Pacemakers: I have had AF since the... - Atrial Fibrillati...

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Pacemakers

Earledavis profile image
4 Replies

I have had AF since the removal of a myxoma 11 years ago. Consequently I have had three pacemakers fitted over the 11 years the last one being in 2018. In all cases i have had problems with the first two started to protrude so were removed to prevent it breaking through the skin. The third one was put into the muscle but within two days the wires started to protrude quite visible. I have been told that the problem occurs because I am very bony at the top of my chest. Has anyone had a similar experience or know of an alternative pacemaker other than implantation implantation in the same place.

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Earledavis profile image
Earledavis
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S11m profile image
S11m

I have lost 35kg, and now my pacemaker is plainly visible... and I can feel a wire. I think the wire I can feel might be the out-of-position lead that does not work.

Sunny-fl profile image
Sunny-fl

I’ve had my pacemaker three years now located on the right side and have always had trouble with the leads wanting to protrude and feeling like they’re wrapped in Brillo pads. The EP who put the pacemaker in wanted to do a pocket revision. I went for a second opinion and this EP didn’t recommend it as he said he wouldn’t be able to move far and he didn’t think it would help so I just have to be careful and limit what I do and use ice in the area. The second EP said he could put it under my right arm but that doesn’t sound comfortable. My primary care doctor said one lead felt like it had a loop in it. Good luck to you.

Earledavis profile image
Earledavis in reply toSunny-fl

Thanks to those who posted re: my protruding wires around my pacemaker. My GP has referred me back to the cardiologist so will let you know the outcome.

Sunny-fl profile image
Sunny-fl in reply toEarledavis

I would be interested in knowing what your cardiologist says about the protruding wires.

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