At Last: I have just read the new... - Atrial Fibrillati...

Atrial Fibrillation Support

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At Last

BobD profile image
BobDVolunteer
18 Replies

I have just read the new anticoagulation booklet from AF Association cover to cover and guess what? . Not one use of those two dreadful words "blood thinners". Alleluia!!!!.

(And I did not proof read that one.)

For anybody worried about anticoagulation or new to AF I recommend this booklet as essential reading.

Bob

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BobD profile image
BobD
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18 Replies
Finvola profile image
Finvola

How remiss of the authors Bob! 😉

Whoooo bloody raaay ! At last :-)

Where did you get the book Bob ?

CaroleF profile image
CaroleF

I got one too in with an AFA newletter and several other booklets and an excercise DVD the other day. I think they must have been sent out to everyone who's a 'Friend' of the AF Association.

CaroleF profile image
CaroleF in reply to CaroleF

See here for how to become a 'Friend' heartrhythmalliance.org/afa...

I'ts only £15 a year or £2 a month and there are various 'benefits'.

Well worth supporting in my view.

in reply to CaroleF

Pleased I saw this CarolF I have just joined.

CaroleF profile image
CaroleF in reply to

That's good to hear Hidden Now if only more people who use this excellent Forum would do the same ......

VeeT profile image
VeeT in reply to CaroleF

Yes me too Carole, a welcome surprise.

RobertELee profile image
RobertELee

About time...it used to make my blood boil!

Well, not really boil you understand. Just a metaphor.......like....... blood thinners....😉

ILowe profile image
ILowe

I have just been on the phone with someone who has been on Warfarin for over 30 years. He spontaneously said he had not realised that Warfarin does not actually make the blood thinner, like diluting paint. I used to think the naming problem does not matter. But it does, since the comparison with paint thinners is unhelpful, especially when it comes to explaining first aid. Well done BobW.

seasider18 profile image
seasider18

In that case will doctors be able to understand it??

BobD profile image
BobDVolunteer

My earlier answer to 200444 seems to have got lost but others have answered it. My argument is twofold. One is it is patronising thinking we can't understand the science and the other is that "Blood thinners" makes vulnerable people think that the blood gets runnier and therefore can leak out spontaneously. The book makes it quite clear that anticoagulants do not make you bleed more easily and that you still need an injury to start bleeding.

Sorry I left home at 4.30 am to go see my Man in London today and just back so missed a lot.

canadiananna profile image
canadiananna

Where can I get/access the booklet and what is it called? thanks

BobD profile image
BobDVolunteer in reply to canadiananna

Downloadable from AF Association website as mentioned above by CarolF.

Jans5 profile image
Jans5

Disappointed that the figures it quotes states risk of stroke for people with afib is 1 in 20 as your risk of stroke if you have afib varies considerably depending on other factors. In fact according NICE patient decision aid your stroke risk only reaches this figure if you have a chads score of 4. What we need (especially newly diagnosed people) is clear and accurate information for all. I'd have been even more scared (unnecessarily so) if I'd have read this at the start of my af journey. Also noticed it was funded by boehringer ingelhein who manufacture pradaxa.

lis56beth profile image
lis56beth in reply to Jans5

Good morning Jans5 Please could you tell me what a Chad score is Thank you

lis56beth profile image
lis56beth in reply to Jans5

I thought I could look it up instead of being lazy!! Thanks for alerting me to Chad scores

DK81 profile image
DK81 in reply to Jans5

All stroke risk figures are meaningless unless expressed as x/month or x/year, etc. I do hope the booklet uses proper units.

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