AF returned: Hi everyone, has been... - Atrial Fibrillati...

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AF returned

Lesleyray profile image
32 Replies

Hi everyone, has been awhile since I been on here after my ablation in July. In the last 3 months I’ve had 9 episodes, have just had one this afternoon over 3 hours BPM 179, the left side of chest is aching and I feel so sick. Took PIP flecainide. For the first time, in those 3 hours I could not stand up, everything went black and I was in danger of collapsing. Never happened to me before, just need reassurance as I’m getting really scared that what is happening is not normal

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Lesleyray profile image
Lesleyray
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32 Replies
Buffafly profile image
Buffafly

You should have called 999!!! That is not normal.

We always say an AF episode is not an emergency unless you have chest pain, faintness or breathlessness and you had all that plus the sickness. That could all have been caused by the high rate but equally by an MI (heart attack).

If you have continuing pain or feel worse in any way I would at least call 111 but I hope you feel better soon ❤️‍🩹

Lesleyray profile image
Lesleyray in reply to Buffafly

Hi, I feel much better today but very tired, I will ring 111 next time this happens and go from there, thank you for replying

Lainie2875 profile image
Lainie2875 in reply to Lesleyray

In circumstances like this 111 will always tell you to go to A&E so you are better ringing 999 and a first responder will decide or the paramedicsWe all do this but why ??

Hope you feel better soon this condition it so dibilitating and frightening at times

Lesleyray profile image
Lesleyray in reply to Lainie2875

Hi, feeling much better thank you, with all the advise on regarding ringing 999 instead of 111 I will certainly ring 999

BobD profile image
BobDVolunteer

Any chest pain or fainting/dizzyness needs investigation. If still in trouble ring for emergency services.

There are some people who get serious pain during AF events but don't decide you are one without checking.

Lesleyray profile image
Lesleyray in reply to BobD

Hi, I will ring 111 as this was the first time I was frightened with this episode, thank you for replying

dmac4646 profile image
dmac4646 in reply to Lesleyray

if u feels like that again its 999 - 111 these days does not cut the mustard

Lainie2875 profile image
Lainie2875 in reply to dmac4646

Couldn’t agree more

jeanjeannie50 profile image
jeanjeannie50

Were you on your own? This warranted a 999 call. Fast heart rate, feeling sick, chest aching and a feeling of blacking out =999. Are you still feeling sick now?

Jean

Lesleyray profile image
Lesleyray in reply to jeanjeannie50

Hi, Hubby was with me, I feel much better today and will certainly ring 111 next time, was scary. Thank you for replying

Lainie2875 profile image
Lainie2875 in reply to jeanjeannie50

Absolutely

CDreamer profile image
CDreamer

It does need checking out when that happens but I’ve had such incidents a few times and been taken to A&E and it wasn’t an MI, it was caused by unusually low BP but as the others have said - always get it checked out immediately. Know when it could be an emergency could save your life.

Lesleyray profile image
Lesleyray in reply to CDreamer

Hi will certainly get it checked out next time, I have a medicine review with the nurse next mon, going to see if I can get a face to face with my doctor to discuss

Singwell profile image
Singwell

Let is know how you are. That's worrying, as all have said.

Lesleyray profile image
Lesleyray in reply to Singwell

I feel much better today thank you, very tired but am resting in a very warm conservatory which is heaven

Singwell profile image
Singwell in reply to Lesleyray

Happy to hear this. Definitely report to your arrhythmia nurse as this is important information about progress of your ablation. I agree BTW with others that sometimes a BP hypo can cause the dizziness and nausea. Plus feeling like you will black out if you sit or stand. Sometimes in a prolonged episode we get low on fluid and/or electrolytes. I've had this happen once and its very frightening.

Jajarunner profile image
Jajarunner

I always go to hospital to be cardioverted as my heart always goes that high. The few times I have felt as bad as you describe we have called 999 and they came very quickly.

Lesleyray profile image
Lesleyray in reply to Jajarunner

Thank you for replying, I never know how high the BPM needs to be before ringing 111 but I won’t hesitate next time

baba profile image
baba in reply to Lesleyray

If it is making you feel ill, dizzy or feel like you are going to faint, ring 999.

It could just as easily be low rates with long pauses making you feel that way.

Lesleyray profile image
Lesleyray in reply to baba

Hi, I will definitely do that as I’ve not experienced the fainting before

Slidingdoors99 profile image
Slidingdoors99

So, so sorry to hear that. I really hope you can get this sorted out very soon.

Lesleyray profile image
Lesleyray in reply to Slidingdoors99

Thank you

Ppiman profile image
Ppiman

I would say firstly, bad luck and poor you. Secondly, I would think that the best course of action depends on whether your symptoms are new or what your doctor already knows about and has reassured you about in the past.

Left-sided chest aching seems to be a feature in some people with arrhythmias - well, I get it, along with gastric symptoms, including nausea, and other chest discomfort, often going under my the left rib and into my back. I was assured that is all “nothing to worry about”. The accompanying anxiety is hard to deal with, though.

Blacking out (syncope), or feeling like you’ll faint (pre-syncope), could be from your blood pressure falling. If that is a new symptom, again, it does need investigating.

Steve

Lesleyray profile image
Lesleyray in reply to Ppiman

Hi, it was something new, I had a cryo ablation last July which had to be abandoned 2 thirds through due to complications, I never thought of taking my BP but will do so if it happens again

Ppiman profile image
Ppiman in reply to Lesleyray

You might not be able to get a 'useful' BP reading because you will be very anxious in the taking of it and this might well raise the systolic quite significantly (my systolic is sometimes 140mm Hg because I am easily made anxious, but my diastolic can be 58; but even at that, I didn't feel faint, which did rather surprise me.). If you do try (and let's hope you never get a reason to!), then look at the diastolic, the lower reading, maybe. This is the one most likely to be low thanks to beta-blockers, also.

Steve

captainKFF profile image
captainKFF in reply to Lesleyray

I’m glad you’re feeling better, may I ask what were the complications you had during your ablation and what did the doctors say?

Lesleyray profile image
Lesleyray in reply to captainKFF

Thank you, I have earlier posts regarding what happened, I don’t know if you are able to read them, if you cannot I’m quite happy to relay them to you if you let me know but it was not a happy experience

marcyh profile image
marcyh

I was fine after my ablation, had vaccines, then had a very scary episode a few months later. I ended up in emergency.

Clarrie profile image
Clarrie

When I took flecainide I used to get like a black mist come over me and felt I was going to pass out. I had to stop taking flecainide.

Lesleyray profile image
Lesleyray in reply to Clarrie

I have been of flecainide for about 4 years and have been okay so not sure what happened

Melbuckton profile image
Melbuckton

Have you had a CT scan to make sure flecinaide is safe for you?

I had one and it showed that I couldn't take flecinaide.

Lesleyray profile image
Lesleyray in reply to Melbuckton

Hi, no, I’ve been on flecainide for a few years and all was good until af episodes started breaking through

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