ADVICE PLEASE: Has Anyone heard of this... - Atrial Fibrillati...

Atrial Fibrillation Support

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ADVICE PLEASE

20 Replies

Has Anyone heard of this I'm tempted to do it but not sure. This is the begining of message.

We are conducting a new research study about the impact of cardiovascular diseases on the quality of life of people who are living with these conditions.

We are currently searching for people with one of the following conditions:

o Bradycardia (people wearing peacemakers)

o Heart Failure (Cardiac Resynchronization Therapy)

o Atrial Fibrillation (A mix of cryoablation and radiofrequency ablation)

o Syncope (with insertable cardiac monitor)

Read more about...
20 Replies
Smokie2D profile image
Smokie2D

I have taken part in research in the past. I found some of it useful, it also allowed for some tests that would not have been done otherwise. In all the cases before the study started I recieved a medical and further info. In some cases I did not fit the needs of the study, or was too unwell and did not go further.

The ones I took part in were useful and as my condition could pass to my kids I thought it worthwhile. However it must suit you and your life and not add to the stress etc you live with!

in reply toSmokie2D

Thank you for your reply I have always ignored all these sort but feeling little ignored so thought if they find anything wrong or different with my health someone would have to listen.

again thank you for listening

CarolB

Smokie2D profile image
Smokie2D in reply to

To be honest I only took part in the first test as it had some tests that I wanted done! The crew doing the tests were chatty and you got to speak to a Dr for an hour instead of ten minutes! So depends on the balance really, needles, poking and prodding, but on the other hand an MRI etc

Smokie2D profile image
Smokie2D in reply toSmokie2D

All research I took part in was run in my local hospital. This has a medical school attached to a uni and are involved in a lot of medical research!

10gingercats profile image
10gingercats

who is asking? Is it a hospital, a pharm. company,a professional body whose credentials you can trace.Do not info. in my opinion to people who cannot tell you about themselves or have a recognisable name and son on.That is my view anyway.But also be guided by what others say here.

in reply to10gingercats

Its from Opinion Health it came through this site this is the rest of email

If you have ever been diagnosed with one of the above conditions, we would like to invite you to participate in a web assisted telephone interview that would last approximately 60 minutes.

If you are interested in taking part in this study, please click on the following link:

survey.opinionhealth.co.uk/...

As a token of our appreciation, you would receive an incentive of £40 as a way of thanking you for your participation. During the interview, we would be interested in gaining more insights that would allow us to gain more perspective on how this condition affects your daily living. We would be also asking for your feedback regarding some materials which would be presented to you during your interview.

If you have any questions about this study or experience any difficulties and need assistance, please contact us, either by writing us an e-mail to: info@Opinionhealth.com or by calling us on the following phone no.: 0207 486 6700.

Thank you very much in advance.

Best regards,

Opinion Health

11 Poland Street

London W1F 8QA

T: +44 (0) 207 486 6700

opinionhealth.com

info@opinionhealth.com

Thank you for your advice.Dont think I'll do it I'm not very good on computers I'll give a miss but thank you very much

CarolB

10gingercats profile image
10gingercats in reply to

I looked them up. This is a market research company probably working for a pharma .

in reply to10gingercats

Thank you very much as its not come from doctor or hospital I'll give it a miss

again thank you for your help

CarolB

P0rtnahapp1e profile image
P0rtnahapp1e

If they’re wearing Peacemakers send them to us in Northern Ireland. 😀

Seriously, it must be the schoolteacher in me, but I find it difficult to take anyone seriously if they can’t proofread a professional communication

in reply toP0rtnahapp1e

If you are being critical about my email I have good reason to be doubtful. Through a similar email i have been hacked and also I have problem with my sight. I was only asking if anyone else had the email to see if it was genuine. If you are or was school teacher I don't rate your sympathy for someone who has many health problems and just asking advice. I have only twice I think asked advice on here before but i don't think I shall again

I will say thank you for your comment as I was brought up to be polite

CarolB

P0rtnahapp1e profile image
P0rtnahapp1e

Many apologies @CarolBic, I was in no way criticising you, but casting doubt on the professionalism of the people at the source of the research. I thought I made that very clear but I’m sorry if I didn’t.

It was meant to be a lighthearted poke at them, not you.

in reply toP0rtnahapp1e

I'm sorry if I took it the wrong way I read all and never comment I'm a bit low at the moment. I think I'll stay with just reading or not read

Thank you for your reply

P0rtnahapp1e profile image
P0rtnahapp1e

Aw, don’t let my inability to express myself stop you from commenting. We all need each other and I found it a really interesting post, as did many others obviously, judging by the number of replies.

As regards feeling low, I find that keeping in mind that anxiety and depression are often caused by heart problems, so they have a physical source, not necessarily a mental one, and that helps.

Have a good day and please do comment again. Xx

Jay10 profile image
Jay10

I deleted it as I wasnt sure if it was a spam message.

doodle68 profile image
doodle68 in reply toJay10

I had something similar a little while ago and deleted it too ,

in reply todoodle68

Thank you all Yes I have deleated as well

KMRobbo profile image
KMRobbo

Where is the survey? I will do it! Can only help people further down the line.

KMRobbo profile image
KMRobbo

Turns out I already have done the survey! . Must have been when I was still on the meds and it got lost in the brain fog!

RoyM profile image
RoyM

Don't leave or stop contributing Carol. No one was "having a poke at you" each member on here is respected and important to the success of the forum. POrtnahapp1e was having laugh at the unprofessional way the survey was written and the grammatical errors contained in their correspondence to you. Keep well and keep posting Carol. Roy

doodle68 profile image
doodle68

The same company who contacted Carol seem to target members occasionally, there was a thread on the subject a while ago...

healthunlocked.com/afassoci...

For future reference note Rachel Admin's reply in Bob's thread

healthunlocked.com/afassoci...

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