Can and do benefit hugely from the knowledge and patient explanations and help given by the wonderful volunteers, who are continually there to support in understanding this frankly sometimes terrifying condition. So it irks me hugely to read the sometimes almost impolite posts that are very unnecessary, unhelpful and dismissive towards these brilliant volunteers. My advice to those who seek help, is that unless you are prepared to listen to the advice by those who know better, stay away, and let the volunteers carry on supporting those of us who truly appreciate and need them.
Peace and love!!