My CV failed after 9 days .I need feedback on my Options.
Spoke to Arrythmia Nurse today and he gave me options to review. live with it,Another cv with Amiodarone,or ablation.I am disregarding Cv with Amiodarone as he even pointed out side effects & dangers.
He also pointed out dangers of Ablation .
As regards living with it. I have been in Persistent AF for a year and got used to it.But it was low HR.This time Tachycardic since my short walk .
Opinions & advice please.
To be honest that fact that it held for nine days is good news. had it not then ablation would likely not be an option.
Please remember that you are told all the risks and bad things that might happen so you can't sue the doctors. How often do you actually hear of any of them happening. Remember that only a very small percentage of ablatees visit this forum and those are usually the ones where it hasn't worked as well as it can.
Really you are left with the best of no really good options but I would go with ablation as best chance if you are still seeking NSR.
It’s a very personal choice and only you can decide what feels more comfortable for you. Knowledge of all the options may help you decide? Look them up on the AFA website.
All treatments involve risks and benefits and there are no absolutes here so it’s really down to what you are more comfortable and able to live with.
I can only speak from my persoanl experience.I was in sinus for two years after a CV taking 100mg of Flecainide twice a day. It worked for me. During the lockdowns I drank more and hence am now back in afib. Maybe it would have happened anyway. Who knows.
Given a choice now what would I do ? Simple answer- flec with a small bit of beta blocker to stop flutter and another CV. That's the route I would like to take.
Cheers Paul
Thanks Paul for the cv the drug I would have to take Amiodarone has really bad side effects so ruling that out.So live with it ( which I might consider if it settles down) or ablation.Had to get up & go downstairs in the middle of the night & when I returned to bed heart was thumping & I was sweating.Don't want to live with that all the time.
Good morning, as far as my own experience is concerned I would recommend ablation as the first step. If it does not return you to NSM another ablation could well be the answer. In my case a pacemaker and AV node ablation has worked wonders. Back to enjoying life again
dave
If you haven't had one in a while, I would ask for an echocardiogram or MRI to find out why you now have a racing heart with exercise. My elderly friend has lived with persistent AF for very many years and remains well - but his heart rate is in the normal range (not that he does much exercise!).
Steve
I know why I am suddenly having breathless.It is because I had 9 days of Nsr & the AFib is jumping around waving it's knickers in the air shouting I'm FREE.Can just picture this little stick figure .No seriously the Senior Arrythmia nurse who organized the cv says it is because my heart was in Persistent AFib for a year and symptoms had settled and remodelled itself & didn't like the change.Talking about having ECG I have a tale to tell and it warrents a separate post which I will do today .Part rant & part maybe helpful advice.Probably called .Speaking to the right person & persistence.
Same as me exactly except my cv only lasted 2 hours then ectopics started and back I to persistant a fib.I have been offered another cv but I declined the Amiodrone as he explained the side effects and long term lung and liver damage.So its a waiting game but hospital is getting overrun with covid so wo t hold my breath.
It’s always an extremely difficult decision for us to make when we read conflicting experiences with any drug and treatments available .
Myself I have seen two top cardiologists in recent months both armed with the exact same data and have given me 100% opposing views going forward..
The recent Gov.uk article posted here with regards taking Amiodarone is giving me great concern with an upcoming CV…
Unfortunately we have no idea how drugs or treatments will affect us until we take them.
It’s difficult to say the least and they say that knowledge is power.
Hi Steve Can you post the link to to the Gov
article on Amiodarone
Thanks
gov.uk/drug-safety-update/a...
If the link doesn’t work then just type Amiodarone in the search bar and it will take you to the post earlier this week..
Yes there are other options!!!!! There is another option available with a 96% successful "CURE" rate and a its a one and done procedure. Learn all your options, as almost all AFIB begins outside the heart with the vagus nerve. Research all you can on the "Wolf Mini Maze" done by Dr. Wolf, This is NOT open heart surgery, ..... wolfminimaze.com/
Amiodarone
Amiodarone experience of??
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