My 16 year old daughter has low blood pressure since her SVT ablation . Can anyone help explain why this is happening ?

[Klwells8]

Hello ,

I’m desperately seeking some advice here. My 16 year old daughter had an ablation caused from SVT just 3 weeks ago. Since then she is suffering from low blood pressure normally 80’s over 50’s and 2 days ago she fainted while standing getting her prom dress altered. I took her to the ER after and again last night . They did blood work , an EKG and bedside ultrasound and told us everything was good and to follow up with cardiologist which we have that appointment in a week but what is causing this low blood pressure . She can’t even walk without getting dizzy . I’m really concerned here . Should I be worried that something went wrong with the ablation or does this happen closely after an ablation . I am desperate for some answers I just can’t inagine her going through this for another week , and I it terrifies me wondering what might be going wrong with her. She feels worse now than before the surgery . And my daughter can’t even be a normal teenager . I’m heartbroken for her and terrified please someone help me😔

[Kellyjelly]

I’m so sorry your daughter is going through this, she is so young and it must be very scary for her and for you too. I can’t offer any advice as I’ve not had my ablation yet but hopefully someone will come along soon with some advice. Take good care 😊

[Klwells8 in reply to Kellyjelly]

Thank you so much and I wish you the best of luck as well😊

[Jetjockey]

Is she in sinus rythm with this low bloodpressure ?

I had long bouts of a-typical paroxysmal flutter in the left atrium after my first ablation.

During those episodes i felt very faint.

This flutter is hard to detect. Only a shallow pulse at around 95 was what i felt.

This only disappeared after a second pvi ablation a year later

[Klwells8 in reply to Jetjockey]

Not that we are aware of , but I also don’t really know how to check for that 😔

[Buffafly in reply to Klwells8]

The ER tests would have picked it up if she was feeling faint at the time.

[BobD Volunteer]

I know that this is worrying for you but you must know that it is still very earky days during her recovery. Read our fact sheet please. She still has months of mending to do yet.

[Klwells8 in reply to BobD]

What is a facts sheet?

[BobD Volunteer in reply to Klwells8]

look at pinned posts to your right, click on the one "Recovering from Ablation" and follow the thread dowm to a link.

[CDreamer in reply to BobD]

Trouble is you only see that on the Browser version - doesn’t show in the app Bob.

[BobD Volunteer in reply to CDreamer]

whats an app? Phones are for phone calls. Computers are for internet!

[CDreamer in reply to BobD]

You fossil you.....🤣

[BobD Volunteer in reply to CDreamer]

takes one to know one. lol 😂

[Shcldavies]

This is a very worrying time for your daughter and yourself. I access the fact sheet by typing "fact sheet" into the search box, then if you read the posts you will find 1 that provides the link (there is an easier way but I don't know it). I had my ablation over 2 weeks ago and my heart rate and Bp went low, the Medes (Bisoprolol and digoxin) I was told to take were stopped and within a few days my heart rate and Bp increased. If your daughter is on any meds best see your Doc to see if she needs to reduce or stop them. I am finding that the recovery is not as good as I had hoped for but thankfully it's going in the right direction and in line with the fact sheet. I am sure your daughters recovery is similar but getting assurance from the Doc and possibly reducing Meds will put both your minds at rest

[Klwells8 in reply to Shcldavies]

She isn’t on any medications as she stopped taking it 2 weeks prior to the ablation. She has an appointment in a week but that just seems like forever when she has the symptoms of fainting and low blood pressure , thank you 😊

[Shcldavies in reply to Klwells8]

I hope you find relief for your daughter, she needs to be kept hydrated but too much water can dilute the electrolytes and minerals needed to keep the electrical signals in the heart working properly, unfortunately this balance is not easy to find as blood tests do not always tell you what levels are in the cells that need them. Having suffered with low BP and heart rate just last week I can relate to your problem, I would speak to the EP who did the procedure for piece of mind, the EP will be best person to know your daughters condition and the best treatment, if any, for it.

[Klwells8 in reply to Shcldavies]

Thank you and yes she has an appointment next week.

[meadfoot]

So sorry to hear your daughter is having such a bad time and it's is really scary for you both. Her heart has had a battering and it will take time to recover which I am sure you know, however that doesn't help when going through it. Personally I would contact the medic who undertook the ablation and let them know what is happening. Contact them through their secretary and ask for their opinion.

Please don't put up with this as it must be extremely frightening for your daughter and you. She is very young and this must be terrifying her, you too. Please let us know how things move forward. Keep as calm as you can and be proactive with contacting her medic for advice and support. If the hospital has an arrhythmia nurse they can be really supportive and is a route to getting to the consultant who ablated your daughter. Best wishes.

[Klwells8 in reply to meadfoot]

Yes this has been a very stressful week , especially when going to the ER and leaving with no answers. She has her follow up next week but that seems so far away. And I’m worried once we get there he is going to tell us some scary news of what is going on. It just worries me thinking she may have a blood clot on her lung or something else more serious . I guess I’m just thinking the worst 😔

[Hidden]

Your daughter has been checked a couple of times in the ER and things were OK apparently. It may be that her blood pressure is normally at this sort of level. My wife is 62 years old and has a BP of 90/60.

Is it possible that your daughter is dehydrated which would make things worse by dropping her BP and making her feel lightheaded? She really does need to drink a lot of water. Some medications cause low BP particularly on standing. Is she staying home from school and getting plenty of rest?

[Klwells8 in reply to Hidden]

She is staying home from school and resting , and the ER and nurse at the doctors office suggested she drink more fluids all though she drinks lots of water any way. It’s just concerning as to why all the sudden after the ablation is she having low blood pressure and why is she dehydrated just now since the ablation as well. She isn’t on any medications at all. Her appetite has definitely increased in the past couple days. It’s just scary to think something else more serious could be causing this😔

[CDreamer]

Could anyone of many things, as others have said, early days. If symptoms don’t improve in a few weeks - she is well hydrated, not overdoing things etc then if she were my daughter I would be seeking advice from a specialised cardiologist who works with ANS and the first test I would ask for is a Tilt Table test. Low BP in young girls may be associated with a condition called EDS.

I would suggest reading the attached link first though

potsuk.org/UserFiles/File/L...

[Klwells8 in reply to CDreamer]

Thank you and she has an appointment next week , thank god 👍🏼

[Blavet]

Hopefully her consultant with have the answer. But the blation was it to the slow or fast pathway of the AV node. You say SVT she’s is young so I’m assuming she had an AV nodal re entrant tachycardia and if so is she still on a beta blocker

[Klwells8 in reply to Blavet]

It was a fast pathway,and no she stopped taking the beta blocker 2 weeks prior to the procedure , so she hasn’t been taking anything for a month , thank you

[Buffafly]

As you are in the US some of our advice won't be relevant but I would just say don't be impatient, some people take longer than others to recover and ablation is not a miracle cure. Your daughter has plenty of time still to be a normal teenager. In the UK you don't get a follow up until much later on so your daughter is very fortunate she is having one earlier. Be reassured the checks haven't shown up any problems.

Try not to let her see you are worried, let her read the fact sheet and encourage her to look forward to the time when she feels the benefit of her procedure. Anxiety is catching especially at her age so if you can be calm it will help her.

Best wishes, please let us know how she gets on, hope she's feeling better in time for the prom!

[Buffafly in reply to Buffafly]

healthunlocked.com/api/redi...

[Klwells8 in reply to Buffafly]

Thank you 😊

[MydogBrandy]

Hi sorry to hear that, has she come off her meds, I was told to come off all mine after my ablation, best checking with your doctor though, hope all goes well. X

[Klwells8 in reply to MydogBrandy]

Yes she stopped taking the meds before the ablation and thank you .

[Tapanac]

As everyone here has said it is very early days.

I had an ablation a year ago and although I'm not as bad as your daughter in fainting, etc. I do get lightheaded and my balance isn't great (although that might be age). My BP is weird in that the Systolic (Upper number) is quite high being about 145, the diastolic (lower number) is only about 46. I was stopped on the bisoprolol, but unfortunately over Christmas I had to be hospitalised due to fast Afib and bisoprolol was started again. Since then my diastolic has dropped again and also my heart rate has dropped to 32 during the night ranging up to about 45 during the day. I keep saying it doesn't feel right, but my EP doesn't seem to be bothered.

However, telling you all this is that, yes, the ablation can be a roaring success or maybe wishing that one hadn't had it, but the fact that your daughter is not on any medication, despite it being very early days, I would try to see her cardiologist or another member of the EPs team if he wasn't that helpful.

It is bad enough with we older people having problems, but a young girl of only 16 must be feeling very anxious, which again doesn't help recovery. I do hope she is feeling better soon.

[Klwells8 in reply to Tapanac]

Yes it is very frustrating, as I am sure you are as well, I wish you luck in he future . Thank you

[myrnalynn52]

I have not had an ablation yet but wish your daughter great success and hope it is just a blip in the beginning

[Klwells8 in reply to myrnalynn52]

Thank you and me too, good luck with yours😊