Useful links for Newbies and Oldies......

As you can see, this post was produced in 2019 so some of the AF Association webpages may have changed….happy hunting!

The following is a list of useful links enabling you to have quick and easy access to recognised and reliable webpages. Many enable simple onward access to a range of other topics relating to AF. If anyone would like to add more links, please contact me via Private Message facility because, as far as I know, I am the only person who can make amendments to this post.

Experience suggests that some links may not work for some members outside the UK, please make me aware if you have a problem.

NEWBIES

Click on the link below and it will take you to the AF Association webpage. From this page, it is easy to navigate around a wide source of detailed information relevant to anyone recently diagnosed with AF. It’s best to enter each section and trawl through everything you need to know about how AF is likely to affect you and what options are available to help you manage your symptoms . It is extremely important to read about Anticoagulation found in the Treatment Options section before using the AF Stroke Risk Calculator found near the bottom of the blue “RESOURCES” panel bottom left of the page

heartrhythmalliance.org/afa...

You will also find the following “jargon busters” helpful.

heartrhythmalliance.org/afa...

Anxiety and fear of the unknown is a major problem for most recently diagnosed patients. If you can find time to read and absorb the mass of information available, there is a good chance your anxiety will ease over time. By asking questions, you can also receive amazing support from members of the forum, most of whom have been where you are now.

ABLATIONS/CARDIOVERSION

Preparing for an Ablation: written by patients for patients

api.heartrhythmalliance.org...

Recovering from an Ablation: written by patients for patients

api.heartrhythmalliance.org...

Ablation explained & video - maybe not as scary as you thought

nhs.uk/video/pages/guide-to...

bhf.org.uk/informationsuppo...

Cardioversion explained & video - also not scary

bhf.org.uk/informationsuppo...

MISCELLANEOUS

NICE advice on the Management of Anticoagulants

To find out everything you will ever need to know about YOUR anticoagulant, just click on the scenario relating to whichever anticoagulant you are taking. Scroll all the way down for information on dental work and precautions for operations and other medical procedures.

cks.nice.org.uk/anticoagula...

Miscellaneous Factsheets covering a wide range of AF heartrhythmalliance.org/aa/...

Living with AF

heartrhythmalliance.org/afa...

Dr Sanjay Gupta, York Hospital new links frequently added so always worth checking YouTube

youtu.be/8DIRiOA_OsA(Not working as expected?)

bnf.nice.org.uk/drug/bisopr...

cks.nice.org.uk/atrial-fibr...

youtube.com/playlist?list=P...(Not working as expected?)

Hope forum members, old and new find it useful.........

[ling]

Please pin the post.

Thank you

How are you doing post RAI?

God bless.

[Hidden in reply to ling]

Thanks ling, all being well, it will be pinned later this morning. Regarding the RAI, so far, so good. Stopped glowing green in the dark about a week ago and due to see the Endo early March......🤞

[ling in reply to Hidden]

Glowing green seriously : )

Please update after endo visit.

I'm really interested to know the effect of the RAI on the AF.

Best wishes.

[Polarbear2012 in reply to Hidden]

8

[Hidden in reply to Polarbear2012]

? sorry, don’t understand your reply 🤔

[Jalia]

Thank you for taking the trouble to do all this Flapjack! Should prove extremely useful. You little gem 😁.......

[Hidden in reply to Jalia]

💎😉 thanks....

[Bagrat]

A labour of love and support for forum members. Thank you. Hope it's pinned.

[chrisfellrunner]

Greatly apprciated by existing members and future new members who don't yet know how useful they will be!

[Hidden]

Thank you FlapJack - I have pinned the post. Much appreciated

Best wishes

Rachel - AF Association Patient Services

[Hidden in reply to Hidden]

Thank’s Rachel

[Barb1]

Thank you. Interesting to know that I should have 3 monthly reviews for the Edoxaban. Never had one! Is there anywhere that says what you do about taking the drug for various procedures eg I am having a cortisone injection next week.

[Hidden in reply to Barb1]

Hello Barb, how are you, are you going to Epsom today to hear about CPR? NICE talks about a 3 month review for all DOAC’s but in my case, I have annual blood tests to check kidney function. They also mention general guidance for dental work, operations and procedures but I think it’s unrealistic for them to cover every eventuality. Best to check with the medics performing the injection I guess......take care, John

[Barb1 in reply to Hidden]

Thank you. Hopefully see you later.

[Singwell]

This is great for a newbie Flapjack! How about a link to the NICE info on arrythmia meds? I was thinking whole we're all in splendid isolation it might help folk with reassurance that - with medical advice obviously - they could safely take one-off extra doses to address AFib episodes while being unable to go to a Dr or hospital at this time. I had an episode yesterday and my GP advised me to double dose on Flecainide because he knew we'd still be well under the recommended limit. It might reassure people during this time. My own episodes are fairly aggressive so it certainly helped me to know that after riding an attack for 12 hours I could take the PIP. Cheers.

[aFibber55]

🙏👍👌😃

[bassets]

Thank you.

[JOY2THEWORLD49]

Hi FlapJackI can remember getting back from primary and Mum having a few FlapJack and one each which we could rollup.

They had sultanas or currants in the mixture.

I like mine fresh, soft and as they were.

You are an explorer of reading and I am sure these texts have helped you understand A.F.

Others may be overloaded and get confused.

I ignore meds I dont know about and anxiety causing the arrirhymics!

I'm sure that drs and others want to get off the trail of feeling sorry for yourself. But there are a high percentage of those in the world who get their rhythms out of normality. It happens I see.

But checking the thyroid is the first way to go. Like me it was the thyroid cancer undiagnosed which caused my stroke due to the tiny clot due to A.F.

That is why it is so important to be on PRADAXA which I chose because it is reversible in case of an accident or internal bleeding.

Make sure food and drink are taken around it like some meds. Or you cannot lie down immediately after taking PRADAXA.

Not like thyroxin where you cannot eat for 1/2 - 1 hr. But I take my Synthroid and disolve it under the tongue. I can eat 20mins later. More is absorbed and so I take 125mcg at 5-6am eacn morning and only 100mcg once a week on a wednesday.

This gives me 2.00-3.00 level TSH and 21nT4 just within normal range. I refused radio active iodine which they state everyone should take. Little risk I was happy as sugeon took my thyroid and 12 lymph nodes and 2 were affected with the cancer but hadn't spread out to central places. 2 years on I am waiting to have my 2nd anniversary of neck scan.

Cross fingers.

Apart from energy loss which is resolving little by little I should get there in the end.

Take care with all that learning.... JOY

[Loafinabout]

Thank you so much for all this information!👍