Phrenic nerve damage: I had my first... - Atrial Fibrillati...

Atrial Fibrillation Support

32,399 members38,733 posts

Phrenic nerve damage

gailbo911 profile image
9 Replies

I had my first ablation April 26th and it was an extensive ablation also. My shortness of breath and dry cough were my major complaint after the procedure. Could not get a definitive answer as to why I was so short of breath. My EP came to town and I was able to see him and found I was out of rhythm in just a few weeks following the ablation. A cardioversion was done and I seem to be back in rhythm and also given Multaq in addition to the Eliquis and Metoprolol. I had googled the shortness of breath after ablation and found the phrenic could be damaged. Have gone to pulmonary doctor and after some reading have only 50 percent in the right lung with an elevated diaphragm. Got started on medication for pneumonia and will have a SNIF test performed in July to confirm the phrenic nerve damage. I am so glad I found this group which has given me hope that my breathing should get better within 12 months ( hopefully,) please let me know what has helped in the recovery of the phrenic nerve for those affected. This is so disappointing in what I had hoped would be the result of my ablation. My EP has over 14 yrs and is a fine doctor..I know this is only a complication and do say my prayers for full recovery..Any words of encouragement are welcome. Thanks

Written by
gailbo911 profile image
gailbo911
To view profiles and participate in discussions please or .
Read more about...
9 Replies
meadfoot profile image
meadfoot

Sorry to hear you have had this complication. I have not had an ablation but know many on this forum have so there should be plenty of experience people will have to share with you including phrenic nerve issues.

It's a concerning and disappointing time for you but please keep positive as things will improve and life will become brighter again for you. Keep your chin up. Best wishes.

CDreamer profile image
CDreamer

There have been several posts about this complication so hopefully someone will see your post and reply.

I seem to remember that recovery was 6-12 months.

So sorry this happened to you, as you say very disappointing.

Offcut profile image
Offcut

My opinion is that with the elevated diaphragm it is a lung issue now and would need to be dealt with by a lung specialist, There are various things that can be done to reduce the elevation depending on the cause of the condition?

I have multi-conditions so I do not think I am a good benchmark. I have had right side diaphragm paralyse for 5+ years and lung issues most of my life. The inability to swim now is my biggest loss to my routine.

I hope you get back to normal soon.

Be Well

gailbo911 profile image
gailbo911 in reply toOffcut

Thanks. Seeing pulmonary doctor now.

rosyG profile image
rosyG

whenever this has been mentioned in our patient support group talks the consultants have always said the phrenic nerve does recover! I hope you are feeling better

gailbo911 profile image
gailbo911 in reply torosyG

Thanks, this has not been pleasant. Really appreciate the positive message..

PZiglar01 profile image
PZiglar01

I am sorry to hear you are having to go through this. I have been dealing with this complication since September of last year when they did my heart ablation and injured my phrenic nerve. At that time I couldn't even make a bed without sitting down. I am thankful to say that my breathing is a lot better and they are going to check my diaphragm at the end of July regarding the paralysis. I don't think the issue is completely resolved as of yet but getting close. Don't give up hope and keep praying as I will pray for you also. It will get better, just try to have patience. Take care

gailbo911 profile image
gailbo911 in reply toPZiglar01

Thanks so much for responding. Is there anything that can be done to improve? Any breathing exercises? This is so frustrating. I won't have my first SNIF test until the end of July..Tha so again. And you will also be in my prayers..

Potter22 profile image
Potter22

Looks to be two years. Thinking of you and wondering if things worked out for you. I am in the very same place. Ablation February 4th hoping for a few years of time off from afib. I have been dealing with it for 10 years. Instead, a damaged phrenic nerve and wait and see what happens. Mean while in and out of afib, 5 cardiac conversions in 10 days now on ameoderen. Should one use oxygen or not. Should one walk as much as possible without dropping oxygen lower than 85. I am so confused. And now they want to do another ablation fairly soon.

Not what you're looking for?

You may also like...

Phrenic nerve damage at ablation.

I had an ablation for AF 2 months ago and I was told my right phrenic nerve was damaged in the...
Springbulbs profile image

Phrenic Nerve Damage

Hello all, i’m 1 week post 2nd ablation for PAF at the new Royal Papworth Hospital and have just...
Matt40 profile image

Phrenic nerve palsy after ablation.

I had my second ablation 3 days ago, I had an x-ray and echogram afterwards and it says results are...
Margewhit profile image

Does heat ablation go anywhere near the phrenic nerve?

Hi All I had an unsuccessful cryoablation August 2017 which also unfortunately left me with a...
Surreyhunni profile image

Update of phrenic nerve injury due to heart ablation

It has been almost 6 months since my ablation and still having to sleep on the recliner due to...
PZiglar01 profile image

Moderation team

See all
Kelley-Admin profile image
Kelley-AdminAdministrator
jess-admin profile image
jess-adminAdministrator
Emily-Admin profile image
Emily-AdminAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.