Last Post on phrenic nerve damage was 3 months ago.

[Fastbeat]

Further update, it's just over 6 months since my phrenic nerve was damaged during ablation(JULY 14) Went for fluroscopy scan today great news all back to normal.Even though ablation was abandoned the amount that was done has left me with better QOL than before so 2nd ablation is being put on hold for time being.Saw my EPalso today and as he agrees it's all about QOL, so will see me again in 3months to see if my results are still the same,if I'm happy will continue with meds if not then we will discuss it further.I have just had this awful flu virus thing and it did not bring on my AF which normally any illness really caused quite severe and prolonged episodes. I will post further as I progress on my life with AF. Jane

[Hidden]

Great news Jane, I can remember some of your earlier posts, so its good to see that much of the advice given came good.....John

[Fastbeat in reply to Hidden]

Thanks Flapjack

[Hidden]

Thanks for that. How pleased you must be, both about the phrenic nerve recovery and the success of what did get done. Look forward to the next instalment.

Not so good about the flu...

[Fastbeat in reply to Hidden]

ThanksRellim2 just left with a cough that's proving difficult to send on its way.

[Hidden in reply to Fastbeat]

Oh, tedious. Perhaps it will go when the weather is warmer and better. Unless you are in the southern hemisphere...

[Fastbeat in reply to Hidden]

No in UK

[Hidden in reply to Fastbeat]

Good! It's almost February and we have the best months of the year just ahead.

[C66t in reply to Fastbeat]

Yep that after flu cough takes ages to go.3weeks should do it. Best of luck.

[Hidden]

how did u get on with the cataracts?

[Fastbeat in reply to Hidden]

Had this flu virus had to cancel cataract op twice ,next appt Feb 16 that's why I need this cough to get on its way

[Hidden in reply to Fastbeat]

OK....best of luck!

[BobD Volunteer]

That all sounds positive to me Jane. Don't forget to work on the life style changes we all need as this is beginning to be shown as if not more important than ablation.

[Fastbeat in reply to BobD]

Thanks Bob,I have already lost 4 stone over last 3 years ,but must admit I need to get more exercise but will try to improve that, get walking more as the weather improves hopefully that's me and the weather.

[rosyG]

Very good news- well done- keep us posted

[Fastbeat in reply to rosyG]

Thanks Rosy, will do

[opal11uk]

Brilliant news, wishing you well.

[Gertsen]

Good news. Yes, the cough is hard to get rid off I have it too 🙄

[jobristol]

What great news Jane, so glad everything is so much better for you. Good that the flu hasn't started any AF too. Goes to prove that 3-6 months blanking period is correct! Was wondering how you were doing and was going to message you today! I'm still doing ok, the ectopics have got less too. I've started back to some exercise although very very easily and all good. Had my follow up call from arrhythmia nurse last week requesting ecg from GP, if they are happy with that then hopefully some meds can stop and they'll discharge me back to cardio. Looks like all is going good for both of us. Oh, Happy New Year to you and your family. Jo

[Fastbeat in reply to jobristol]

Thanks Jo, yes feeling so much better, AF still there but I can manage it, if you can't feel it it's so less bothersome so for time being I will accept that and get on with my life, if it changes again in future then will have to deal with whatever further treatment will be needed.

Pleased you are doing well so this year is looking better for us all round,as you say a Happy New Year to us all.Jane

[CDreamer]

Such very good news, some scary times for you but so glad you are feeling better.

[meadfoot]

That's good news Jane.

[12cupcakes]

Great news

[ATLsoccerfan]

Fastbeat, I am so glad to hear you are doing better and encouraged by own situation might have the same outcome. I am 3 months post AF ablation that did damage to my right phrenic nerve. My EP didn't actually check for it when I told him I was still short of breath 3 days after the procedure. I found out when I had an X-ray while in the hospital for kidney stones, 12 days after the procedure. Low and behold by right diaphragm was elevated. Now 3 months out I'm still short of breath with activity and can't lay flat or bend over, or talk for any length of time. The EP has only seen me once and says it may take 2-12 months or even up to 2 years to heal, IF it heals.

I have a couple of questions for you, first when you started feeling better was it gradual or did you feel you could breath easier over a couple of days? and second, did your EP ever offer any referral to other specialist to evaluate other treatment possibilities, and last, would you ever consider having ablation again or if your AFib returns just use medications.

ATLsoccerfan

[Fastbeat in reply to ATLsoccerfan]

Quick answers, gradual return to normal breathing.No referrals needed. I am in permanent AF now and on meds, but quality of life better like this mostly asymptomatic from AF.

[ATLsoccerfan in reply to Fastbeat]

Thanks for the reply. I am still have shortness of breath and am frustrated as professional medical journals say phrenic nerve damage should be a thing of the past with precautions of phrenic nerve pacing during the procedure. They quote risk of under 0.3 %, yet here we are. I had it done because the medications were making me so tired and now I can't breath or sleep and I'm still tired.

I am glad you feel your quality of life is better and you are mostly asymptomatic and I wish you the best for the future. Thanks again.