Any more suggestions gratefully received

[Whatamug1]

To date I've been told I'm bradycardic, (have ectopics close to the actual heart beat and) have bigemony. While in hospital yesterday being monitored Bps taken while laying down & standing up. The latter showing a slight rise in BP BUT also a large drop (50%) in pulse rate and as I'm suffering very bad dizzy spells, nausea, clammy ness this makes sense as far as my symtoms are concerned BUT there's no clue as to why my pulse rate drops on standing. Any Ideas Please

[BobD Volunteer]

POTS.

[Whatamug1 in reply to BobD]

Thanks Bob - there's one factor I question in this suggestion which is that on standing my BP reading is elevating (not by too much) But the Pulse rate is dropping ? With PoTs isn't it the BP which drops? Sorry Bob I hate to be a pain but I'm just trying to make sense of it x ann

[BobD Volunteer in reply to Whatamug1]

Sorry out of my experience.

[Whatamug1 in reply to BobD]

Thx - you've helped enormously - I actually feel stronger again and think from other answers and some research that I could be on the right track ... bit exciting - some hope after years of what could have been misdiagnosis' - Everything's crossed X

[CDreamer]

Agree very symptomatic of POTS, postural orthostatic tachycardia syndrome. That's why they take your BP sitting then standing, BP crashes on standing which is why you feel faint. The bradycardia who'll also make you feel lightheaded, dizzy and faint.

[Whatamug1 in reply to CDreamer]

Hi CDreamer -Thank you for your reply. I have just texted Bob aswell. My BP doesn't crash on standing it elevates ( within the norm) - it's just the Heart Rate that plummets - (31 etc on standing which is why I keep feeling faint etc). All the symptoms 'fit' apart from this. X Ann

[Whatamug1]

Sorry - I've just always tried to take an active part in life as far as able and I'm finding this part very difficult as it's completely disabilitating (or whatever the word is) & out of any control I have in my life. It's Scarey when all I want to do is the housework/keep myself clean etc & I can't X

[Whatamug1]

Sorry - I've just always tried to take an active part in life as far as able and I'm finding this part very difficult as it's completely disabilitating (or whatever the word is) & out of any control I have in my life. It's Scarey when all I want to do is the housework/keep myself clean etc & I can't X

[cyrilbarnes]

Dysautonomia? Perhaps you could get your GP to refer you to a cardio with a view to doing a tilt test. There is a dysautonomia community on Health Unlocked, why don’t you join it, read some of the posts and ask your question there.

Cyril

[Whatamug1 in reply to cyrilbarnes]

Thx - I will - Cardio tests are imminent so will see what they come up with but know that a Consultant visit will follow - so will specifically ask for this test if it's not suggested. I've also been told that there are specific PoTs specialists so will want to see one of those too. Thank you so much for your advice x ann

[Whatamug1 in reply to cyrilbarnes]

Good morning Cyril - you mentioned that there is a dysautonomia community on healthunlocked - I can't find it and wondered if you could assist me ? Kind regards Ann

[Whatamug1 in reply to cyrilbarnes]

Good morning Cyril - you mentioned that there is a dysautonomia community on healthunlocked - I can't find it and wondered if you could assist me ? Kind regards Ann

[Whatamug1 in reply to cyrilbarnes]

Good morning Cyril - you mentioned that there is a dysautonomia community on healthunlocked - I can't find it and wondered if you could assist me ? Kind regards Ann

[Whatamug1]

Ooops Sorry for sending this in triplicate x

[cyrilbarnes in reply to Whatamug1]

Hi Ann,

Sorry for delay in replying - had my ICD interrogated today and had to wait to see the cardio as it had recorded a couple of ventricular tachycardia events at a heart rate just below the trigger point for it to give me a shock. Am now on some new-fangled beta blockers (very expensive he says!) and if they don't do the job, ablation is next on the list.

If you click on this link it should take you to the dysautonomia group healthunlocked.com/search/d...

Hope you find what you're looking for, do keep us informed of the outcome, and look after yourself.

Cyril