I only found this site when I was given a booklet from Clydebank Jubilee Hospital when I had my second ablation on 3/2/14.
My brief background, I'm 58, took a reaction under a simple day case general anaesthetic to investigate a lump (turned out to be an abscess) they had to use the defribulator to start my heart, but my rhythmn was screwed up. I ended up with a pacemaker fitted a few months later.
I had paroxysmal AF and was controlled with drugs, I was on amiodarone, but after 6 years I had part of my lung removed as they thought it was a tumour, turned out it was a browny sticky stuff and did not know what it was. About a couple of weeks later it had spread to both lungs and eventually it was diagnosed as amiodarone lung toxicity.
Since I came off the amiodarone, the AF came back, my pacemaker gives the exact time and number of occurrences and for the last year I have been permanent AF.
I had a PVI ablation in August and it lasted 6 days in NSR and same again in Feb, 6 days of feeling great then bang it was back.
I have been on Bisoprolol for 8 years and only over the last year have felt totally lethargic, breathless, lifeless and some days good for nothing. Up to last year I was regularly walking 20 to 30 miles a week. I seen a different cardiologist and he reckons it could be the bisoprolol that is causing me to feel so rotten and changing me to verapraamil. If I still feel the same in a couple of months he is proposing an AV node ablation.
I have been trying to read about it, and searched this site and read all posts but confused when it is said you are still in AF 24/7 after the event and then dependant on the pacemaker to speed the heart up, how does it make you feel better?
I would love to hear a few first hand reports from anybody who has been through this procedure.
I normally take everything head on with health issues, but the AV node ablation just sounds such a drastic, irreversible procedure.