Failed flecanide

[Kevinder23]

So upset my episodes were getting more regulaur every 7/10 days so ep prescirbed flec 50mg x2 daily then that didnt hold them off so ep upped dose to 100mg x 2 daily now i week later im in a/f again! It took all of my courage to take the flec daily and all my hope of some a/f free respite have no idea where to go from here so depressing.i lnow i can take up to 300mg per day so godwillong tbat will stoptodays episode thanks for listeningx

[Kevinder23]

The episode came on dur ing my evening meal at 7.30 how long do i wait before i take some more flec? Ive just had 100mg so far this mornings dose x

[Hidden in reply to Kevinder23]

The instructions are that you must not take more than 300 mgs in any one 24 hour period. You will have to be very careful not to exceed that dose!!

[Hidden]

Hi Kevin, I took a look at your previous posts and it seems clear that your AF has progressed quite a bit since your first post. Previously, you have also considered the ablation option and maybe that route should now be considered because it is generally understood that the earlier an ablation is done, the more successful it is likely to be. Added to that, I believe EP's say that an ablation is also more likely to succeed if it is performed before persistent AF sets in. Bearing in mind waiting times nationally can anything up to a year, maybe it's something you should discuss with your EP. Of course it's not an easy decision and thousands of people manage to lead relatively normal lives with AF, but we rarely hear from anyone who regrets having an ablation...…..

[Kevinder23 in reply to Hidden]

Thanks flapjack i appreciate your reply x

[Hidden in reply to Kevinder23]

Are you male or female Kevinder - not really important, but I'm not usually kissed by men!!!!

[Kevinder23 in reply to Hidden]

Female ha ha that made me smile kevinders just my husbands nickname lol x

[Hidden in reply to Kevinder23]

Phew....that's OK then!! xxxxxxx

[BobD Volunteer in reply to Hidden]

apart from Ian FJ

[Kevinder23 in reply to BobD]

How are you bob? X

[BobD Volunteer in reply to Kevinder23]

Back in NSR apparently but high dose of drugs are making me feel rubbish. Give it a few days and try weaning back to maintenance . Thanks for asking.

[Kevinder23 in reply to BobD]

All the best bob sounds like your on the way x

[12cupcakes in reply to BobD]

😊 good to here that you are back in NS. Hope it stays

[Hidden in reply to BobD]

😳

[cassie46 in reply to BobD]

You beat me to that Bob - did you get rid of your frock Flapjack xxx

[Hidden in reply to cassie46]

Gonna wear it Christmas Day but don’t tell Beancounter, I want it to be a surprise.👚

[Hidden]

I found Flecainide made my episodes more frequent and much stronger so I have stopped taking it. I am lucky that my hr rarely goes above 80 during an episode and my bp has fallen so I have stopped the Felodipine too.

D

[Hidden]

Sorry about the diversion above Mrs Kevinder.....please let us know how you get on with the Flecainide. When I used it as a PiP it sometimes took 3/4 hours for 300 mgs to get me back in rhythm, other times maybe an hour or less.

[Kevinder23]

No.worries mr flapjack a welcome diversion willdo.Thanks Hylda for your thoughts xx

[SpritzerAce]

Hi Mrs Kevinder! I totally understand how you feel. I was on Flec 2x 100mg daily for about 3 months but that did not seem to manage my AF well. Had more frequent Atrial flutters and palpitations felt stronger too. So I have now changed to Sotalol. Just early days on it (about a week) and I had a few episodes of ectopics. My palpitations felt less intense when it happened but yeah even sotalol looks like it won’t be able to get rid of the palpitations entirely. Am seeing my EP next week and I think I have to seriously consider ablation. Wishing you well and hope you too will get the chance to see your EP soon to discuss alternative if the meds do not seem to keep the AF at bay.

[Kevinder23 in reply to SpritzerAce]

Thankyou for your reply wishing you well let me know how your appointment goes x

[pirnough6]

I think when I got to this dose I knew I needed an ablation. Now after 2 ablations I sm AF free

[jillybeanposh]

No 1 calm down. No 2 always take your

Medication. No 3 something is triggering the AF. Start writing down what you are doing not just the day you have AF it could be the day or two days

Before. Be honest with yourself. I also think it takes a time for the Flec to get into

Your system, are you on

Any other heart tablet or blood pressure tablet? Sounds like you are getting very anxious about your AF this does not

Help the episodes it could even cause them. Let me know

How you are.

[Kevinder23 in reply to jillybeanposh]

Thankyou i do get stressed xx

[2468abcmuk in reply to Kevinder23]

Eat last meal a lot earlier and just small meal & graze on fruit & nuts after 5

Worth a try

[Brizzy5000]

When I was taking flecinide I started low and then by the end i was on 200mg per day plus bisiprolol but in the end the drugs did not work, I was lucky if I got one or two days without AF, so in May had an ablation and have not looked back since no AF or flutter

[Londonant]

Hi Kevinder. It's horrible isn't it - I found the uncertainty of not knowing when my AF might strike really hard to deal with. Like you, I moved from using Flecanaide as a PIP, to daily, without much success. Had an ablation in August 2018 and, miraculously, it seems to have worked as I haven't had any AF since. I can't express how much this has improved my life and urge you to consider/re-consider the ablation route. Wishing you well whatever you decide.

[Melleray]

Hi - I found Flecainide made my episodes much worse, so was given Sotalol and have taken that ever since. 80mg x2 daily. For many years it helped to keep the demon at bay

[CAThouse123]

Hi I was given flecainide and I found my episodes much worse and I had to come off them after 3 weeks of taking them my cardiologist told me to stop I am now waiting for another appointment I was supposed to have an alblation on the 1st of November this year but while doing the test it showed that it was much worse that they thought so now I might have to have open heart surgery or pacemaker as think it’s to bad for alblation

[Marcus30]

Why not ablation?

Has that been discussed?

[Kevinder23]

Thankyou all for your comments ive taken the advice spoke to ep secretary and awaiting onstructions you have a)l really helped bk in NSR now so godwilling it continues thankyou xxx😘

[Minda]

Just have faith hold on there you still going to feel where’d once in a while but it does work I’ve been taking it for five years now just try not to drink too much coffee mines not much better when I reduce my coffee till one small cup a day you’re still gonna have a little bit of ups and downs but it’s the best one you can take went from black of night there’s something else don’t remember the name at the moment but it was terrible my heart was just all over the place Just be confident don’t get nervous think of yourself as you have any better

[rocketritch]

It's only a matter of time before meds stop working. Flecanide always worked for me until it didn't anymore.

Has second ablation and it worked for a short time before I had to go on ticosyn.

Had third ablation and went back to flecanide for a few months. Now I am just in metoprolol for a while. I imagine I'll be getting off of that as well before too long.

[Kevinder23]

Weve somehow got to live with it i supose easier said than done at times xx