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Atrial Fibrillation Support

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AF Family & Friends

Fibfab profile image
11 Replies

Hello, it’s me again with another question 💚

Are there many forum members who are friends or family of someone with AF?

I’ve been wondering how you feel about this and do you manage to support your “fibber” in any way? (You may have noticed that I’ve asked something similar previously)

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Fibfab profile image
Fibfab
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11 Replies
bantam12 profile image
bantam12

My husband has AFib along with several other life limiting heart issues, hospital appts are all we do, that's life 😕

TamlaMotown profile image
TamlaMotown

I just wish I did have a family member for support. I don't know any other person with AF & it's quite lonely 😔

in reply toTamlaMotown

Is there no support group in your area you could go to? x

TamlaMotown profile image
TamlaMotown in reply to

Hi Hylda, there doesn't seem to be. So pleased I found the forum. It's a big help. You are in general just left to get on with things I feel x

in reply toTamlaMotown

That's just how I feel take your tablets you will be fine that's all they say they don't know how we feel

TamlaMotown profile image
TamlaMotown in reply to

No they don't. They have no idea

Buffafly profile image
Buffafly

I know several other people with AF but none of them are interested in discussing it - I've tried, all do the stiff upper lip thing, so no chance of a support group there......

Roony39 profile image
Roony39

My partner isn’t on here, but has supported me by coming to all my Arrythmia nurse specialist/EP appointments as well as the cardio versions and ablations. Very handy as I have a terrible memory so I had a reference each time.

AIW58 profile image
AIW58

A friend of mine has AF far worse than mine. We talk about it a lot and I know she finds it a help. I have encouraged to join forum but don't think she has yet.

Fibfab profile image
Fibfab

AIW58, what do you mean by "AF far worse than mine", is she more symptomatic?

AIW58 profile image
AIW58

She has more frequent episodes (at least once a week) that last longer (1-2days) and less responsive to treatment (medication). My episodes,on the other hand, last 3-5 hours and up until 2018 happened twice a year. My rates were high(130-200) so I had to rest when they occurred. I've had no AF since last Sept when I started Flecainide, and I had an ablation a week ago.

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