but I know just what you mean about it being too much when you go into NSR. Last time I reverted was a few months ago, following Flecainide plus 2.5mg Bisoprolol as a PIP. It worked that one time, though I had to take it two days… Went into NSR and my Kardia initially said ‘unspecified 31 BPM’. It gradually rose. Felt really rubbish that day, then a good night’s sleep and I was fine.

Following month the PIP didn’t work, then daily Flecainide didn’t work.

Difficult to tell how much the symptoms are the condition or the medication really.

Anyway, I’m really hoping this is you back in NSR long term, it does feel so much better once it’s settled back in!

Afibflipper profile image
Afibflipper in reply to Gumbie_Cat

I’ve never been offered PIP even when PAF but maybe back then (mid 2000) it wasn’t thought of! Often it’s the last thing you try isn’t it or like the Digoxin out of the old tea chest and dusted off for a trial!

I’d been seeing my GP last year for a couple of weeks (not the regular one) and my HR was getting higher & higher and they called A/E who said give me Amiodarone. . I lasted 4 days and then realised every dose I took, it would take fewer hours between doses to realise I was reacting badly to this drug. I am though sensitive & allergic to many things.

Flecainide at first gave really odd reactions to the point I said I didn’t like the feelings ( they said I could stop but the AF would return) it did, I couldn’t wait to get myself back on it (worst of the 2 evils)

Try to think positive, even though it’s hard at times to think anything but! I’ve often looked for positive words or phrases and thought “yeah right” then all of a sudden I just feel positive and strong either from nowhere, or family and friend or even total strangers - like on this forum - we’re all with you, every which way you turn, and if you fall someone will catch you 😊🤗 xx

Gumbie_Cat profile image
Gumbie_Cat in reply to Afibflipper

Aw thanks, you’ve given me a bit of hope.

Afibflipper profile image
Afibflipper in reply to Gumbie_Cat

That’s good, whenever you need some more🎁 xx

Singwell profile image
Singwell

Your heart flipped back!! So pleased for you. If it can do it once, it can so it again if need be. The first time my heart reverted spontaneously with no extra meds felt like a milestone for me too.

Afibflipper profile image
Afibflipper in reply to Singwell

This is the 4th time in 12 months, lasted 4 days post CV, then 7weeks post another CV, 7weeks post ablation and now flipped itself this time. AF has been my gremlin since probably before 2007 - I hope it stays good now x

kkatz profile image
kkatz

So pleased for you.Really hope it stays that way.

Afibflipper profile image
Afibflipper in reply to kkatz

Me too, I’m hoping for Black Magic now with all the beautiful black cats people are sending 🤞xx

Cha275rL profile image
Cha275rL

That is wonderful news, I’m so happy for you. 👍🤞xx

charley1953 profile image
charley1953

That is brilliant news and long may it continue. 🙂

tomtom222 profile image
tomtom222

Wonderful news! I wish you from the bottom of my heart that it stays that way 🙏

Fullofheart profile image
Fullofheart

🤞🏻🐈‍⬛🤞🏻

🤞🏻🤞🏻🤞🏻
Afibflipper profile image
Afibflipper in reply to Fullofheart

All these black cats 🐈‍⬛ are making me feel very confident - bit of Black Magic that’s just the job - thank you - he/she is beautiful x

Cavalierrubie profile image
Cavalierrubie

Wonderful - you are certainly in my prayers.

Gain profile image
Gain

wonderful news! I will pray that it remains so. Stay well! X

Tapanac profile image
Tapanac

Oh so very pleased for you. Keep it up xxxx

Afibflipper profile image
Afibflipper in reply to Tapanac

🤞

Tomred profile image
Tomred

Sounds like your heart has done a FLIP,,, long may it continue , enjoy.

Afibflipper profile image
Afibflipper in reply to Tomred

Living up to my user name - Afibflipper has Flipped again, flippin good news 😆

Rainfern profile image
Rainfern

All fingers crossed for you Flipper, and many healing thoughts and prayers 🤞🙏🤗

Afibflipper profile image
Afibflipper in reply to Rainfern

Thank you so much xx

Keano99 profile image
Keano99

Eureka, you’re up and running, that’s great news👏👏

Afibflipper profile image
Afibflipper in reply to Keano99

🤞I’m 🏃‍♀️- one🦵at a time x

GrampaBill profile image
GrampaBill

Thanks be to God! Praise Him and give Him all the credit! Enjoy your newfound freedom and peace!

Goosebumps profile image
Goosebumps

so pleased for you! It’s lovely to hear good news stories.🤞🏼

Tantaanna profile image
Tantaanna

enjoy the moments ! It’s a great feeling the afib folks truly enjoy and non afib folks take for granted! Well , not on purpose.

stargazer52 profile image
stargazer52

great news ! 🫰

Cabot profile image
Cabot

Fantastic!!!!

Snowgirl65 profile image
Snowgirl65

Congratulations! You must be ecstatic to finally be in NSR! May it last permanently.

Afibflipper profile image
Afibflipper in reply to Snowgirl65

More shocked than ecstatic I think, I’ve been here before - I’m obviously very happy just a bit scared to get too over enthusiastic if you see what I mean x

Snowgirl65 profile image
Snowgirl65 in reply to Afibflipper

Yes, I see what you mean indeed! Keeping fingers (toes, eyes, etc.) crossed for you!

Penturner profile image
Penturner

Great news, best wishes.

SCCDL profile image
SCCDL

May the good results continue - ad infinitum!

Daisyblu profile image
Daisyblu

Gives us all a boost to hear such positive news and be able to share in your joy. X

Afibflipper profile image
Afibflipper in reply to Daisyblu

That’s good to hear thank you xx

Taz70 profile image
Taz70

Great news, well done.👏

kocoach profile image
kocoach

Now it is up to you to trust in GOD and continually thank HIM an tell HIM how grateful you are for what He has done with your afib; for whether through EP, cardiologist, cardiovision, abalation, mini maze etc., it is only GOD that is overseeing what is being done and responsible for the outcome. I am so glad that HE has Blessed you with relief from afib, just enjoy it while it lasts and never stop thanking HIM. Will be praying for you. Have a Blessed Day!

Cha275rL profile image
Cha275rL

Absolutely delighted for you. It’s time you had a bit of luck xx

Afibflipper profile image
Afibflipper in reply to Cha275rL

I’ll share 🤗xx

Treschere profile image
Treschere

That is cause indeed to give thanks for.

Can I just ask if you are on Amlodipine as I discovered this was causing my breathlessness and Bendopena and now I am off of it I am much better.

Afibflipper profile image
Afibflipper in reply to Treschere

No never had that one, Losartan I reduced from 190mg to 25mg p/day, Bisoprolol seems 12.5mg has been my niche (currently in divided doses of 7.5mg & 5mg p/day) apart from a while up at 15mg just before the November ablation

Adalaide2020 profile image
Adalaide2020

Long may this continue Afibflipper. Must feel soooooo good. I'm smiling just thinking of you 😁 keep well 🤞xx

Afibflipper profile image
Afibflipper in reply to Adalaide2020

In shock at the moment, think a few tweaks on the meds + fitness 🤞(& more lucky 🐈‍⬛ being sent 😊)

lovetogarden profile image
lovetogarden

great news!!!! Long may it last! Fingers crossed!

JOY2THEWORLD49 profile image
JOY2THEWORLD49

Great.

My heart H/R has changed!

From 23/12/22 my heart from 47 NIGHT avge is staying down @ 67 until

midday.

But I have learnt that I stay on the daily CCH Diltiazem 120mg AM and BB Bisoprolol 2.5 PM.

No ablation as heart L chamber is enlarged.

Dear flipper I hope it stays like that.

cheri JOY

Afibflipper profile image
Afibflipper in reply to JOY2THEWORLD49

Hi there, thank you Cheri - I’m so glad you’ve found what works for you, such a shame we’re we’re not all like a computer programme that when they they find the answer they roll it out, plug us in and flip the switch - hey presto you’re then off the conveyer belt. Hope you stay comfortable and well xx

mjames1 profile image
mjames1

Great news! Don't expect too much too soon. Your body had probably become deconditioned from the time in afib but things should improve gradually.

Jim

C66t profile image
C66t

Great to hear. Woohoo thank God. Easy does it now no jiving around the kitchen🤣🙏🙏🙏

MummyLuv profile image
MummyLuv

yay, hello NSR, long may it stay 👏

Afibflipper profile image
Afibflipper in reply to MummyLuv

Hi MummyLuv, yes I wanted to dance to your beat - how are you doing? Have you had any even slight flutters? I had about 2-3 yesterday which was odd in that even though I had AF till 5 days ago I’d not felt it since last year, obviously I was worried thinking it was was back again!

MummyLuv profile image
MummyLuv in reply to Afibflipper

You will be worried. It’s natural, it’s easy to say relax 😂 I’ve not had any afib but I do get PVCs and bigeminy now and again. I’m far more aware of these than a normal person having been tuned into my heart for so long 🤣

Ablation7 profile image
Ablation7

good luck 🙏🏼

Lbeat796 profile image
Lbeat796

hope all goes well for you Flipper

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