Hello, friends!!!Is there anyone who is currently taking fenbendazole? Does it help?
Fenbendazole: Hello, friends!!!Is there... - Advanced Prostate...
Fenbendazole
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Hi! I know three people on it. Two people for 1 year and they are doing great. One is Gleason 9, stage 4, and now has returned to work, as he seems to be NED after 30 sessions radiation, plus some many supplements and Ivermectine. The other has refused classic treatments and was given 2 years. He is here still after 6 years, with kind of the same protocol. My dad started taking it 1 month ago, and he didn't have any side effects. We'll see in 3 months time how his scans will look like.
Thanks for the quick response. What regimen is your father taking his fbz?
He started on 222mgx2, and after about 1month he's on 444mg ×2 a day. Talking a lot of other supplements: MilkThistle, MCP, IP6, Berberine, Garlic, Green Tea, Lycopene, Sulforaphane, mushrooms, Saw Palmetto and I might have forgotten a few. He has recently started papaya leaves Tea, for low pallets, and guanabana Tea.
You should probably ask your doctor rather than relying on anecdotal evidence that might be true. Or might not be
Just this past year there is a huge thread of almost 150 replies about fenben. Brings out the worst in magical thinking. I take some supplements. But when I looked into that one, very quickly one learns about serious risks and completely unproven claims. As the comment above says, anecdotes mean nothing. And behind the scenes there's a whole community of people sharing poor quality ideas. I'm totally in favor of people learning as much as they can about a particular affliction. And you might choose a different path than your doctors recommend. But that's still in the world of responsibility and accountability.
I've already gone through all the suggested therapies, but the methas are growing.
My heart goes out to you Zavulon. I read your bio and as you say there's all the suggested therapies. Including surgery and radiation. May I ask if these therapies were guided by a urologist, a radiation ontologist or a medical oncologist?
As for fenben, it's an amazing phenomenon. Because in discourse concerning metastatic prostate cancer there's this bubbling dialogue going on all the time under the surface. Large numbers of people are keeping this discourse going. And the discourse has "receptors" everywhere. The discourse is like a cancer, it's constantly looking for new people with which to "bind" into the fenbendazole discourse system. The discourse is fed by second rate science, desperation and hope, fraud, anecdotes and illogical thinking - and probably some sincerity too.
Please allow me to criticize the implied logic from your reply above. "I've tried everything else, and the meds are still growing." This is not an argument for any choice of non-standard therapy. For example, it's not an argument for shooting yourself in the foot.
In a worrying situation, there is extra stress on decision making. The answer to your question "does it help?", is "no". No, as in there is "no serious clinical evidence by honest people that shows any worthwhile benefit of taking fenbendazole." And there's lots of evidence that it wrecks your body.
[Added later: after more reading I begin to think that my last sentence may be incorrect. A year ago I did some reading on this topic, and maybe I need to review again.]
Yes. The therapies were supervised by a urologic oncologist and a radiation oncologist.
You don't have an opportunity to work with a medical oncologist? Once metastasis happens, then your prostate cancer is no longer just about plumbing, and you can't irradiate what may be a large number of metastases large and small. It is now a system-wide biological process and this is where the medical oncologist is your friend. The big picture is what you want from the medical oncologist.
I've been taking FenBen for about the past 6-months. What are the most common ways that it "wrecks your body"? I'd like to understand the potential downside further.
WB: in response to your politely worded question, I've been doing another round of reading on fenben. Added a note to my comment above.
Apparently, there are no big clinical studies yet. But where risk is concerned, apparently liver injury from the thing may be reversible. And there seems to be evidence of overall safety. And intriguing suggestions that it's worth considering for team PCa.
May I ask about your decision to try it? Are you doing anything to increase absorbability? Any thoughts on tolerance? Or better still comment efficacy?
Thanks.
Do you have a link to the big post about fenben? I would be interested in it. I will try to search myself also.
There's this one with 150 replies (and there are quite a few different posts on fenbendazole):
I find it hard to believe people like Joe Tippens and countless others would lie claiming success using fenben, If anything they would announce it as a failure if it didn't work. Even here with conventional drugs or treatments folks claim success or not. When it no longer works they say so.
The idea that people would not lie en masse about some sort of medical treatment, or indeed about all kinds of things, is super naive. There are all kinds of individual moral and analytic reasons why individuals can be wrong, and even deliberately so. Some people benefit from promoting fake therapies. And then there are people who are vulnerable because of their situation. And then when you add it all together you can get a a social tidal wave, and if it's a crummy obsession, a problem. So one has to keep an eye out. Laetrile for example. In the 19th century known as "snake oil".
Many of the people post there before and after scans and doctors remarks . I don't care to look at my fellow cancer sufferers in that light. I hear what your saying but in the case of every person with cancer on fenben making false claims I find that a stretch. If I had that mindset I would not waste my time even here , nope I have faith in these folks with what they share . Many are God loving people that acknowledge him for their healing foremost over the fenben . healnavigator.com/fenbendaz...
hi
My father for years was on Fenbendazole due to having echinococus cysts on his liver. The doctors have said that it was slowing the progress of his prostate cancer. He lived with metastatic disease (bones, lungs and brain) for 14-15 years. He passed away 2 years ago.
Easy enough to find review articles out there that suggest the anti-parasitics, including fenben, may have inhibitory or killing effects on cancer cells. But, even these reviews are not citing real clinical research. Your decision if anecdotal 'evidence' is good enough for you. But these compounds have serious side effects, not benign.
If I go out for breakfast tomorrow and someone has recommended to me that the restaurant has the best fresh squeezed orange juice in town, I'm planning to try it. When it comes to things like Ivermectin and Fenben, it's not a casual thing. I need more research, and need to know how these may interact with other legitimate medications I'm taking.
It's worth checking these resources, plus other available around:makismd.substack.com/p/new-...
makismd.substack.com/p/new-...
Go to: Fenbendazole.org. Just because no drug company will ever spend the money for a phase 3 trial doesn’t mean a drug doesn’t work. Fenben has been used by millions for parasitic infections and it has a fairly solid safety profile, so it won’t hurt to try.
It’s only been conclusively proven in the past few years that exercise and a good diet could extend life. Until that time, those were also considered a waste of time. You don’t need a phase 3 trial to have common sense.
Woof.
Good Luck, Good Health and Good Humor.
j-o-h-n
That's Dog medicine ! Ok, and the FDA approved human version is Mebendazole. I have taken both . Cycle in and out with other drugs like Nitazoxinide and Ivermectin( RX) . Right now I'm taking Nitazoxinide. Info at Rumble: Sunfruit Dan channel. Also Fenbendazole. org. Yes I do believe it is helping me. Go for scan soon. If nothing else I'm worm free and don't get viral illness. Aka the C word . lol . I hear talk things are about to change when it come to repurposed drugs thanks to AI. and other factors. So I buckle up and stay tuned
Took Fenben 2years while on Casodex. Killed cancer in left rib, lymph node and L5. 222mg per day. Going to 444mg every other day. Radiation therapy missed 2 spots so going to get them gone. Looking for how much Ivermectin to take. Appreciated if someone says. Take care
My doctor prescribed 'pulsing' Ivermectin. 8 3mg pills a day for 10 days (24mg total a day), then take a rest for 10 days. Repeat.
With most of the Fenbendazole success stories I've seen with PCa patients (and I've researched this to death since May 2023), some form of ADT was also in the mix. We all know how effective modern ADT drugs are in most advanced cases, so Occam's Razor suggests it's the ADT doing the heavy lifting, not the dewormer. When I see posts by people on Fenbendazole groups or forums gushing about how well it worked for their advanced prostate cancer, inevitably when I push them for more info we learn that the Fenbendazole use is concurrent with, or subsequent to, some form of ADT.
That said though, there is research out there showing the similar Mebendazole helps Docetaxel chemo work better against PCa, so there's probably some room somewhere for it in a PCa treatment plan, with the proper timing and dosage. On dosage, absorption is a problem. Most of it isn't absorbed and gets pooped out, which is great for killing parasites in a dog's (or person's) digestive tract, but not for getting into the bloodstream and killing cancer. The answer may lie in taking higher doses (I've seen recommendations as high as 4000mg/day), but there are probably risks to the liver and intestinal lining at these levels.
Well I was taking Fenben before Casodex. No other ADT. Started Chemo which caused me to asperate do to another condition. 7 days in ICW. Trying to recover now. ADT with Parkingson means being bed ridden and I'm not going that route. So my only choice now is Fenbendazole. Each to their own. Have a good day
Did a lot of research on the absorption issue. I open the capsule and mix the powder with butter, mct oil, peanut butter, (about a tbsp of each fat), 1/4 tsp of aspirin and a bit of allulose. Found this suggestion from a paper where they were studying the absorption issue and they suggested this as fenben is hydrophobic. They just suggested butter or olive oil, but why not make it into a treat? Honestly, some of this "There hasn't been a clinical trial!" stuff wears me out. My thought is that when my life is on the line and someone on top of the cliff throws a rope down, I'm not going to refuse the rope because he hasn't done it 100 times before. Anecdotal evidence carries weight as well, and there's a lot with fenben. Besides, it's not the only arrow in my quiver.
Thanks for the tip! If my current treatment path stops working ill be looking for "ropes", and I'll use your "peanut brittle" vehicle to take Fenbendazole.
I get your frustration with the standard of evidence in the clinical field, as sometimes it seems designed just to gatekeep cheap remedies out in favor of expensive drugs (and "proof" can cost millions). I think there are a lot of applications for off-label agents for PCa (for example CBD, CBG, thymoquinone, turmeric if you can get it absorbed), but even the anecdotal evidence for Fenbendazole with PCa is kinda meh. There are a lot of people coming back from or stabilizing serious stuff like lung, pancreatic, colon cancer with it though, but that horsepower just doesn't seem to be there for us.
You're absolutely right. Many "forget" to mention the ADT. I've used ADT for 6+ years, fenben for 5, over for 4+, supplements, etc. I stick with it all, but if fenben benefits PCa at all, it is SLOWWW. I just finished RT (40 treatments) hitting the fenben hard, and I did Provenge in September, so I'm starting to ease into possible synergistic areas besides ADT. Haven't done chemo or Xtandi, Zytiga, etc. yet, but don't want them to feel ignored, so maybe later this year. Scans have been good and interesting, but the final interpretation has yet to arrive.
I do it as part of my protocol, with no side effects that I notice. I also use Ivermectin.
Any standard therapies with it?
Yes, I am also doing ADT drugs~ Orgovyx and Darolutamide, and a ton of other alternative things. This Fall I was becoming hormone resistant and I tried BAT therapy, which resensitized me to the ADT drugs. My PSA is currently 1.85 (from a high of nearly 1000, 3 years ago!)
I think Fenben has helped but I rely on a combination of western and alternative approaches. I do Fenben with DMSO, about 500 mg a day. (two small scoops and just enough DMSO to combine.)
There is no clinical trial that shows this to be of any value.
No $s for dog parasite drugs, but I'll take it again when I get done chemo along with other supplements that were recommended for abstinence. I take DE too every morning with anti-inflammatory oils.
Thank you got it booked marked
I've been on FB, MCP, Iver and Tudca for 18+ months. My last scan did not show growth. Also, all my lab are normal as are my kidneys and liver. The only abnormalities in my labs are from Eligard and Erleada. I take the stuff from Tractor Supply.
I've responded many times about my use of fenben, iver, etc. Just search my comments at my profile using those key words.
Please go to substack and subscribe to Dr Makis or "The second smartest person in the world" or others. Be cautious as there are loads of BS in there, but read as much as you can and form your opinion. This is not the right place to discuss it, as it is a touchy subject. Just be aware that the benefits outnumber the risks and you don't have to stop SoC to take it. Also check Ivermectin while in there