So far, so good...: I had an... - Advanced Prostate...

Advanced Prostate Cancer

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So far, so good...

Jpburns profile image
23 Replies

I had an appointment with my urologist Monday, and got generally good news. My numbers are good (and have consistently been so), after EBRT last April and over a year of ADT.

Around December (@ 2 years of Orgovyx...) I'll have a follow-up PSMA/PET scan to see what's up. If it's a clean scan, I'll be able to stop ADT then. Quite a while off, but nice to see the proverbial light at the end of the tunnel.

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Jpburns profile image
Jpburns
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23 Replies
JohnInTheMiddle profile image
JohnInTheMiddle

Bravo, our cartoonist friend!

Jmr11820 profile image
Jmr11820

That’s great to hear. Onward and upward!

Mikeski profile image
Mikeski

Great news and keep your spirits high 🙌

Orange95 profile image
Orange95

Great news, congrats!

ulfhbg profile image
ulfhbg

Fantastic news and it’ these kind of News that keeps us fighting the cancer beast 🙏🤗🥰Thanks for sharing and keep it up so that you hopefully down the road can say you had a victory and can finale close the cancer chapter 👍😁🫶🏻

addicted2cycling profile image
addicted2cycling

👍👍cool beans.

Jpburns wrote -- " ..... Around December (@ 2 years of Orgovyx...) I'll have a follow-up PSMA/PET..... "

Best of luck and hoping all will be clear.

As For Myself - **Around December after 10years and 6 months following surgical castration, life will be continuing or not???** 😂

rickyfish56 profile image
rickyfish56

Good news - you are so talented - Praying and positive thoughts for your continued progress! You are a warrior and inspiration to the rest of us!

Philosophy165 profile image
Philosophy165

Congratulations JP!

Jpburns profile image
Jpburns

Thanks all, but to be clear, it just means I get to check things in December. But so far so good.

85236442968 profile image
85236442968

Jpburns

Yaaaaaaaaaaaahhh

j-o-h-n profile image
j-o-h-n

Good news!!! Now don't forget that the doc reminded you " That you gotta pay the tunnel toll"....

Good Luck, Good Health and Good Humor.

j-o-h-n

Jpburns profile image
Jpburns in reply toj-o-h-n

See, I thought you would have gone with:

“Why do people talk about the light at the end of a tunnel when they’ve dug themselves into a hole?”

(Maybe George Carlin?)

CAMPSOUPS profile image
CAMPSOUPS in reply toJpburns

Absolutely G.C. lol.

Sat in the front row for one of his shows.

Good news on your end. No pun intendeds ha.

Keep us posted. Thanks!

Jpburns profile image
Jpburns in reply toCAMPSOUPS

Oddly enough, my first "concert" was George Carlin, in Vets Memorial in Columbus, Ohio. Second was Jethro Tull.

CAMPSOUPS profile image
CAMPSOUPS in reply toJpburns

Thats wild. As you can tell by my avatar I have no knowledge of Jethro Tull lol.

It wasnt till the 80's I saw George Carlin. My sister worked at the venue and gifted my wife and I the tickets. She knew/knows I'm a big fan. When we saw him it was his tour where he broke out his humor about "stuff" among of course a whole lot more.

I digress ha.

Why dont I know my first concert (I'm asking myself). We brought our son to his first concert: an outdoor Pink Floyd concert.

My tastes are very varied but anyway I think my first concert was a Grateful Dead concert. No wonder those were the times. I cant remember anything.

Cheers

j-o-h-n profile image
j-o-h-n

Never heard that one (saving it) .... and George was my favorite (Except when he played in western movies)...... Since he's passed on, my favorite now, is me.....(BTW after me you're first)...,

Good Luck, Good Health and Good Humor.

j-o-h-n

mababa profile image
mababa

Good to hear Jp. Hope to get a similar prognostication from my MO on Monday. Sounds like your other issues have moderated to some degree.

This month marks my 1 year on Orgovyx and 4th month on Abiraterone. I’m weening myself off Tamsulosin, something that became a lifesaver during my EBRT. It’s been difficult, though. So, other than the standard range of SEs, everything is still hunky-dory. Here’s to your future holidays!

Orange95 profile image
Orange95 in reply tomababa

My husband got very similar se with radiation therapy. Reading that you are improving gives us hope. He is 6 weeks after RT and on 1 pill a day. Slowly getting better.

mababa profile image
mababa in reply toOrange95

After only my second day of RT, my RO had me on two doses of tam per day plus one ibuprofen. It’s been gradual, but I’ve definitely had substantial recovery in 4 months. I believe most literature says 6 months to a year for recovery to your former self. So your husband just needs to hang in there and, above all, have patience.

petrig profile image
petrig

Hope good news. Here in Finland🇫🇮 if you have mhspc(metastatic hormone sensitive pca) like you and me have, you are in adt rest of your life. Cancer cells need androgens especially testosterone to grow,live and to spred.So there is a risk if you stop Orgovyx(adt) cancer will start to spread rapidly. So I continue taking Orgovyx continuously probaply rest of my life .Now being adt hormone therapy 18 months and continue...

Jpburns profile image
Jpburns in reply topetrig

I don't have mhspc, but not sure if that was meant for me. I hope to leave ADT behind in <12 months. 🤞

petrig profile image
petrig in reply toJpburns

Hope so.🤞

Professorgary profile image
Professorgary

Great news, God bless.

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