A tale of caution.: My FIL, whom also... - Atrial Fibrillati...

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A tale of caution.

beach_bum profile image
13 Replies

My FIL, whom also has AFIB, was recently switched from warfarin to xeralto.

He did not tolerate it well, so while waiting for a Dr. appt to find something easier, he decided...without informing anyone, to reduce the dosage by half.

Bad idea. He suffered an ocular stroke and has lost the sight in his left eye.

So please be careful out there, and let the professionals decide what is best.

Yes he deeply regrets his error in judgement, and it has changed his life in an instant.

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beach_bum
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13 Replies
BobD profile image
BobDVolunteer

So sad.

CDreamer profile image
CDreamer

Very 😢

Ducky2003 profile image
Ducky2003

A sad reminder why we shouldn't tinker with meds without our Drs say so. I sincerely hope that he can move on and not beat himself up over it. Best wishes to him.

beach_bum profile image
beach_bum in reply toDucky2003

Oh his spirit is fine so far...tough lesson learned. He is typically not the person to mess with his meds. He understands science....he's a retired scientist, he just, like so many others, were victims of covid and its' domino effect. Doctors and nurses crushed by the surge of patients, quitting because of being screamed at and spat upon. Waiting waiting waiting...and they live far out in the country, and over 1 hour to their also-elderly doctor...who has been an empty suit for the better part of 2 years on his way to retirement, and finding a new doctor, like so many others, is a waiting game. So after 2 months of feeling horrid because of the Xarelto, and getting no response, he did what he knew what he should not.He knows he should have know better, but it is what it is. He is just relieved he won't be losing his licence.

Ducky2003 profile image
Ducky2003 in reply tobeach_bum

Bless him. Hope his spirit continues to be strong.

beach_bum profile image
beach_bum in reply toDucky2003

Thanks for your kind words...he is a tough one, he will "adapt, overcome, improvise" :-)

jeanjeannie50 profile image
jeanjeannie50

Oh dear, how awful, thanks for the warning.

mrgwair567 profile image
mrgwair567

Oh dear!

Frances123 profile image
Frances123

So sad. Reading your story I can almost understand why he did it though and he must have felt so frustrated with feeling sick. A hard lesson learnt but glad he is able to come to terms with it. x

irene75359 profile image
irene75359

So sorry to hear this, but glad he is accepting, and here to tell the tale.

Ablation7 profile image
Ablation7

Hope your FIL can recover from this!

beach_bum profile image
beach_bum in reply toAblation7

Thanks for the optimism, but unfortunately, there is no recovering from an ocular stroke. It is irreversible, with a very small window of improvement if caught within the first few hours. His happened while he was sleeping, and there is no pain involved, he woke up blind in that eye. He will adapt, he is not big on self pity 🙂

Ablation7 profile image
Ablation7

I’m sorry to hear that. Glad he has a good attitude. My parents’ lifestyle taught me that grace and humor can get you through an awful lot in life!

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