Hi everyone, my ablation is on the 25th March. I know it’s the right decision and I’m trying to look at it really positively but today my mind feels like it’s playing tricks on me. I have Paroxysmal arrhythmias and the really bad episodes lasting 6 hours and over happen a few times a year. On a day to day basis I have lots of little runs of palpitations and dizzy spells etc. I have racing heart connected to eating that is ruining my life. The EP said he has no idea if the racing heart after food will stop after ablation, he thinks probably not. He felt that he could give really high odds of getting rid of SVT and he hopes that will also eliminate the other arrhythmias as he thinks the SVT is my trigger.
I know I’m rambling and repeating things I’ve already told you in my other posts but today I just feel worried that the ablation is a bit of an extreme treatment for it all especially if it has no impact on the eating induced racing heart.
I know that only I know the answer about my own treatment and no one can really help me with this. I just really wanted to write it down in an attempt to get it out of my head and make sense of it. And I suppose I wish I had a crystal ball and could check that I’m not about to make things a whole lot worse, wouldn’t that be helpful.
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Kellyjelly
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Normal at this stage to wobble and second guess yourself. I nearly pulled out of my first ablation 2 days before - then I had a really bad episode when I felt very ill which decided me - I really couldn’t continue as I was and I had done the meds which didn’t work so it was the next stage for me. It really, really isn’t nearly as bad as you imagine it is going to be, the most tiresome thing will be the recovery when you will want to do things because you feel so much better, but know you must reign back to allow healing.
GO to the day - you can always pull out right up to the minute you are in that cath lab.
Thank you so much, I just have this huge fear that I will make things worse. I hate the episodes so much the thought of being any worse than this freaks me out and mine aren’t anywhere near as bad as some people. I feel like I’m caught between a rock and a hard place. The recovery scares me because I know it’s possible to have quite a lot of activity in the heart as it recovers and I just don’t cope very well with my heart being all over the place. 😪
My mind is saying my episodes are not even that bad and I should just deal with it better. Just get on with it, be stronger and leave well alone.
I’m sorry to be so negative, I just got my letter through confirming my appointment and if all feels more real.
I think its normal to have all this fear. I was terrified before my ablation on 2/13/19, but more afraid of having more afib. Still living in fear of return of afib. I feel emotionally I am feeling a little better each day. All you can do is process your feelings and be surrounded by supportive people and use your higher power. Bless you in your future and my best you and good health.
Hi Kelly, Sorry to hear you're having this 'wobble'. It's quite normal when an ablation is pending and I think we all felt exactly the same before having one.
Before my last ablation I had just what you describe - the racing heart after eating. Mine usually happened lunch time if I'd gone out with friends for lunch and then dared to move afterwards. I think many members here have suffered the same thing. Mine disappeared after my last ablation and I'm so thankful now that I had it, nearly didn't as my daughter kept saying, "don't have it mum" and I was convinced she was having a bad premonition.
Honestly, the things we can build up in our minds as the procedure grows near! I just know that afterwards you're going to be saying there was actually nothing to it. I can't take your worry away, it's natural to feel as you do. However, I can say there's no way I'd have had three ablations if the actual procedure had been awful or frightening in any way.
Thank you so much jean, I’ve just woken up today feeling very tearful and a bit sorry for myself I think.
I hope so much that I will have the same result as you with the eating thing. I think I have gotten so used to feeling rubbish and factoring in weird heart issues that I don’t even feel there is an alternative to how I’ve been living and feeling. I want to believe so much that this will really help me but I just feel doubtful today. Such a shame because I have been feeling really positive. I will do some meditation, have a good cry and be grateful I have a place to get support. My family are wonderful but I want to be strong for them and they can’t offer me any advice about the actual procedure.
A little advice take it easy afterward. Encourage friends and family to take care of you and treat you like a princess.
Hugs and good thoughts right up to and including the 25th. I hope yours goes as smoothly and turns out as well as mine.In permanent afib, will be 75 on Mar 23 and going into my 3rd year post ablation and pacemaker. No problems, no more cardiac meds,feel fine. Very happy I did it. xx irina
My favourite person in all the world shares the same birthday as you, she will be 81 this year and she is my Aunty Anne. I adore her and we spend as much time as we can together even though she lives in cornwall and I’m in Lincoln. She has 3 sons and no daughters and comes from a family of men(my dad was her brother) we have been inseparable since I was a little girl. You come across as kind and caring just like she is. Wishing you the very happiest birthday for the 23rd ❤️❤️x
Sorry you are feeling so wobbly. As CD says, it is really helpful when you have an episode just before that compels you to go ahead.
An ablation will enable your EP to get to grips with the inner workings of your heart. It will reveal who knows what but his understanding will be far greater when he has a clearer picture and he may be able to make significant improvements. It is a bold step and occasionally someone will say they are no better but many of us have really benefitted from the procedure. Backing out is always an option but I imagine it may not feel very satisfactory to have decided against taking a step that could move you forwards.
Lots of us have had the trepidation that you're currently feeling.
I put up with horrible side effects of medication for years before I had to choose between an ablation or pacemaker. You are lucky you don't have to put up with what seems to be a very poor quality of life ongoing. Are you really thinking of living like this (it gets worse......) for the rest of your life? 'Feel the fear and do it anyway' (Helpful book by the way)!
Thank you so much for your helpful reply. You are so right, I definitely don’t want to continue to feel like this and really need to think that at least I have options in front of me.
For me, aside from feeling so much better and asyptomatic everyday I am thankful to no longer have to take cardiac (rhythm/rate meds.) None ever worked for too long necessitating frequent trial and error changes. And the side effects were very stressful.
BTW the immediate post op period was the easiest I ever had. The hardest part was lying still 4 or 6 hours after. And that went by pretty fast as I was groggy and slept thru most of it. The main instruction was take it easy. Best post op instructions I ever had.
I understand your fears completely and like I had a few days ago when I was sleeping and thought I was having an episode or that my heart stood still, I believe now that it was the stress that is momentarily killing me because I’m scared of everything. Scared because I don’t know how the procedure will go, what I will feel during, Will they give me some sedation, what will the outcome bring, will I be cured, will I die on the table, will I get a stroke, if they get my some sedation will I get an allergic reaction, etc. I could go on, but you get the picture. I sleep very bad the last few days and sometimes freak out because my ablation date is getting very near now. Yesterday I cried and also this morning, telling my future husband my life is all over. So imagine I really am a true wimp 🥴.
So I think that you have to stay with your decision you made, perhaps you can re-read the first post about your ablation you posted here on this forum and see again why you were so happy that finally you had the change to get it over with and took the decision.
What the eating is concerning, perhaps you can think already about a diet you can do afterwards, or start already if you want to. I read that a whole food, plant-based, Mediterranean diet could do the trick. I bought myself the e-book of “the doctor’s kitchen”, it looks very interesting, just exploring and focusing on my hopefully second chance afterwards.
And... like someone said here, we can always say no at the last moment, but I think we would be very sorry and feel bad afterwards because we were afraid of the unknow.
SO...
Boldly go where we never have been before (just like in Star Trek 👊💪). That is what we have to do.
And you know already by now that I’m a very scary and anxious person but you, you’re a very optimistic and courageous woman, so you will get fine 💓🥰!
Aw Avma, thank you so much. I have just read my post as you suggested and it feels like it was written by a different person but I know it wasn’t it was just me on a better day.
You’re suggestion about focusing on food and healthy lifestyle is a really good idea, I need to start pushing my brain back to all the positive things I can do instead of letting the fear take over.
You sound like such a lovely person and quite similar in character to me, I don’t think you are a wimp at all. Thank you for being so kind to me today, I really appreciate it x
I've never posted here yet since I started having AF problems about 2 years ago. But I have to say that verse sums up my journey to some sort of control of my life. Brilliant! maureen46
After you have had it done it will be like a breath of fresh air after my ablation it has cure the same eating problems you mentioned well worth having it done.
Thank you so much Donkster for the reassurance it really does help. I pray I will be the same as you, I hate the racing heart after eating sooooo much. 😊
I had my first ablation two weeks ago. Like you I really did think about pulling out. In fact right up until the anaesthetist started the countdown I was thinking of calling it off. I was sure I'd never wake up. I'd read loads of posts on all sorts of forums (this is the very best for sensible advice and information), and there were so many tales of doom and gloom!!!! I was in hospital for 7.15am and discharged at 7.30pm. I had a small bruise on my groin. I was also very concerned about the blanking period!!! I'm having some aches and flutter but nothing too bad. I know it's early days. Main concern for me is in case it's not been a success!!!!! EP was very positive but it's early days yet so I'm keeping my fingers crossed. I was having lots of symptoms that were getting worse and my QoL was suffering. Only you can decide but I think probably most of us who've opted for the ablation were extremely apprehensive about it. Doesn't really help you much I know. Very best of luck.
I’m in at 7.15am and I’m hoping I will get home that night 🤞 I live an hour from the hospital so it’s going to be a long day. I bet you were so glad to get home when it was all over and sleep in your own bed. I’m really looking forward to that.
It’s so reassuring to hear that you are two weeks in and are feeling better than you expected. It’s positive that your EP feels happy with how it all went. I’m hoping so much that he nailed it and you will continue to feel better everyday.
Take good care and thank you again 😊
I don’t think there is anything foolish about “wobbling” over the issue of an ablation. If you only have a few episodes of PAF per year and the palpitations and other things are not, in the opinion of your EP, likely to be resolved by ablation, it would be reasonable to go back to him for a discussion about whether an ablation is really needed at this stage. You might also want to seek a second opinion. So far as I know, an ablation is recommended when medicines fail- their does not appear to have happened in your case. At any rate, there is never anything wrong with carefully reviewing a decision and evaluating whether it needs to be revised.
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I don't disagree with you here, but I think one needs to separate wobbles that are in the 'What if it goes wrong?' direction (and everyone has to have those) from the 'Is this my best way forward?' question.
I personally favour not going down the medication route and regret doing so.
• in reply to
Yes, there are two categories of question: what are the risks form an ablation and is ablation the most appropriate treatment for a given person. The risks are well-detailed on, for example, the Royal Brompton website (although there may be some variation dependent on individual circumstance). So it is simply a matter of looking at the probabilities and decisions whether the risk is acceptable.
Whether an ablation is the most appropriate treatment is another matter. Here one is dependent on the expertise of the EP. My *impression* is that there may be cases at the borderline when it might not be very clear whether an ablation is in fact the best treatment . For example, NICE recommend one when medication is unsuccessful, but what does that mean exactly- at what point does the EP determine that it is unsuccessful. In my own case, I have had periods with several episodes of PAF over, say, a month, then some months without it. Does that mean that medication is unsuccessful? I don’t know.
Btw I wasnt clear on whether you were saying that you had an ablation and regretted it.
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No - I have no regrets about the ablations I have had - three of them. I am so much better off as a result and am not far off being medication free. I take an anticoagulant and Atenolol and Losartan for blood pressure control. I have Flecainide as a PIP but rarely use it.
What I regret is taking so much flecainide after the first ablation in 2011 which was for SVT. During the ablation I was found to have undiagnosed AF. My second ablation was in 2014 and I was taking 300mgs of Flecainide per day for some months beforehand.
I am currently sitting on the fence as regards both ablation and medication in the form of daily flecainide. Both have been suggested and for the last two years my EP has been letting me see how I get on. I feel I am doing OK - I am more than happy in fact. I'd veer towards an ablation rather than the medication should things change.
What I regret is not having a second ablation fairly soon after the first. The first one was brief. I remember absolutely nothing of it as the sedation was very effective. I had a pathway ablated but kept going into AF and after 6 cardioversions, it would seem they abandoned ship, said 'This woman has AF' and sent me home with some flecainide. The discharge letter says 'High chance of AF in future'.
The flecainide did me well. I had no heart wobbles of any kind for the first year, except when, after 3 months, I was dropped from 100mgs x2 per day to 50mgs x 2. Back up to 100, no problem. In the second year AF crept in once in a while. But I get on OK with AF and do not find it very debilitating. It always self terminates eventually. I worry a bit that I am too casual about it.
Eventually I made an appointment with my GP, just to ask how much extra flecainide I could take when in AF. I hadn't found the forum in those days. I saw a lily livered locum who referred me, not back to Wythenshawe, but to a cardiologist. All hell was let loose: I must take more flecainide. I must take Warfarin, I was 66 and on the verge of a stroke! I was on the verge, as it turned out, of going downhill in a very big way, loss of weight I could ill afford to lose, misery and frustration and feeling out of step with all the rest of the world except for my very supportive husband. However I was referred to Blackpool and my current EP, who would wave a magic wand and transform my life.
Something has made my feet feel very weird and numb. It may be flecainide but I don't know of anyone else similarly afflicted who can point the finger at flecainide. The onset was two years after I started taking it and my toes felt, when I woke up, as if I had been wearing shoes two sizes too small all night. Soon after my dose increased to 300mgs per day, the sensation swiftly spread to heels and ankles. My EP does not think there is a connection. I have an open mind. Most people, like my chiropodist, think it may be some drug side effect. I stopped taking daily flecainide in July 2015 and my feet are just the same now. It is as if they are wrapped in cling film that is a bit tight. They don't feel as bad when I am wearing socks and as beta blockers give me cold feet, that's most of the time.
If you take flecainide, you don't know how much you depend on it. If you don't take it, you know your heart is able to regain its normal rhythm if you return to sinus.
I'd improved a bit by the time I joined this forum but I was still very peeved about how much my life was ruled by medication. No so now!
We go though ups and downs and the bad times do make the good ones seem all the better. Giving up daily Flecainide and switching to Rivaroxaban has meant I don't watch what I eat nor when I eat it. The thing is, if you have a painful illness, you can see the sense in watching your diet. If you have a condition that's not there most of the time, and not much bother when it is, it feels as if it dominates for no good reason.
Thank you so much for sharing that Rellim2, what a story.
I completely understand when you say you felt out of step with the world apart from your husband. That’s how I feel at the moment, since my bad episode in December I’ve not really bounced back and have just felt my world get smaller and smaller.
I hope my story will end like yours and my EP will be able to work a bit of magic 🙏
I’m sorry to hear of your problems with your feet, that sounds unpleasant. I haven’t had any problems with my feet while taking flecainide but you know your own body and my experience is if you think the tablets are cause of it then they probably are. The fact the problem worsened when you increased the dose would suggest it is related.
Interesting point about the dependency your body has on flecainide, I have wondered sometimes if my heart can still convert on its own especially with a bad episode.
There is no telling what will be an ablation's outcome - huge success, partial success, or less than hoped for. I hope it will be a step you will be really glad you took. I have no regrets other than letting things slide for a couple of years. Do remember that many worry beforehand about things that turn out to be more trivial than anticipated.
Thank you so much for your helpful and reassuring reply .
I have been on flecainide for 12 years and it was great initially but the last few years it hadn’t been as good. I also developed PAFlutter in December and the EP thinks the flecainide could be contributing to that development.
I think the wobble came from the fear of the procedure itself and not wanting to face that. You are so right though, it is really important to weigh it all up and question the decision. And not silly at all to have moments of fear and doubt. 😊
Hi Kellyjelly, just get it done! For me it was 5 years of arsing around with drugs, diets, hospitalizations, constant fear and introspection whilst the PAF got worse. I then underwent a PVI using the cryoballoon procedure and bingo - no drugs, no warfarin and no AF in 4 years! Yes, I still get ectopics now and then and use sotalol as a PIP but that is a crutch really. Anxiety was difficult to shift but my QoL has been immeasurably improved. If the AF came back, I'd be in that Cath lab quicker than you can say, Jack Robinson!
Thank you so much mikeymike7. What a great to the point no nonsense reply, love it. You pretty much summed up how I’m feeling about the Afib. You are right, no more arsing about I’m feeling focused and determined today.
I’m so glad that you have had such a good result, thanks for sharing that it really helps me to feel hopeful. 😊
Go for it I'd say. I had Paroxysmal with Svt years, but the same only had 2/3 bouts per year, but last year after a very bad virus being ill for a month full of hospital admissions with severe afib and svts it became persistent. Had mine booked for Feb but consultant cancelled on day and now I'm waiting for another date. Its a chance to stop or at least slow it down and long term AF will cause damage to the heart. I know it's scary I'm no tough guy, it's scares the life out me, but loads have had it done and now benefitting form the procedure. I had the same fears and doubts even up until my op was cancelled, had mostly persistent afib since and gladly go now, go for it 👍
Thank you so much Ianp66, your reply has really made me think. It’s such a game if chance isn’t it with this condition. If I woke up tomorrow and my PAF had become persistent I would want to do whatever it took to fix it without hesitation so I really shouldn’t wait and should see this as an opportunity to head it off at the pass if you like.
I’m so sorry this has happened to you and you are having to wait and I really hope the appointment comes through soon.
Thank you again for giving me another perspective on it all 😊
It's only that i know how you feel, so many what ifs, and worrys, I just see it now as a chance where really all the end result of leaving it will be is more problems later,and as the whole team at Freeman's have told me, now it's just a common daily op, but I know I'm going to have the same wobbles when I get my new date, we wouldn't be human if doubts and thoughts don't creep in. Just look forward it's a chance to get your life back and halt the horrible feelings when your hearts out of control, that's only thing I think of. Loads of support on here and we're here when you need a download, you will be fine and in my opinion your just doing what anyone normal would under the circumstances, so don't feel silly it's total what we all think in same position.
Thank you so much. I’m again overwhelmed by the kindness and support offered by strangers all in the same boat, it’s heartwarming for sure. I hope you appointment comes soon, I really do. 😊
You know mine's a few days after yours so I understand. I'm feeling so well on the Flecainide, no AF since Sept. So like you I worry I'm going to mess things up.
But so many people here are reassuring about the procedure I am reassured. As someone else advised re reading your first posts and how bouyed up you were after seeing the EP I really think go for it.
Keep with the meditation and maybe keep a food diary to see if you can identify trigger foods if the ablation doesn't sort that. I don't think there is much (any?) research on food triggers so it's likely the doc won't know if the procedure fixes that as it's not something they have papers on.
Thank you so much Amanda. That’s so helpful, I am feeling better today. Posting here and getting so many supportive replies has really helped.
The reality is that if I just leave it and don’t go I will feel so hopeless the next time it happens and I know it will happen again.
The ablation is an opportunity to confront it and really get to the bottom of it once and for all. 😊
Hi good luck not as bad as some people on here only had it from 2018 Sept but you are lovely people and make me greatful and life goes on we are in control if it waiting for a follow up with hospital but all is good take care
Hi Kelly I felt exactly the same as you, my AF had been quiet since July 18 I thought it had got better the EP said no it'll be back with a vengeance. I was worried it would make things worse for some reason. I had my Ablation 4 weeks ago and I can honestly say I feel much better than I did before. The feeling ill after food has definitely lessened and I feel my heart is quieter and more stable. Try to relax and trust that this will help you. Xx
Thank you so much! What a great reply, so positive and helpful. Especially the info about food.
A few years ago after many years on flecainide I convinced myself I was cured and promptly stopped taking the tablets. I lasted a few months with my heart getting more irritated until I had a really bad 12 hour episode, ended up in an ambulance and got really told off by the doctors for being so silly. It’s so easy to think when all is quiet it’s best to let sleeping dogs lie but look at your experience, your bravery paid off. I’m so pleased and I hope so much this will be how it works out for me.
Hi Kellyjelly, I was exactly the same, frightened to death, this was January 3rd. As I was sitting in the waiting room my husband had an angina attack which made me focus on him, he took his spray and then..........they called my name. I thought omg this is it, no getting out of it now. Then it was done, No more svts , had my check up last week and gave the surgeon a hug and thanked him for giving me my life back.
Every time I went anywhere I had this voice in my head all the time saying to me “ don’t have a do, behave yourself heart ! .... please let me have a nice day out” sounds stupid I know but that is where I was at.
Now I am off meds, able to concentrate on my poorly husband and only wish I had had it done years ago.
An awful thing for your husband to have an angina attack but I suppose it gave you a complete distraction in those minutes.
Your reply made me feel so hopeful and emotional. I have a voice in my head too and recently it has stopped me from doing things because I’m so afraid of my very irritated heart descending into chaos when I’m out or by myself.
Take good care of yourself and thank you again. You’ve really helped me feel better x
Thanks, glad it helped a little. With regards to lying flat, yes this is the worst bit. I had a little groin bleed, which did not hurt or cause concern so don’t let this frighten you, it just meant that I had to lay flat for longer, over 9 hours in total. I found that rolling a towel up( got the nurse to do this for me) and placed it in the arch of my back helped a bit, but oooooh the relief when I could lay on my side was wonderful 🤗🤗🤗 you will be fine. X
Hi Kelly, i'm apprehensive as well but I think it will be worth it. From what I've read on this forum, the overwhelming consensus is that they would all do it again, if necessary, in a heartbeat (sorry about the pun).
I'm having mine done on the 21st March, a few days before you. I'll post afterwards about my experience, so it will give you an idea of what to expect.
Thank you so much Jupiter33. It’s such a comfort to hear everyone’s experiences isn’t it. I can’t wait until we are both in the post ablation club and reassuring other people.
Take some light reading magazines in with you, you will have to lie still for a good while as the insertion point heals. Ask what the food is like. If they pull a funny face take your own sandwiches. No dancing on the way out.
I’m rubbish at lying still, do you have to lie completely flat or can you be raised up a bit? I might take a celebratory picnic with me. I bought dancing on the way out was mandatory thanks for the top tip 😂
After the ablation they will make you comfortable but then you will then have to keep still until they are happy that your leg has stopped bleeding. If you have any worries about it pop into the ward and have a quick chat. I think picnics are much tastier than mars bars. You will probably be advised nil by mouth from a set time before the procedure so you don't have to nip off to the loo.
I completely understand what you’re going through. Like others here, I’ve been in your spot and know the doubt, fear and second guessing that happens when you’re on this side of your procedure.
FEAR IS A LIAR.
You WILL be ok. You WILL feel so much better afterwards. Remember that your doctor is just being cautious about giving you a 100% guarantee because there is a small (less that 1%) chance of complications and they can never truly know what’s going on until they get in there and see it first hand.
FEAR IS A LIAR.
Our rational minds play all sorts of “what if” games leading up to surgery and that is normal. It is your heart after all. But also remind yourself that the arrhythmias can damage your heart over time, cause a stroke, and generally make your life miserable (which they’re already doing). You are taking the brave and proactive step to wrestle your life back from this condition. Remember that svt is the most common form of arrhythmia and is 95-98% curable with ablation (yay!)
FEAR IS A LIAR.
You’ve got this. You’re in the final countdown now, and your brain is just going through the natural stages of acceptance. When the day comes, you will be so ready. Ride the waves of doubt as they come and stay focused on the light at the end of this journey. Calmer seas await you.
I’m crying again. Thank you sooo much Goalnsr. That was a truly inspiring reply and I’m so grateful you took the time from your day to write that. I feel like I’ve had a session with a motivational speaker/councillor after reading that. You are right and I will do as you suggest. I will not forget your words as the day draws closer.
Hi, it took me 8 years and sought every alternative and had consultations with many EPs ...I to thought it was extreme and actually barbaric until in the end I was so fed up with pills, and AF that I went ahead. my EP said he was surprised I had turned up but I knew by this time that I had found the right person to do this for me. It was the best decision as I wa totally PAF free immediately. I think you know when time is right and in the end I didn’t even let it phase me I just thought what will be will be. I’m so glad I’m free of medications. Good luck my friend x
Please please don't worry I was like you and I had my ablation 2 weeks ago and believe me it was nothing to worry about at all and I'm a right wimp, please read my post about it.
I went in at 12mid day and was home by 10pm can't remember anything much about it,
Thank you so much choccydeb, that is so kind. I’m so grateful to hear such positive stories, it really helps not just me but all the other people that are in the same boat. Wishing you all the best in your recovery 😊
I'm so so glad you posted this. I have my ablation booked for 22nd March and the fear has been building up!
Just like you I have the awful raised heart rate after my evening meal. Flutter now since 2011 and getting worse. Exhausted all drugs now. All the reassuring comments have helped me so much. I have been having the wobbles big time the last few days and been wondering should I really be having the ablation but I know I must. Your post and all the lovely reassuring advice from everyone was just what I needed. So... Thank you! Wishing you a successful ablation. Sending hugs xxx
Aw, loobylou777, that was such a nice message, thank you.
I completely understand how you feel, we will get through it, hearing all the positive stories from people that were once in exactly the same position we are in now really does help doesn’t it. I’ve gone from doubting my decision to realising that it’s just fear getting in the way. And as we know FEAR IS A LIAR 😊
I hope so much that our ablations help with the racing heart after eating but will just be grateful if the threat of SVT etc can be reduced. I’m trying to keep my expectations low and my hopes high.
I wish you all the very best and can’t wait to hear from you when it’s all over. Sending hugs right back to you xxx
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Recently diagnosed with PSVT 
Ablation next Wednesday
