Flecainide - long term use: Hello, I... - Atrial Fibrillati...

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Flecainide - long term use

Montsauton profile image
12 Replies

Hello, I have been on Flecainide for about six months and it has worked very well. I was just wondering what is the maximum length of time one can stay on this drug. What are other people's experiences? Can this be for life?

Thanks

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Montsauton profile image
Montsauton
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12 Replies
BobD profile image
BobDVolunteer

For many it is. An ablation may enable stopping it for a period of time but there is little evidence to say it will not come back one day.

bonnie54 profile image
bonnie54

Flecainide left me housebound so I gave up before two weeks were up. But fortunately my 2009 ablation was successful so have not needed any drugs since.

stoneyrosed profile image
stoneyrosed in reply tobonnie54

12 yrs AF free is brilliant. That’s what I call a successful ablation 👍

bonnie54 profile image
bonnie54 in reply tostoneyrosed

Yes, I mention it now and then on here to give people hope. Otherwise, only people still having problems tend to post.

stoneyrosed profile image
stoneyrosed in reply tobonnie54

That’s great, it looks like I am going to need a second ablation and I am clinging to the hope it will be my last and will last as long as yours Bonnie, thanks 🤞

bonnie54 profile image
bonnie54 in reply tostoneyrosed

Best of luck.

lizzily profile image
lizzily

I’ve been taking 50mgs twice daily with 1.25mgs Bisopralol daily, for 9 years and it’s been a God send. I have an annual ECG and no obvious side effects so far. 🤞

Angie06 profile image
Angie06

Hi, I've been taking 50mg x2 daily for 15yrs now with no ill effects that I've noticed. When I was diagnosed I was told it would probably be for life and this seems to be the case, but as my AF has been mainly asymptomatic (apart from 2 episodes) I'm happy to continue with it. 😀

secondtry profile image
secondtry

When I was put on 200mgs Flecainide I was determined to wean off it after 6 months. However, that time limit passed without the courage to slowly wean off and now I am up to 8 years. I think one member here holds the record of over 30years!! The ironic situation is the healthier you become and the longer you are on it the less likely you are to stop taking it (for fear of rocking the boat). The hardest lesson to accept for most with AF is compromise.

Pita profile image
Pita

I have been taking Flecainide for over 11 years now, first I was on 100mg twice daily, now I take 50mg twice daily with the option of 100mg pip since my 2nd ablation in 2010, I do have AF break throughs but are short lived now (I am symptomatic )

Finvola profile image
Finvola

I've been taking Flecainide for over 7 years and have had no AF in that time. Flec gave me back my life and I hope to stay on it for my remaining years.

Montsauton profile image
Montsauton

Many thanks for those very reassuring posts.

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