Father feeling very fatigued and in some pain.

[craziecanuck]

My dad was diagnosed in Aug 2022 and we have been pretty lucky with his condition. He has been on Lupron shots and Erleada and his last PSA test was at .03 in October which is good. My concern is the last week he’s been really tired and is starting to get some pain again. My question is can things change even though his PSA has been constantly decreasing?

[craziecanuck]

edit PSA steady at .3

[fireandice123]

Where is his pain?

[craziecanuck in reply to fireandice123]

Shoulder area.

[London441]

How is his mobility? Is he exercising? Walking even? How much time in bed on average?

[craziecanuck in reply to London441]

He needs to exercise more forsure. Just sleeping more than usual proabably normally for once.

[Doctorsceptic]

This may be due to PCa, but don’t assume it. He needs to have a decent clinical evaluation - ie review of his symptoms and have a physical examination and some initial well focussed tests. If the evidence points to PCa more advanced imaging eg bone scan, CT or PET.

As we get older (like me) we all accumulate diagnoses and one must always consider the possibility of alternative explanations.

[craziecanuck in reply to Doctorsceptic]

thank you that’s a great point.

[alysona828]

Describe the pain… aches? Or pain. It is hard with Lupron fatigue and muscle aches come as side effects.

[craziecanuck in reply to alysona828]

We have a small business and we’re putting in new equipment and he really over exerted him self for about a week. Perhaps he’s just feeling the effects now and needs some rest?

[Hailwood in reply to craziecanuck]

I think you have answered your question. I’m in the same boat with the same treatment and Inused to be able to do a moot more and not require as much rest. I ache more and it takes longer to go away. Like your Dad I remain at 0.02 PSA. with undetectable Testosterone. I think Advil, rest and more exercise might be the best way to go

[craziecanuck in reply to Hailwood]

thank you

[Doctorsceptic in reply to Hailwood]

Unfortunately with zero tester one you will find exercise may help maintenance but you certainly won’t add any muscle.

Personally I hate all this ant-T stuff / it wrecks you

[Pjford in reply to Doctorsceptic]

I hate it to. Always been in great shape 5’9” 170lbs . I’m almost a year into these hormone drugs , lupron, Aberaterone, prednisone. I average 5 miles walking a day , lift weights 3 times a week with cardio classes in between and my body looks loose , frustrating. I don’t sleep as good either

[craziecanuck in reply to Hailwood]

He said it was hard to put his clothes on today his shoulder hurt so much. Mom had to help.

[craziecanuck in reply to alysona828]

he feels like he pulled something and it was hard to put on his clothes today

[alysona828 in reply to craziecanuck]

Ok. Just keep an eye on whether it continues.

[Doctorsceptic in reply to craziecanuck]

Could be a rotator cuff tendon problem, or frozen shoulder (capsulitis). The best thing is see the doc, and get it examined as it could be something ordinary and treatable. Until it’s looked at you won’t know.

[Hailwood]

Crazy Canuck also here in Mission BC

[craziecanuck in reply to Hailwood]

Windsor Ontario, here

[alysona828]

I’d agree. My dad is 84 and on lupron, his body aches a lot these days. He is very active - a young 84! Always working around the house. Well, with Lupron he has slowed down. Still works around the house but he gets tired easily and his body aches more easily. Yesterday his back hurt. I am always asking this question, are you in pain or are you aching? I am constantly worried. It’s hard because you have to be on top of it and ask is this cancer or the side effect of Lupron? Definitely get it checked out if it continues and pay attention to the type of pain. How bothersome is it, is it debilitating, is it sharp, etc etc. won’t always tell you the answer but it’s how I have coped. Never be afraid to call the oncologist to check it out. Hugs.

[craziecanuck in reply to alysona828]

Thank you I know how you feel

[artmus]

these medicines are hard on the body. I’m sure he lost a lot of muscle. My husband was diagnosed in 21 and he is also having pains although psa is low and scans don’t show activity. I think their body takes a toll and they can’t do what they used to. Is he due for a scan anytime soon?

[craziecanuck in reply to artmus]

No scan as everything has been good in the PSA front

[craziecanuck]

Thank you everyone for the feedback. Sometimes it’s hard not to wonder if it’s the cancer or just the effects of regular aging or aches and pains everyone gets. Appreciate you all. ❤️

[Hawk56]

My perspective, based on my experience, a journey of one as I like to say.

Twice I did ADT, 18 months of Lupron, then 12 months of Orgovyx.

Both times the side effects included muscle and joint stiffness and fatigue.

Were these severe, no, but were they noticeable, definitely. Though the first time I was 61 and the 2nd time 67, after a period of inactivity, I felt like a "90 year old" trying to get up out of the chair.,

It's an oxymoron but when I was active, say, riding my bike, swimming, playing pickleball, skiing, hiking, I felt "better." It was when I was "inactive," sitting in the chair watching TV, that those side effects presented themselves most. It was almost like activity was a "lubricant" for my muscles and joints.

There were times when i just took the damn nap so listening to your body is "important."

The recent exertion you describe with his business may be at the root cause of his onset of pain. If he has a primary care doctor, may be of value to consult. Rest and a pain reliever such as Advil may be useful too. While PSA is not the 100% evidence of PCa being dormant, it's a pretty good one.

Kevin

[craziecanuck in reply to Hawk56]

he feels like he pulled something and it was hard to put on his clothes today.

[Teacherdude72]

Joint, arm and muscle pain all are potential side effects of those meds.Yes exercise.

In my case I do but for energy I have had success increasing my energy by substituting coffee with mushroom coffee. Honest it helps.

[craziecanuck in reply to Teacherdude72]

he would like some insight on this mushroom coffee

[Teacherdude72 in reply to craziecanuck]

The mushroom coffee I use has a mixture of mushrooms in powder that have the properties of increasing energy plus another ingredient that also does that. Tried several others but I chose RYZESUPERFOODS.COM.

Only from them.as other sources are from China and fake knockoffs.

Can be a one time purchase or subscription. I have no connection to that company other than drink it. Check out FB for more info.

[j-o-h-n]

He's experiencing the 69 year rule which is....(Reach age 69 and everything starts to hurt). Have him take two Tylenol tablets when he has the pain (Caution: there is a limit on how many tablets he can take in 24 hours). Give him our Regards and tell him to slow down with the work in his business.

p.s. Now don't tell me he's a Uber dog sled driver.

Good Luck, Good Health and Good Humor.

j-o-h-n

[craziecanuck in reply to j-o-h-n]

he feels like he pulled something and it was hard to put on his clothes today

[j-o-h-n]

I'm 88 and I understand his plight very well..... Tell him to rest and to watch "I love Lucy" reruns...

Good Luck, Good Health and Good Humor.

j-o-h-n

[SsgCulldelight]

Hi and his psa is close to undetectable, so if no significant rise in numbers watch and wait. Some pain is to be expected as we get older and many times we can confuse one with some other type pain and knowing we have a prostate issue think is that, and it probably isn't. I'm 66 n get pains in my groin, under my gluts, and from my back down to my feet sometimes, it's not continuous, and sometimes like a knife up the butt, but over in seconds. If your over 40 you KNOW what I mean ladies get that shot of pain in the coochy sometimes my wife told me that, so try to take it easy drink plenty fluid not just water, pomegranate, cherry juice, two some juice things like that

[SteveTheJ]

Is there a reason to believe there is a relation between PSA and pain? Fatigue is directly related to testosterone; what has the trend been there?

[Kat343]

HI, sorry to hear all this, but as far as shoulder issues, please look in to PRP therapy - platelet rich plasma. Its your own blood, they spin it down and inject the platelets back into your joint area. we have had it done many times for our knees, back sand my husbands shoulder. It has HEALED torn ligament/tendon tears. We were both candidates of rbi-lateral knee replacements and have minimal pain. The shoulder is tricky, get someone who has done 100's of them. Call medicare as they may cover up to 3 injections per site per year. Almost no one will bill medicare, but call them as we have provider who does charge them, and that is Rare. Good luck!

[j-o-h-n]

From Smoogle Google:

Platelet-rich plasma (PRP) therapy is a medical treatment that uses a patient's own blood to stimulate healing and reduce inflammation:

How it works

A doctor draws blood, spins it in a centrifuge to separate platelets from other blood components, and then injects the concentrated platelets into the injured area.

What it's used for

PRP therapy can treat a variety of conditions, including:

Tendon, ligament, muscle, and cartilage injuries

Knee osteoarthritis

Sports injuries

Hair loss

Tennis elbow

Wounds

Benefits

PRP therapy can reduce the need for anti-inflammatory medications and opioids. It can also help patients return to normal activities more quickly.

Safety

PRP therapy is generally safe, but it's not recommended for people with certain conditions, such as hepatitis C, HIV, AIDS, blood cancer, or cardiovascular disease.

Cost

PRP therapy can cost between $250 and $1,500 per treatment session, and medical insurance doesn't usually cover the cost.

Recovery time

It can take several weeks to months for the full effects of PRP therapy to appear, and some conditions may require repeat treatments.

PRP therapy is also known as platelet-rich growth factors (GFs), platelet-rich fibrin (PRF), or platelet concentrates (PCs).

Platelet-Rich Plasma (PRP) Injections | Johns Hopkins Medicine

Johns Hopkins Medicine

Platelet-Rich Plasma (PRP) Injection: How It Works - HSS

Sep 30, 2024 — Platelet-rich plasma (PRP) is produced from a person's own blood. It is a concentration of one type of blood cell (pla...

HSS

Platelet-Rich Plasma (PRP): Uses & Procedure Details

Cleveland Clinic

Show all

This is for informational purposes only. For medical advice or diagnosis, consult a professional. Generative AI is experimental.

Platelet-Rich Plasma (PRP) Injections

Johns Hopkins Medicine

hopkinsmedicine.org › health › plateletrich-...

Good Luck, Good Health and Good Humor.

j-o-h-n

[Tall_Allen]

Arthritis?