Intro

[Jintyk]

Hi, my name is Jen. I'm 52 living in n.I.

Been insulin dependant diabetic for 40 years. Have fibroymalgia, costocondritis, calcification in joints, calcification in aortic valve. Numerous allergies including insulin which I'm trying to sort out now.

Trying to get info from anyone in my position

[BobD Volunteer]

Do you have AF? This is Atrial Fibrillation forum.

[Jintyk in reply to BobD]

Sorry, my dad has and I'm trying to get 'real' info from people's experience instead of Dr .

[Goldfish_ in reply to Jintyk]

Maybe you should try the diabetes or fibromyalgia sites? This one doesn't seem relevant

[CDreamer]

I am still a little confused - do you want info on AF?

Information on people with AF + other conditions?

Or Autoimmune diseases and their links? I have a few myself and although don't have AF, have had AF in past.

May I ask you - do you have any Autonomic dysfunction such as Vaso-Vagal, sweats, arrhythmias etc?

[Jintyk in reply to CDreamer]

Have arithmia & sweats personally. My dad has same & some chest pain too.

[CDreamer in reply to Jintyk]

OK - some arrhythmias are due to autonomic dysfunction which is very different type of arrhythmia to AF.

This forum is focused on AF information, which may not be relevant for people with autonomic dysfunction type arrhythmias.

So it really is important to know what type of arrhythmia and what sort of information you are looking for in order to assess which forum may be of greatest benefit to you.

Best wishes CD

[PeterWh in reply to CDreamer]

So how do you tell the difference?

[CDreamer in reply to PeterWh]

Not sure, I am only just finding out about this stuff and there are fewer autonomic doctors around than EPs. There is only one place you can get diagnosed in UK.

[Jintyk]

My dad has AF. Thanks for info... he is in hospital at moment waiting on angiography. He had AF, then had a heart attack which is why he's in hospital but thankfully still with us. I will just browse for info if that's ok but you can take me out of forum if this doesn't suit. Thanks

[Boombiddy]

Hiya Jintyk, so sorry to hear your dad is so poorly and wish him a good recovery.

It must be very confusing at the mo with all this new stuff coming at you, and your dad so unwell. You have come to the right place to find out about A Fib for him.

Don't leave the forum if you need to learn about AF fast, I have found it the best place to learn. (I think people were confused about what you were asking because your own symptoms were listed but they didn't know you are looking at AF on your dad's behalf.)

I too am just learning about A Fib. When I was diagnosed in July I was too confused even to be able to ask questions!

BUT, just hanging around and reading other people's questions and answers has been really helpful. I call it the 'Lurk and Learn' method. Lurk, read, take it all in, and ask questions when you feel you can.

Welcome and best wishes to you. I hope you will find the answers you need quickly. I have found there are many kind, helpful and dedicated people here who are very generous with their time, knowledge and experience, and only too happy to help.

Best again from Boombiddy.

Ps, for some of your own health issues:

I hope to do a post soon about Mast Cell Activation syndrome, meanwhile you may find it worth your while looking it up, as it causes multiple allergies and some people with other conditions like AF, fibro, dysautonomias, connective tissue disorders have it. And more to the point, something can be done, and that hopefully would improve your quality of life! It is rare, but I do think if you are having multiple allergies then it's worth looking it up. A good place to look is UK Masto. They used to deal only with mastocytosis but now deal with Mast Cell Activation syndromes as well.

I hope you are not too exhausted it sounds like you've got a lot on your plate!