Had my appointment today and they found cancer in the bladder. As you all can imagine very upset. But the consultant assured me we caught it early. They are going to operate within the next month. And he seemed very confident and reassuring. So I am glad I went to see a doctor promptly. Rienij 🙏🙏
Follow up to blood in urine: Had my... - AF Association
Two people I know well have had this diagnosis .Yes. Very upsetting and I hope all goes forward well. A friend is still very much with us after more years than I can remember......probably 10+.My brother was diagnosed a year ago....he is 87.....with stage 1 bladder cancer AND he has had multiple myleoma...in long term remission.Surgeon dealt with the bladder cancer and then said tongue in cheek 'well we' got that' so you many more years in front of you'. That apparently means 5/6 or 7. So I guess if you are a younger person and with fair health you might be in with an even better diagnosis and long term recovery.
I'm sorry to hear your news Rienij, but thank goodness the cancer had been found in it's early stage. It's good to hear that your consultant is confident and reassuring, as an expert he must see countless of cases like this, so his opinion should be trustworthy. Please let us know when you get your op date. We will be with you every step of the way.
Sending a big healing hug your way.
It must have been an awful shock to get that news but a friend of mine had a similar diagnosis and was told that having found it early and having regular future investigations it would not be life threatening. It means the hospital will keep a close watch and treat anything before it becomes a big problem. Best wishes for a similar outcome for you.
My friend also had the same diagnosis, she is fine and that was 7 years ago. She is checked regularly and apart from that she lives a very normal life. Good luck Rieni...you were diagnosed early and you have a treatment plan in place, get through the surgery and look forward to many years ahead of you. Roy
Sorry to hear this Rienij, what a shock for you.
If it's any comfort, my father was diagnosed with bladder cancer in his 70s, had a small operation followed by regular check ups ... it never got the better of him. He lived until he was nearly 90 and didn't die of cancer.
Thinking of you and sending you my warmest wishes H x
So sorry such a shock and that was the same with my mum we thought it was an infection but turned out to be cancer.....having sajd that she was treated and after a few years of goung back for check ups was clear....they seem to have great results with bladder cancer.....if they say chemo after dont worry it’s put in bladder and does not affect the rest of the body, no side effects at all.
My husband was diagnosed with an aggressive form of bladder cancer over four years ago. He is now free of the disease.
After the diagnosis it was a very worrying time for our family, but life is back to normal, and he is enjoying all the things he enjoyed before the diagnosis.
Feel free to pm me if there is anything either he or I can help you with.
There are also some very supportive groups on Facebook if you have an account on there.
The urostomyassociation.org.uk is another website that might interest you, they organise meet-ups over the country. (Assuming you are in the UK) If you plan to have a stoma, you will be allocated a stoma nurse before the op.
Hope all goes well for you.
So sorry you are going through this worry in addition to all the other issues in your life. No wonder you feel numb. In my experience (although not with bladder cancer) consultants are very careful in what they say, it is not in the patient's best interest nor the consultant's if the truth is clouded. Your consultant sounds confident and positive and you don't have long to wait. Please let us know how you get on. With very best wishes.
Life has thrown you a curved ball! - I speak from 100% personal experience
Exactly 5 years ago i was in the place you find yourself now - Frightened
At the same time I was enjoying the inconvenience of AF.
I was told if you a male and diagnosed with cancer the "Best" two to have are Prostate or Bladder so, things could be worse!
I decided, after much thought and professional and family advice, to accept major surgery and had a Radical Cystectomy - meaning the removal of my bladder,prostate and appendix and all surrounding lymph glands.
The rationale was that cancer can not return and attack my plastic replacements!
My doctors/surgeon, also reassured me that AF would not impede the procedure in any way.
My AF was also treated with 2 ablations within this same period.
I am now 5 years down the road, free of cancer and very much enjoying life with only a slightly altered lifestyle and I provide counselling to patients at a major South of England hospital.
I have seen 10 patients this year so far, so you are not alone.
If you would like further information/advice/support, please do not hesitate to mail me.
My very best wishes for a speedy, successful treatment and recovery.
Me and my wife has been diagnosed with blood in urine seen under microscopic for the last 5 years
Are we infection each other ?
Did ultrasound 5 and 1 years ago
Dr says nothing wrong with me and is due to kidney stones
I hope the best for you and there's big advanced in curing this now from all people sharing here stories
Hope we all come together in times like this... Big hug for u brother
Just to reassure you. My mum was diagnosed with aggressive bladder cancer many years ago. She had about 3 ops then chemo treatment which was liquid into the bladder. Anyway she is 92 now and although she has to have checks every year (was 6 monthly) she is absolutely fine. So keep positive as it can definitely be beaten!!!
Hi Rienji. That's difficult news to hear. I have had 2 bouts with cancer. Larynx in 1984 and uterine in 1999. I am still here and doing well. I do know from years of working with patients many more of us survive cancer than not. And you got on top of yours right away . I wish you a smooth journey through your treatment and I believe pretty soon you will be reassuring someone else who is newly diagnosed that you are a survivor and their odds are also very good. Take care. irina