4th ablation cancelled at lat moment

[Adalaide2020]

hi guys. I just want a bit of sympathy really. Is that ok?

Got to Brighton two days before my procedure. In our motorhome, ready to rest up for a week when i get THE call ' sorry but we are having to cancel your procedure for tomorrow as we have had our GA support pulled' 😲 what?!?!

I thought i was having sedation and not GA , so questioned that. Its what i discussed with the assessment nurse. I dont do GA very well. Puzzled about that.

So its a bit of an unplanned holiday in Brighton for us. Not too shabby only i packed for recovery and not gadding about. Lots of reading material and games.

Im going to look at it like a trial run!

Funny thing is i have been in sinus since being told, whereas i was having all sorts of events prior to coming here. Anxiety has melted away. We shall see how long it lasts 🤞.

Be well all of you and if your in the south of England, stay dry! ☔🌧

[meadfoot]

Sorry to hear this, what a hassle and faff not to mention all the dtress and reorganisation involved. Hope you can enjoy your break away and your current nsr status holds for you. Hoping you get a replacement app very soon.

[pottypete1]

In all I had 7 ablations.

I had 2 ablations cancelled.

The first after arriving at the hospital at 7:30 to first be told you are first in the list only to be told an emergency had to take precedence. I negotiated a cardioversion as I had been in AF for a couple of weeks.

The second was cancelled after I had an allergic reaction to a steroid medication they had prescribed to counteract my tendency to have an allergic reaction to all the pads and leads they attached to me.

On both occasions I had to wait a further month for a new admission.

I totally understand how you must feel because as all of us that have been through an ablation there is a lot of stress and worry leading up to the event.

Hope you get a new appointment soon.

Pete

[Adalaide2020 in reply to pottypete1]

thank you Pete. I know its not the end of the world but ...

You certainly have been through the mill. How are you now?

[pottypete1 in reply to Adalaide2020]

My last ablation was in 2017. Gradually since then the frequency of AF has got further and further apart.

I do have Bradycardia apparently due to having AF for 30 years but all the same my quality of life is significantly better now.

Keep positive!

Pete

[Adalaide2020 in reply to pottypete1]

good to hear you are getting better. I will keep positive, thank you.

Jan

[rc-k]

If it makes you feel any better mine was cancelled on the day, as I lay on the bed waiting to go to the cath lab, because the x-ray machine had broken down.

[Adalaide2020 in reply to rc-k]

doesn't make me feel better 'cos i wouldn't want that for you or anyone. But i appreciate your comment. Hope you are doing ok now.

[Daisyblu]

Hi. I can empathise with you having had 4 ablations cancelled. In fairness more than once it was because my blood tests (INR) meant I was at risk of clots but the one time my bloods were within target range and I was about to arrive at the hospital they cancelled due to problems in the cath lab. As I am generally asymptomatic the cardiologist and I have agreed to watch and wait so Ive come off the waiting list. I do hope you get sorted in the near future,

[Adalaide2020 in reply to Daisyblu]

thank you. Are you on a different anticoagulant now. I found getting my NRI almost impossible.

[Adalaide2020 in reply to Adalaide2020]

INR 😁

[KazDD]

sorry to hear about your last minute cancellation, very frustrating but welcome to Brighton 😁

If you are still here and want to do something to lift your spirits Saltdean lido has doggie swim sessions on over the weekend. I’ve been down to watch a couple of the sessions and have come away with aching cheeks from grinning so much!! They have a fabulous time!! There’s also a lovely cafe directly opposite on the top of the cliff for a nice cuppa and/or eats afterwards.

Hope you get your new date soon, enjoy your visit

Kaz x

[Adalaide2020 in reply to KazDD]

thank you KazDD. This is my 3rd trip to Brighton and i have not been disappointed other than my cancellation. You do see it all here im thinking.

[4chickens]

what a pain in the butt, hope your rescheduling happens quickly. Mind you doggy swimming that Kaz mentioned sounds good fun

[Becksagogo]

Welcome to Brighton! Its a shame its under such awful circumstances and the weather forcast is a bit grim.

[Adalaide2020 in reply to Becksagogo]

thank you. Lots to see here though. Making the most of what sunshine there is. I guess i will be back soon 🤞.

[Becksagogo in reply to Adalaide2020]

👍

[Hidden]

Look how many of us are in Brighton! Sadly not sea swimming weather. Centre of the known universe! So sorry about the cancellation- speak to arrhythmia nurse? Any of you have Dr Julio Calva as your EP?

Where did you travel from Adelaide?

[SophieBella in reply to Hidden]

Yes Im under Dr Julio Calvo too

[Hidden in reply to SophieBella]

like like like!

[Adalaide2020 in reply to Hidden]

From Gosport near Portsmouth, so not very far.

[Hidden in reply to Adalaide2020]

a long way! Is this the nearest good cardiology department?

[Adalaide2020 in reply to Hidden]

there is a good department in Portsmouth but i wanted Jack McCready as he did an ablation for me some time ago that was the most successful.

[Hidden in reply to Adalaide2020]

I’ve seen him as well. It is a good department but yuk to cancellation

[Singwell]

a bummer! Loving the idea of the mobile home a recovery option though.

If only the other half didnt snore like a rhinoceros 😉

[Adalaide2020 in reply to Singwell]

😄 yes i know that feeling 😴

[SophieBella]

Bit concerned about your comment 'they have had their GA support pulled'. Is that permanently or just on this occasion I wonder!

[Adalaide2020 in reply to SophieBella]

I didn't ask as i was rather stunned, but im guessing its just on this occasion.

[pottypete1]

if you get more problems Southampton General have a Centre if Cardiac Excellence.

Pete

[Adalaide2020 in reply to pottypete1]

thank you Pete. I had my 1st ablation there quite a few years ago now. If i get too many issues i may just look at going back there or Portsmouth where i had my 3rd. I have been offered a pace and ablate at Portsmouth but i wanted to try another ablation first. No going back from a AV node ablation.

Thank you for your help

[pottypete1]

You are right. I have resisted a pace & ablate but mainly because I have had severe Urticaria allergic reaction following ablation procedure.

What has happened is since my last ablation my heart has settled down well but with Bradycardia. My EP at UHS has now suggested just a pacemaker but I am still resisting until they do allergy tests on me with the components of the pacemaker.

Pete

[Adalaide2020 in reply to pottypete1]

I dont blame you. Quite a bit to consider Pete.

[Bunnyuk in reply to pottypete1]

I had a delayed severe urticaria reaction after my ablation. When i phoned the nurse to report she said it was unlikely to be because of the abalation! Do you know what in particular caused yours, and how soon after did it flare up?

[pottypete1 in reply to Bunnyuk]

Multiple patch tests proved that my skin was allergic to over 100 different chemicals and metals. This included the electrodes they use attached to my body during the ablation and for ECGs for example.

Consequently I’ve been very reluctant to go forward with a pacemaker until my medical team can prove to me that I will not have an allergic reaction to either the leads or the metals which comprise the pacemaker.

I was told by my EP years ago that I need a pacemaker and still I’m waiting for a tests to take place.

I know that I am in unusual case I must be having had seven ablations but I don’t want a situation where I am reliant on a pacemaker and have a terrible urticaria as a result.

For my final three ablations the anaesthetist sprayed a product called OpSite onto my skin and this formed a barrier between the electrodes in my body thus minimising the allergic reaction which still happened but was a lot milder.

Hope this all helps.

Pete

[Adalaide2020 in reply to pottypete1]

thank you Pete.

[Jetcat]

sorry to hear that adalaide. Try and make it into a little chill out break and never mind about the rain. At least you’re away.👍x

[Adalaide2020 in reply to Jetcat]

doing just that Jetcat. Making lemonade out of lemons and so on, but in a great place with two souls i love, my partner and my dog, not too shabby 😁Thank you.

[Jetcat in reply to Adalaide2020]

you can’t beat that. It sounds lovely. Especially the lemons. I make a lot of lemon water. My work friends just can’t understand how I can drink it.😂👍

[Adalaide2020 in reply to Jetcat]

maybe they should try it! Lovely stuff 😋

[Jetcat in reply to Adalaide2020]

I can’t get enough of it. I always think it’s doing good for me.

[belindalore]

Sorry. At least you are making lemonade out of lemons. 😌😊

[Adalaide2020 in reply to belindalore]

absolutely 👍