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Atrial Fibrillation Support

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A Brazilian Newbie.

Mimosa7 profile image
12 Replies

Hello everyone. I’m Brazilian, 44 years of age with history of Heart Valve disease, recently diagnosed with AF. It’s all a bit bit new to me. I ride a motorbike, go camping and enjoy a good party but recently I’m feeling quite low and tired. Hope the meds help.

I’m here because I’ve been feeling a bit on my own and lonely. All my friends are healthy and I don’t want to be the one always talking about their condition and how They feel.

Today is it a good day. I’ve been in AF since last night. Hopefully it will get better, otherwise it’s another trip to ED.

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Mimosa7 profile image
Mimosa7
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12 Replies
BobD profile image
BobDVolunteer

Welcome to your world Mimosa . Valve related AF is less common than lone AF and may be harder to treat unless the basic reason is sorted. Why not go to AF Association website and read all you can so that you can begin to understand this mongrel condition. Ask anything here and we will try to help.

Mimosa7 profile image
Mimosa7 in reply toBobD

Thanks Bob. I’ll certainly have a read and do some research. 😊

CDreamer profile image
CDreamer

Hi and welcome. I think many of us will relate to the psychological and emotional impact of a diagnosis of AF and you may find the posts on a recent thread on that of interest:- healthunlocked.com/afassoci...

Many of us find that we need time - a much longer time than one may think - to accept and adapt and certainly many of us benefit from Lifestyle Changes - which can sometimes be difficult as we cannot always continue to keep up with friends and family who don’t have to think about the consequences of what might happen if they overdo things or drink too much or not get enough sleep.

Best wishes CD

Mimosa7 profile image
Mimosa7 in reply toCDreamer

Thank you CD. That’s more or less where I am now.

Cavalierrubie profile image
Cavalierrubie

Hello. You look so trendy on your motorcycle! I am a newbie being diagnosed at the end of May. I was energetic and fit until then so it was all a big shock and very upsetting. I had never heard of this horror. Reading all the posts on here will help you tremendously and help you understand that its not life-threatening. There are so many of us with this condition so you are not alone. We are all here in Cyber Space with you. Slowly I am starting to accept this, and with acceptance I feel so grateful that they found it with me. Lots people have it, and don't know, and could have a stroke. I am so grateful I have a condition that can be treated, and that its not terminal. Keep your chin up as they say. Take each day as it comes, and as time goes on you will see things in a different light. As the hospital said to me "You just have to slow down a bit" Stop and smell the roses. I send all good wishes to you, and hope things go well for you on this journey.

Mimosa7 profile image
Mimosa7 in reply toCavalierrubie

Aww! Thanks you. That’s exactly what I needed to hear. 🤗

Morzine profile image
Morzine

Hi mimosa, awe we’ve e all been there with the initial early days......it knocks your confidence,it knocks how you see your future....... it kind of wipes out how you see yourself......but with the right meds.....and time life gets much more brighter, this forumhelped me so much, I can remember sitting in my terrasse so helpless and thinking is this it? Is this worn out feeling my life from now on? ......but folk on here gave me the glimmer of hope and sure as eggs are eggs my medication settleddown and my life became pretty normal.......I know right now it seems as if you think about it day and night and feel lost...trust me it will all get sorted out in your mind to feel less burdened by the weight of it.......try and relax, give yourself time for your body to adjust to medications.....brighter days will come,

Sue

Mimosa7 profile image
Mimosa7 in reply toMorzine

I’ve always been super proactive, full of energy, life of the party kind of girl.

You are absolutely correct. I have to adapt and allow my body to adjust.

Thanks. 😊

Morzine profile image
Morzine in reply toMimosa7

I loved going out, loved my wine.....it was a total shock.....I suddenly felt scared to go even to my local restaurant.......but I’m fine now,......give yourself time to adjust to the tablets...they take a while, sometimes they need changing ...

Dickydon profile image
Dickydon

Nice Ducati there dude. Are you living in Brazil or UK? Looks like a UK spec Ford in the background though with blue stripe on number plate! - don't worry about what your friends feel or think, you just have to be brave enough to engage them into your health world. The more you share things with the closest friends the more they'll appreciate you sharing that side of you. Nobody's perfect and as you say, your 44, so your man enough to not be embarrassed by bothersome health issues with others. Well at-least, you'll know who your friends are when they stop calling.

I love bikes too, and have had some superbikes over the years and recently had a Panigalle 1199 for a weekend. I love riding bikes as it's very much a lone wolf hobby and I'm usually at bike night at the Ace Cafe in London most Friday night's. Anyway good luck.

Mimosa7 profile image
Mimosa7 in reply toDickydon

Hello Dickyson. I’ve been in UK 23 years, I love it here, this is my home. Motorbikes have open a whole new world for me and I have a couple in garage. I know what you mean about sharing with friends can bring us closer.

At the moment the things they are saying feels like they think I can just a tablet and all will be well. I don’t think they understand that sometimes it doesn’t work. But we will see. Like you said, I’ll soon learn who are my true friends.

Panigalle 1199 is looooovely! 🤗

Dickydon profile image
Dickydon in reply toMimosa7

Your spot on about the tablet thing. The amount of short lived memory and understanding of other peoples' health that people have is unbelievable. One tablet and your better; sadly, that's the mindset of most people today. One of the reasons I don't have friends or socialise. My work as a tv cameraman brings me all the contact I want with people and these are work colleagues, and get on with all of them very well, so I don't socialise with them just work with them. I'm a freelancer so not involved in the politics or other bull...t - I enjoy my own company too.

Anyway, good luck lady.

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