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Ectopics

kalgs profile image
46 Replies

I had my ablation almost 4 months ago and have not had any ectopics or AFIB in that time . However. Yesterday I had some atrial ectopics and SVEs. I can’t find any cause .

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kalgs profile image
kalgs
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46 Replies
Jalia profile image
Jalia

I'm the same. I had my ablation 5 months ago and noticed frequency of these, per Kardia, some weeks ago. I'm assuming part of recovery as not really bothering me. ( I have quite a bit else going on health wise to keep me occupied 😬)

Elli86 profile image
Elli86 in reply to Jalia

Hi jalia.

How are you getting on in general now? Can’t remember if you said you were completely off meds now or not?

kalgs profile image
kalgs in reply to Elli86

Reduced beta blockers ages ago so not that . Been fine until yesterday?

Elli86 profile image
Elli86 in reply to kalgs

I thought you said you tried to come off meds completely and had some issues doing it?

kalgs profile image
kalgs in reply to Elli86

I reduced very slightly weeks ago but went back on to the original dose

Jalia profile image
Jalia in reply to Elli86

I'm still talking my anti arrhythmia drug Disopyramide , so no change in my meds yet. I don't have any problem with taking it so in no hurry. No beta blocker as only used as PIP

kalgs profile image
kalgs in reply to Jalia

Thanks. Keep safe

Elli86 profile image
Elli86

Have you been tapering off meds kalgs?

If you’ve not had any ectopics or afib since ablation then I would consider myself incredibly lucky. My hearts been all over the shop since ablation but calming down over last 5/6 days with a steady heart rate and gradually dropping. Down to 63/64 overnight 👍

kalgs profile image
kalgs in reply to Elli86

Thanks . I think the problem is when you’re going well and this happens it’s a hell of a knock

Elli86 profile image
Elli86 in reply to kalgs

I suppose it depends on whether you consider a few ectopics to be a knock or not. I wouldn’t. Think ectopics are just a fact of life after an ablation to be honest.

kalgs profile image
kalgs in reply to Elli86

Ectopics are what we all get I understand that. It was the SVEs that’s concerned me

Elli86 profile image
Elli86 in reply to kalgs

It’ll all work out kalgs. Your still early days and sounds like you’ve been very lucky thus far.

Easternmost profile image
Easternmost in reply to kalgs

I’m sorry to hear that you have taken a knock. I think the fear that things have failed is very real as we have all had unpleasant experiences pre-ablation. You are very early in to your recovery and I think this is normal for the stage that you are at. Are you resting enough? Cut caffeine, alcohol and keep hydrated. Reduce stress if possible. I am 14 months post ablation for flutter and had a run of fast heart rate on Christmas Day. It brought back all the fears that I had just about got under control! I had Covid before Christmas and have been told this could be why. I am having tests to be checked over - my point being that if your heart doesn’t settle, then the experts will be able to do things to sort you out. Wishing you well and remember you are definitely in your early stage of recovery still.

kalgs profile image
kalgs in reply to Easternmost

Thanks for your advice and I wish you lots luck

4Pip profile image
4Pip in reply to Elli86

Yes had my ablation 6 weeks ago and am in Afib for nearly 2 weeks. Hope I’m healing

kalgs profile image
kalgs

Thanks so much

Ijacp profile image
Ijacp

Had first ablation 7 weeks ago. Stopped Flecainide after 5 weeks and been getting ectopics since stopping medication (although still on apixaban). I can’t comment on SVE’s but with the ectopics I get the exact same feeling as I used to when my PAF was about to kick in, just now I know it can’t because of the ablation, and instead I get ectopics every few minutes or so, at the time I would previously have had an episode of AF. I don’t stress over them and they eventually subside. As it’s early days I am hoping this will settle. From reading previous posts things can still be improving much longer than just beyond the 3 month blanking period. So here’s hoping for further improvements in 2022…

kalgs profile image
kalgs in reply to Ijacp

Thanks and wishing you lots luck

Lonelytraveller profile image
Lonelytraveller in reply to Ijacp

Hi, I am 4 weeks post ablation with some remarkable ectopics and having a similar feeling as you defined “afib almost kicking in had I not gotten ablated”

I was wondering about your current state, I hope afib free and ectopics were just seizures during the healing of the heart tissue ? 🤞

Recently I read some scary studies associating ectopics with a late recurrence of afib. Need some reassurance frankly. 😊

Ijacp profile image
Ijacp in reply to Lonelytraveller

Hi - no real issues to report. If I get overly stressed or if I overly exert myself when I’m out running, my heart let’s me know with the odd “missed beat” but that’s all. Otherwise it’s very settled and I continue to avoid alcohol and watch what I’m doing. Thanks for getting in touch and I hope this gives you a bit of reassurance - it’s still very early days for you so hopefully you’ll continue improving.

Bigandy profile image
Bigandy

You may want to consider two factors: 1. The quality and duration of your sleep and 2. Your level of general anxiety. I found that reducing media and stress exposure as well as the amount of Beta Blocker medication to be helpful.

kalgs profile image
kalgs in reply to Bigandy

You are absolutely right . So you reduced your beta blocker’s?

Jetcat profile image
Jetcat

You may drive your self mad trying to find a cause.? In the past I kept a daily record of everything I did and everything I ate,drank, exercise, work, and I personally could never pin point a cause for my ectopics as they would just appear out of blue.😡So I threw my writing pad away saved half a forest in a year.?

KMRobbo profile image
KMRobbo in reply to Jetcat

Exactly!

Jetcat profile image
Jetcat in reply to KMRobbo

I think the people who can identify a definite trigger are the very lucky ones. I never have been able to in 30 years of missed beats, racing beats, slow beats, and later AFIB.😡

Mugsy15 profile image
Mugsy15

Struggling with this Kalgs! How are you differentiating between 'ectopics' (which aren't happening in your ventricles and are therefore 'supraventricular') which you are not concerned about , and supraventricular ectopics, which you are concerned about? Same thing surely?

kalgs profile image
kalgs in reply to Mugsy15

I’m not struggling. Ectopics and SVEs are not the same . Atrial ectopics for example are not SVEs . I have a 6L Kardia . I sent the ECGs off for analysis.

KMRobbo profile image
KMRobbo in reply to kalgs

Hi Kalgs - found this on kardia

What is SVE of the heart?

Kardia Advanced Determination “Sinus with Supraventricular Ectopy (SVE)” indicates sinus rhythm with occasional irregular beats originating from the top of the heart. A common reason for this is premature atrial contractions (PACs).28 Jan 2021

alivecor.zendesk.com › articles

What is Sinus Rhythm with Supraventricular Ectopy?

Hopefully your reply from Kardia will clarify, but in the meantime don't worry!

Best wishes

kalgs profile image
kalgs in reply to KMRobbo

Thanks

Mugsy15 profile image
Mugsy15

I'm afraid I disagree. The prefix 'supra' means above. Atrial ectopics are SVEs.

kalgs profile image
kalgs in reply to Mugsy15

Ok . Let’s agree to disagree . I will tell the cardiologist he is wrong

Mugsy15 profile image
Mugsy15 in reply to kalgs

No cardiologist would tell you that Atrial Ectopics are not Supraventricular Ectopics. Of course they are, the atria are above the ventricles! Supraventricular! It's that simple.

I've tried to explain that in the hope of reassuring you. If you insist otherwise, there's nothing left for me to say.

kalgs profile image
kalgs in reply to Mugsy15

I hope you are not calling me a liar . Let’s end the conversation. He said atrial ectopics and SVEs are different in possible cause and location

Mugsy15 profile image
Mugsy15

I may be wrong, but my hope is to reassure you - what I think may be happening here is that you are experiencing ectopics and your Kardia is quite rightly recording these as SVE's - which they are. Because you believe SVE and Atrial ectopics to be different animals, it has worried you unnecessarily.

KMRobbo profile image
KMRobbo

I am nearly 4 years post ablation, have never had AFib since, but I still get ectopics, some times long runs of them . Some appear to happen when I have some sort of bug or infection , some just happen. So far as I can tell they have not done me any harm, my EP was not concerned about them on my 12month post ablation appointment, so I just ignore them. If they are very frequent (more than 1 in 15 "missed" beats ) they can get irritating, but they don't stop me doing anything. Speak to your EP to see his view and if he/she is not worried then my advice is don't worry either. Worrying can make them worse. Currently you are very sensitive to your heart so notice every little thing . Everyone has ectopics . Most people who never had heart issues don't notice them. As they are not so sensitive. I am not medically trained.

kalgs profile image
kalgs in reply to KMRobbo

Reassuring and nice to hear how you are going

blulla1 profile image
blulla1

Try this. It's worked for me. Haven't had ectopics/palpitations for some time. carrafibdietinfo.com/

localad profile image
localad in reply to blulla1

Thank you for this link. Most interesting !

blulla1 profile image
blulla1 in reply to localad

if you try it, give it some time. The biochemistry of the body doesn't change overnight. It took around 7 weeks for results to more consistently kick in, where I'd start having more good days (less ectopics) than bad.

Bigandy profile image
Bigandy

Yes to 12.5 mg Metoprolol Succinate twice per day, one dose with breakfast and the other about 2 hours before sleep with some light food. It worked for me.

Nigel2000 profile image
Nigel2000

I’m 7 months post ablation and still feel ectopics. Because of that and evidence of very short duration afib, I have to stay on dofetilide. But otherwise I’M so MUCH BETTER.

Mugsy15 profile image
Mugsy15

I most definitely did not call you a liar. If your cardiologist points out that SVEs can originate in upper structures of the heart other than the atria then that is obviously correct.

But that is not the same as saying atrial ectopics are not SVEs, which of course they are.

I'll finish by wishing you all the best for 2022, during which I sincerely hope your worries about arrythmias of any label become a thing of the past.

Singwell profile image
Singwell

Are they noticeable and uncomfortable? I have them now - did a post about them the other day. I don't notice them but since Kardiamobile has updated itself it now logs there. It's also worth noting if you get them with sinus rhythm. So in my case kardia tells me I have Sinus Rhythm with supra ventricular ectopy

kalgs profile image
kalgs in reply to Singwell

Yes I got a mixture.

Singwell profile image
Singwell in reply to kalgs

Maybe just note time if day, activity etc and if it's with sinus rhythm and you're not uncomfortable then report to your cardiologist but otherwise try not to worry. I'm actually quite cross with Kardiamobile of updating in this way. It's the behaviour is within normal range then I'd simply prefer to be told NSR. It's disturbing to see that yellow line isn't it? Like you it makes me feel something has 'gone wrong'. I'm thinking of switching off the Advanced Determination feature to see what difference that makes to the reading.

kalgs profile image
kalgs in reply to Singwell

I’m ok with Kardia defining the ECG. I was a first adopter with the watch which I still use as well as the 6l

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