This is a bit of a strange one. We live in a fairly warm part of the country. It's a little chilly right now, but definitely not too cold.
For the first time ever, my husband is always very cold. He will turn the heat up to 75 degrees inside and then wear 2 shirts, a sweat shirt and a coat. He will sit covered with 3 heavy blankets up to his neck and still be shivering.
We saw the oncologist last week for his regular appointment and told him about it and he wasn't concerned. His labs look good. Some of the red blood labs are off as they have been lately, but the oncologist says it is normal for some of the labs to be off since he has no testosterone. He is not anemic.
I'm wondering, since he has zero testosterone, could that be why he is so cold? Have any of you experienced this?
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DesertDaisy
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Same. My house is 70 degrees but I have two long sleeve shirts on and have taken to wear scarves. They seem to make a big difference and easy to loosen as needed.
A neck scarf might help. I didn't think of that. I was reading that a thyroid problem could cause this also. I know his thyroid was check about 4-6 months ago and it was fine, but maybe we should check that again.
I got what my wife and I called cold flashes a couple of times a month when on ADT. I would shiver uncontrollably even though I was wearing a turtle neck and sweater. I would put on a watch cap and gloves and my wife would pile on 2 or 3 blankets and in 30 to 60 minutes I would be back to normal and throwing everything off.
It's usually called "hot flashes," but it is really thermal dysregulation -- it can be feeling hot or cold, sometimes both. If it is annoying, some of the treatments with some proven effectiveness are aural acupuncture, low-dose estrogen patches, Megace, oxybutynin, or Effexor (venlafaxine). The best drug is probably Veyozah, but it is so far approved for menopausal women, although I know a few men who have gotten it.
Yes, happened to me as well. As IKNY said upstream, my skin also became super fragile. It would cut so easily and bruise. I am now 8 months out from my final Lupron shot and feel that it's all back to normal. Hang in there!
I too have a BIG problem with skin fragility….any bump or scratch leaves me with a sub cu bruise……I thought it was the prednisone causing this……are you on pred?
Yes your body having difficulty regulating it's temperature is a part of ADT. Some of will have greater reactions to some side affects, than others. I get huge hot flashes, and then super cold afterwards. Other times I'm just cold when its not that cold.
I get cold a lot in the winter. I often wear a toque (for non-Canadians, a knitted hat 🇨🇦 😀) inside the house and in bed. I always feel a lot warmer when the top of my head is warm.
Loss of control over body temperature seems to be a regular part of The Road we walk with this disease. Mostly I remain cold in my core even when my skin, and my panic-mode, are telling me I'm on fire. Strange days! I have kind of got used to it. The alternative remains uninviting. Best wishes.
As I lay under two blankets, and the third being heated I very much go through this all day long. Some days are better than others. I have had to learn to regulate by layering my clothes. In my PJs and wearing a long sleeve shirt and an undershirt with those blankets. I have two Ororo jackets. The down one is very lightweight but is one of the best heating jackets I've had. So I don't look like a gorilla when I am out and about. I too live in a fair climate of northern California in the East Bay. Just at the oncologist yesterday / Friday and he always notices my layering. Found out I while I was there I have gone metastatic to my ribs with my first lesions there. So I've had a rough time thinking about that and reading of course this blog. As I told him it's something I will just live with when we discuss the neuropathy.
PS I always were two pairs of socks also. My wife knows I'm really cold inside the house when I actually will wear that jacket.
I agree with Doctorsceptic it is most probably to do with your husbands thyroid - you see when testosterone is low so is dopamine and it's dopamine that kickstarts the thyroid system I give my husband Guggul from Piping Rock in US it supports his thyroid
TO EVERYONE: I just sent out a quick single question survey/poll to approximate how prevalent this is in our community. The survey won't identify cause. I think we all might be curious how associated "feeling cold" is with ADT. Please respond to the survey.
In the winter, I’m cold all the time. I have a space heater under my desk near my feet when I’m working at home. I get hot flashes periodically from ADT, then I’m cold again.
I live on north central Florida coast, 7.5 years. Last winter I began to notice a greater sensitivity to cold, more this winter. I attribute it to 6.5 years of Lupron, a drop of 50+ pounds since July 2019 on plant based diet, and increasing wimpification from becoming increasingly Floridized.
Moving to Florida for the winter will see you wearing coats, hats, gloves when the temperature drops into the 50s or 60s. As I was once told, "Florida will ruin you", in jest.
Having cold and hot feeling is very common with this disease because of the side effects of the medications. I am in the advanced stage of this disease and I get very cold moments throughout the day. I find its worse if I am taking any kind of medications for pain.
Yes, I was told by my oncologist and read it elsewhere that the prednisone that many of us take with abiriterone thins a layer between the outer skin and the nerves that helps keep us warm. I'm sorry that I do not remember the medical terms.
How is his blood pressure, does he take blood pressure meds, does he work out strenuously after taking his BP meds beforehand? There can be a relationship to low blood pressure and blood circulation to being cold.
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Jevtana 
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Small up tick
