It feels like a huge weight has been lifted from my shoulders…

[Slidingdoors99]

Hi Everyone!

Last night I broke the news to my son and have just now spoken to my daughter too.

Both conversations were very hard and tearful, but they were kind and understanding and will be tested for the genetic link now.

I told them how sorry I was if I have given them this worrying heart problem, but they were both saying for me not to feel this way..

They need time to digest this information now, as I did , but I think that at least I will be able to eat something now and might sleep better tonight.

I am so very grateful for this forum.

Thank you all again. 💖

[Jalia]

I've just caught up with your post. I'm so pleased for you that you've been able to have that so difficult conversation. You've done the right thing as these conversations are so vital. You must be so relieved.

My sister lost her husband suddenly from a heart attack at barely 50 . His mother died in her sleep at a similar age. Both had hyper familial cholesterolemia and were unaware.

Best wishes

J

[Slidingdoors99 in reply to Jalia]

Thank you Jalisco xx

[jeanjeannie50]

It's strange how we sometimes build up a drastic scene in our heads over what's going to be an outcome of a conversation. I'm so pleased to hear that the giving of news to your children has worked out ok. Yes, I can certainly imagine how you feel now that the weight from your shoulders has been removed. Sleep well tonight.

Jean x

[Slidingdoors99 in reply to jeanjeannie50]

Thank you. 😋❤️

[Kennyb1968]

That must have been incredibly tough - a really difficult and worrying time lies ahead. I guess that the only positive is to remember that medical science is constantly developing new cures and therapies that are making more and more diseases and conditions a thing of the past or something that can be coped with. I know that 50 years ago I would probably be an invalid but I am strong and pretty healthy despite many medical challenges. Stay strong and pull together as a family.

Good luck,

Kenny

[Slidingdoors99 in reply to Kennyb1968]

You’re right! Thank you Kenny. 😋

[dedeottie]

I can feel your relief. Well done. You have done the right thing by everyone. X

[Slidingdoors99 in reply to dedeottie]

Thank you. 😋

[Gumbie_Cat]

I’m so glad that you’ve got through that hurdle, it must be such a worrying time for you. When I read your post, I had just been listening to a recent BHF ‘The Ticker Tapes’ podcast about inherited heart disease. They are funding the ‘CureHeart’ project of research into inherited cardiomyopathies. The line that struck home was ‘you’re funding hope’.

All the very best for you x

[Slidingdoors99 in reply to Gumbie_Cat]

Thank you.☺️

[saulger]

My father had his first heart attack in his 40s and had heart problems for the rest of his life, as have his brothers.

My heart arrhythmia started in my 20s and it never entered my mind to blame my parents.

Our parents give us our life and love, and we share with them the good with the bad.

Good luck to you and your family. Saul

[Kennyb1968 in reply to saulger]

What a wonderfully supportive and honest post. AFib gallops in our family arising from my Dad. I don't blame him it's just one of those things. What is far more important is that he gave me and my brothers and sisters the most wonderful upbringing and at 89 years young he is still there for us all.

[saulger in reply to Kennyb1968]

Good luck Kenny and good health to you and yours !

We sometimes forget that we are living in the miracle of an infinite universe.

[Slidingdoors99 in reply to saulger]

Many thanks for that Saul.

[bassets]

Well done! You managed it

[Slidingdoors99 in reply to bassets]

Yes! I did.☺️

[Fullofheart]

Well done. Hope ypu can take a few deep breaths now. 🌸

[Slidingdoors99 in reply to Fullofheart]

Thank you and last night I only woke up a couple of times. My stomach is still churning… but not nearly so much.

[Cha275rL]

So pleased to hear you had the courage to tell them, what a relief for you. Now go and relax with a slap up meal. xx

[Slidingdoors99 in reply to Cha275rL]

Thank you!☺️

[Becksagogo]

Well done you. It must have been very hard for all of you but now you and your children are aware of what may lie ahead. They may not be affected as these things quite often jump a generation so they can choose whether or not to tell their children when the time comes.

Now you can enjoy your Bank Holiday. X

[Slidingdoors99 in reply to Becksagogo]

That’s interesting. I wasn’t told there was a possibility of it skipping a generation only the 50% change thing…. Then there’s my 3 grandchildren to think about…

[Buffafly in reply to Slidingdoors99]

I think someone who seemed familiar with the condition said it didn’t, so if your children are ok no need to worry.

[Slidingdoors99 in reply to Buffafly]

Yes and thank you B. ☺️

[belindalore]

You have a good strong family. You all will be just fine. 🙏

[Slidingdoors99 in reply to belindalore]

What a lovely thing to say. Thank you.

[wilsond]

Now focus on your own care please xx

[GrannyE]

Well done you. You have done the right thing and it took a lot of courage and resolution to do it. I am sure you will sleep better now.

[Slidingdoors99 in reply to GrannyE]

Thank you so much! Xx

[Singwell]

I've just returned from abroad and read your earlier post. You've done the right thing I think. Must've been hard but it would have preyed on your mind, and it is better that they are forewarned. There are many medical advances and also lifestyle changes that can make a difference.

[Slidingdoors99 in reply to Singwell]

Thank you so much! My consultant says that it’s not connected to live style but please tell me anything you know? 😋

[Singwell in reply to Slidingdoors99]

Alas I don't have any other information but it might be worth checking out the Ornish Programme in the US to see if they'd had any success with getting people stabilised with this condition. He's a very well known cardiologist who apparently has reversed heart problems with lifestyle changes. Might be worth a look.

[Slidingdoors99 in reply to Singwell]

Thank you. You are kind. Since my diagnosis I have read and watched YouTube videos etc to find out all that I could.You see, this is due to an inherited faulty gene from birth and although I keep myself as healthy as I can there isn’t any lifestyle changes that can help.

Thank you again.

(There is more than one type of cardiomyopathy)