It took me two years of asking questions and reading posts but I finally did it! It was a very hard decision for me to have an ablation but after two weeks of recovery I’m so glad I did it! Thank you for all your support ! What a great group of people! Gracey
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Gracey23
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Thank you! Recovery so far has been much easier than I thought. Bob’s words have stayed in my head, Rest, Rest and more rest! Good luck to you as well! Gracey
Gracey23 thank you for sharing. I hope your continue to make a good recovery. Like you I was havering as I really don't get much AF and since being on Flecainide, 2 months ago, haven't had an episode. I have decided to go for it based on all the helpful info and experiences from others, like you, on this forum. This really is a brilliant site.
I live in Plymouth and talking to my arrhythmia nurse the other day she is happy to work around my work schedule so planning ablation for April next year. They'll do it earlier if things change.
I feel so much more relaxed and settled being AF free on the flecainide. Also helps finally deciding to go ahead with the ablation and being given some degree of choice re timing so I can prepare. I hadn't fully appreciated how much the nagging worry that I might get an episode was affecting me mentally.
I didnt realise we can discuss sheduling,im waiting for an urgent clinic or phone consultation ref abalation at the moment,so shall mention this.Thank younxx
always worth contacting the clinic to check waiting times and if they have a system for recording that patients can attend short notice. If GP has requested an urgent review then worth asking them to chase up your appt.
I've no guarantee of getting the month that suits me best for ablation but they will try.
Hi Gracie - I came across an old post office yours from 3 years ago about Flecainide side effects where you mentioned that you have shooting electrical pains in your body. I wondered if you have ever been treated with a fluoroquinolone antibiotic such as Ciprofloxacin or Levofloxacin as this can happen as a result of an adverse reactions to these drugs. They can also provoke arrythmias. They are often prescribed for UTI, sinusitis and bronchitis though recently the FDA and the EMA have said that they should not be routinely prescribed for these as the risks outweigh the benefits. A major problem is that like chemo drugs they can have delayed effects that manifest weeks, months or even years after taking them so the patient never makes the connection and even takes the drug again- sometimes with devastating consequences.
Thank you for taking the time to respond to my post from years ago. Yes, I’ve taken atleast one of those antibiotics for sinus infections. Thank you for info but not sure if any Dr will be able to undo this damage.
Unfortunately once you are "floxed"it is difficult to fully recover. Some floxies never do and conventional medicine has no answers and indeed seems more interested in denying the problem than finding solutions. But there are alternative treatments that can help people cope with their pain. I would recommend a website called Floxie hope where lots of people who have been poisoned by these antibiotics help and support each other. There are also Facebook groups. I too suffer from some neuropathy ( I think that is what the electrical pains are) though my main problem is widespread tendonitis. I also had my first attack of afib after taking Cipro.
Some of the forum posters at Floxiehope have been helped by naturopath doctors as allopathic docs have no answers and often make things worse by prescribing steroids or NSAIDS for the pain . These can cause an even worse reaction and neither should ever be taken alongside a fluoroquinolone antibiotic. Many floxies cannot take them even years later.
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