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Atrial Fibrillation Support

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wilsond profile image
29 Replies

Good morning from foggy Warwickshire.I posted recently about delayed follow up appointment after ablation in June and the Idiot GP who advised me incorrectly to stop heart meds in order to prescribe a wider range of painkillers( resulting in 24 hour AF episode)

Finally got a call yesterday from appointment team, I will have a phone consultation " sometime on Monday 5th Dec between 8am and 530pm" good ,but glad Im no longer working,would have been tricky taking call in front of class!

I am to be sure to tell consultant or whoever,about the response to.stopping flec and biso,said Proper GP.

I have requested,through the practice manager ,for a letter or email asking for the reasoning behind the advice.

Thank you for your support when I was fuming away!😀

Also , I mentioned my brother was in for observation due to chest oain.He confused the cardio team as all his obs were ok but had actually had a mild heart attack ( possibly 2) Showed up on diagnostics but troponin borderline, he said.

Had a stent put in within 2 days of admittance ,now home slightly stunned!

Had a good slapping off me as had been prescribed blood pressure tablets in May,didnt take them as he " felt fine "

Some members were kind enough to pick up when I mentioned he was under investigation so thought Id say.

( thats the kind of thing I wonder about in the wee small hours' wonder what they found.....!')

Have a good weekend all!

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wilsond profile image
wilsond
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29 Replies
Gumbie_Cat profile image
Gumbie_Cat

Glad to hear that your brother is on the mend. Good luck on Monday.

wilsond profile image
wilsond in reply toGumbie_Cat

Thank you💓

Paulbounce profile image
Paulbounce

Hi Wil.

Gee - it will be interesting to know if the letter gives you an explanation!

Have a great morning and weekend. Have a great Christmas too. Hang on I'm a bit early for that one.......or am I 😈

Paul

wilsond profile image
wilsond in reply toPaulbounce

Lol! Not at all,someone in our street has had tree, half of B n Ms outside light stock up since 1st week of November. Probably visible from space!Happy Seasonal Felicitations to you too!

Going to be knee deep in holly and ivy for most of it. Have our holly tree trimmed this time of year and make up wreathes to sell. Rashly took orders on local fb page for 48🥴

Have a good weekend

LaceyLady profile image
LaceyLady

Glad your both ok, don’t let them get away with the mistakes 👍🏻

sassy59 profile image
sassy59

Hope Monday goes well for you and wishing you and your brother well. Xx

Singwell profile image
Singwell

May you have a good consult. That's daft though isn't it having to hang about all day? Is it QEH - I see you're in Warwickshire- equally Foggy across the border here in Wales these last two days. Those wee small hours - amazing what they come up with but glad there's been what sounds like a good outcome for your brother.

wilsond profile image
wilsond in reply toSingwell

Same as our Drs here dont even say am or pm!Its University Hospital Coventry and Warwick.

Thank you Singwell!

Ppiman profile image
Ppiman

Life's bumpy journey, eh?!

Steve

Cha275rL profile image
Cha275rL

That’s pretty scary Wilsond, because you do have to try to trust your GP. I don’t trust mine at all, they’ve made a few bloomers with my meds, but glad to hear you’re getting somewhere. Let’s know how you get on.

Rosebank100 profile image
Rosebank100

I had an ablation March 21, saw the cardiologist in the November who proposed an MRI in February which took place and a follow up appointment in April. Nothing transpired, I went back into AF in July and was referred back to Papworth, still heard nothing by September so chased the appointment only to be told he was seeing patients he should have seen in January!! They moved me up the list and gave me an appointment for the 8th November which was cancelled, doctor unwell!! A new appointment for 20th December now the nurses are going to strike on that date so probably another appointment cancelled. Feeling very frustrated and not well!!

wilsond profile image
wilsond in reply toRosebank100

Not good enough

irene75359 profile image
irene75359

Between 8.30am and 5.30pm - a nine hour window! Now don't you go to the loo or anything silly like that and miss your call! Hope all goes well.

Your brother is very lucky; my uncle didn't bother with his blood pressure tablets either and had a severe stroke. Pleased to hear your brother is well, if somewhat chastened.

Let us know how everything goes x

wilsond profile image
wilsond in reply toirene75359

Lol! Bound to happen while in the loo !Yes ,he is lucky. Sorry for your uncle .

I will indeed. Have a nice weekend xx

ETHEL103 profile image
ETHEL103

Wow I have my 3 month followup from St Thomas's 7 months later on Dec 5th.What if any questions are you going to ask if they give you enough time?

wilsond profile image
wilsond in reply toETHEL103

I thought to ask about these:Why wasnt I given any sedation?

Did the surgeon think he had isolated each vein?

Do I continue with flecanide as a daily dose,and can it be reduced?

Do I still need to take bisoprolol?

Will I still be on his patient list in case AF and or Aflutter returns ?

That is if he doesnt tell me the above first!

Good luck Monday!

Xx

ETHEL103 profile image
ETHEL103

I'm hoping to ask can I take Verapimil as a pip as I have done on 2 occasions when my hr shot up to 140 after the moderna jab in Sept.Also same as you re the possible recurring flutter,will I be still be able to contact arrhythmia nurse or am I signed of to fend for myself and have to be referred again.Good luck to you to.

ETHEL103 profile image
ETHEL103

My verapimil stopped immediately after ablation.

wilsond profile image
wilsond

Im still on all meds!

ETHEL103 profile image
ETHEL103 in reply towilsond

Isn't it odd that you are on your meds but mine stopped straight away apart from apicaban plus my other regular meds for bp and cholesterol etc.

wilsond profile image
wilsond in reply toETHEL103

Yes,Ive been trying to get answers for ages, seems odd.I accept apixaban,blood pressure tab,water tab,but heart meds seems daft. Oh well! Find out soon! Xx

ETHEL103 profile image
ETHEL103 in reply towilsond

Hi how did you get on with your followup.Mine was a bit of a surprise.It seems proff Gill is ordering a holter at my local hospital,(long wait) Then I will get a letter asking me to go back for mapping which I forgot to ask what it was.So I'm still in the loop.I was concerned I would be signed off.

wilsond profile image
wilsond in reply toETHEL103

Didnt happen! Trying to find out why. Very annoyed as waited in all day.I expect the holter is to double check there is no af with silent symptoms perhaps?

Keep calm and carry on I suppose?

Thank you for asking x

Gumbie_Cat profile image
Gumbie_Cat in reply towilsond

So annoying! Just reading the thread again after it popped up to the top. The delays, cancellations and sometimes simply lack of communication all add up to stress. Then of course stress isn’t good for us,

With an ablation next week, I’m already thinking ahead to which meds will be advised afterwards etc. Sometimes it’s just that bit of clarity that we need.

wilsond profile image
wilsond in reply toGumbie_Cat

Thats exactly it Gumbie! Good luck next week xxx

Gumbie_Cat profile image
Gumbie_Cat in reply towilsond

Thanks!

belindalore profile image
belindalore

Hope you will get everything resolved soon. And hoping your brother is okay. 🙏

wilsond profile image
wilsond in reply tobelindalore

Thank you. He seems stable and looks good. Thank you Belinda xx

ETHEL103 profile image
ETHEL103

Hi there.Had my followup call and got my questions in.Seems they have more things to check including a monitor and another imaging tracing which I think is the catheters up the heart again ???

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