Happy and grateful goodbye to this forum, I am cured (76 y.o.)
Here are my reasons.
I had PCa, no doubt, I am cured, no doubt. Because one is not cured who still worries about his disease, I am leaving. This post is two years late, and now there is another reason (see further).
I used non SOC for DX, the cure and monitoring, this is why this post is probably useless.
Both my brothers (both MD) had PCa, and I was direct testimony of how treatments was ruining their lives. Because I was old enough to not try desperately to add a few months to my life, I didn’t want to follow their way. And – saying that as a joke – my wife prefers me died than impotent (so do I), I though I had some time to give non SOC a try.
I used a future SOC for monitoring, repeated MRI; prostate shrank from 45 cc to 40, and 35 for the last one. So did lesions who had quasi disappeared at the third MRI.
PSA was monitored until a huge surge frightened me, but not my second urologist.
I am not sure it is useful to give details of my treatments. I never believed in starving the cancer because of homeostasis. However I enhance my yet healthy diet. Less glucids as possible (no bread, no rice, no potatoes), high on fat, specially fat (french) cheeses, no milk, no dairy, some red (french) wine. Huge consumption of fruits, lettuce, spinach, broccoli onions, mushrooms and cooked tomatoes.
I used so many treatments than I’m unable to say which ones were effective. Some I remember of are artemisinine, low dose Naltresone, and mainly sodium R-lipoate and Garcinia Cambogia.
Despite having refused biopsy, I had a proof I had Pca at the very end of my story, when my first urologist said to her assistant that it was impossible to believe the first and third MRI belonged to the same person, and that she was, with her boss, absolutely sure of PCa at the time of the first MRI.
Because I’ll soon die for ALS, which is no cure, no hope, I realize how PCa is so special and much more worrisome. Had I make the good choices, what a troublesome question! With ALS, one quickly dies, no questions, no hope, no disappointment.
If I had time, I’ll make a second post sharing what I learned form this forum, mainly to support SOC, and saying it’s too easy criticize big pharma
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GabF
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"I used so many treatments than I’m unable to say which ones were effective. Some I remember of are artemisinine, low dose Naltresone, and mainly sodium R-lipoate and Garcinia Cambogia."
I strongly, support SOC, I tried to explain why in my case (age, cancer at the beginng, PCa said to evolve slowly) I had little risk to experiment out SOC.
wow, sounds like this warrior has decided to give up the fight, sometimes I agree, the fight gets harder all the time, but then my granddaughter comes in and gives me a big hug and I love you , guess I’ll just stick around till the big guy calls me home 🙏🙏🙏
Bravo! I applaud you for telling it like it is. Please don't waste your time worrying about the lack of response to your comment. You made a BIG mistake by writing the forbade word BIG PHARMA. The promotors of that here in this group are afraid, very afraid of it.
By the way congratulations to your country for putting together one the most beautiful and organized Summer Olympic Games ever.
Enjoy whatever is left for you to be in this world.
Outstanding OC, I was there, and I said oh the right wing and evangelicals are going to get all bent out of shape, but France is a free country, which the US is becoming less and less of.
Not a good discussion for MC on HU. But your argument on freedom is nonsensical. The Olympics as an institution is supposed to be uniting. And institutional and individual freedom are two different things. Why exactly would anyone want to "bend anyone out of shape" as part of a ostensibly uniting world event?
Sorry you feel that way. I didn't feel disrespected at all. Paris is Paris l, very few myths remain current, including churches oligarchy. The opening ceremony was so full of art and expressions of freedom. They are less hypocritical and that's what they showed. Oh wait aren't the next Summer Olympic Games going to be held in Los Angeles! So near to San Francisco, so near to Las Vegas! I hope to be alive (PSA on the raise and I will not do chemotherapy) I will not miss that watching the 'sinfulness' they are destined to be. We will have the first female and if color President of the US. Amén.
We are not AFRAID of big pharma…..but it has more science to back it up and for me that is what makes it somewhat affordable….insurance will not pay for non SOC therapies and that’s not apt to change anytime soon. Perhaps the future will bring some changes but for now my life depends on SOC therapies. Beyond this I have to say that many of the non SOC therapies I have seen enumerated here don’t make any sense to me…..so there is that as well.
I was there also. Wasn’t afraid to die and wasn’t concerned about my faith in medications. My faith switched to the creator who made me with a Spirit and a soul. I said not my will be done, but your will be done. From a PSA of 12 and in 3 months to 938. Kidneys damaged, tumors in and around the Ureters PSMA scan showing me lit up like a Christmas Tree. The look on doctor’s faces was one of he’s done for.
When doctors give up and medications give up, the only thing was to look up and say okay I’m ready to go to my eternal home. No more pain and no more suffering.
But a miracle happened, and here I am today. The only thing I can say is God isn’t done with me yet. In other words my work isn’t done on the earth. I still have purpose as well it was the biggest test of faith. All I know it was a teaching lesson to me and those around me. It was a testimony that I’m sharing. It’s an opportunity to ask friends and family if they have asked Jesus in their heart. To have a personal relationship as you would a spouse, talk to Jesus like a friend and share fears and joys with. It’s so simple to just say Jesus come into my heart come into my life. You are welcome into my house and my very existence. I’m yours and I will follow you.
You will find a peace that you aren’t alone.
A peace that passes all understanding.
Obviously if I was as dead I wouldn’t be able to write these words.
We're all travelling a different road, different chemistries, etc and definitely not one size fits all. Do your own thing. My shoes don't fit you and your shoes don't fit me.
3rd member of my immediate family to have pca. Dad dx at 65.5 and gone in 18 months, then me at 65.5, immediate prostatectomy, 5 years ago now, cured, living a great life, healthy & happy [71]
Then younger brother at 65.5, too late, chemo/radiation, and now pluvicto.......fingers crossed!
We're all on a different path 🥴
You do you, what's in your heart will determine the outcome afterall.
Agreed. I still don’t understand those who “Thank God” for keeping them alive or curing them. What do they have to say about those who died or weren’t cured? Isn’t God responsible for that also- or for babies dying of illnesses….?
With kindness and with the help from the Holy Ghost let me explain my walk in this life on earth.
I asked Jesus into my heart in 1972 and in that time I’ve been fellowshipping with the trinity. Father, Son and Holy Ghost. Jesus died on the cross for mankind and being dead and raised to heaven, he told his disciples I’m not leaving you as orphans but I’m sending you my Holy Spirit. In other words we are never alone from the God. We have a direct line to him and it’s called prayer. So I’ve been reading the word of God (Bible) for decades as well using the hotline to God (prayer) for decades.
Sure in my past prayers I asked God why Me? Why do I have prostate cancer? In my man spirit I heard (Sin)
Then the word of God (Bible) came into my mind. We all sin, we all fall short to the glory of God, then Gods word (Bible) said “The wages of sin is death”
Many people go to school to learn a trade, they read out of books and have teachers. They learn and move into the world with their training. That’s what happened to me in 1972, I read the book (Bible) and I had teachers.
Personally I have no education in repair ing computers, all I know they work and function as designed. My Dad wanted nothing to do with computers, he was ignorant to them and afraid to learn how to use them. Basically he was fearful of the unknown and bad mouth the things.
With the Bible and God it’s much the same. Doubt, bad mouth, and wanting noting to do with it is a persons “will”
The questions you ask about death of mankind Young and Old are all in the Bible. We aren’t going to do a bible study as this site, it’s for Prostate cancer.
I pray and encourage you to start at the basic steps, asking Jesus into your heart and admit you have sinned before a and start reading Gods word (Bible)
If you do, God Will Fellowship with you using his Holy Spirit to help you understand all that's in that book.
Most liked what I posted and I would say they have Jesus in their heart and it makes sense to them.
Many don’t understand, very understandable as they “Will” not to understand and put up walls to not have a relationship with the creator of all mankind and the universe. It’s mind boggling I know. But it makes perfect sense if one reaches out to have a personal relationship with a God and then it all makes perfect sense. I was like you and many others.
But my “will” changed and I made it a point to reach out. Never going back or never denying the existence of God, Son and Holy Ghost.
My elder brother ( a MD) used to say that you never sure to be cured, until you die from another disease. It was his case. He died from other cancer one year after being declared cured his PCa. Ten years of poor QOL, was it worth ?
For my case, I have proof. I don't worry for 2 years. And will have the ultimate by dying from another disease.
I respect that you have / we all have ….the right to make the tough choices. and I’m sorry to hear of your ALS as well. I respect your making your hard choices too.
I just hope in “ all this “ you are keeping your palliative care team in the loop, informing them as you proceed. They deserve, at least, that much respect as well.
I an glad you remember the artemisinin, it change my life too. I am in year 9 , PSA stable at 0.7. I drink a little green monster every second, somet every day. 1 lemon, 1 garlic seg, quarter teaspoon of cloves fine powder, 1 teaspoon of origanum. Through the mixer with a cup of Luke warm water. It taste horrible, it kills cancer. I try to run half a pineapple through the mixer as well for breakfast., with a teaspoon of origanum as well. Taste good, refreshing.
Hallo VoodooThere are more than 14 derivatives of Artemisinin. It is a Chinese medical herb. In 1972 it was developed into the well known malaria tablet: Coartem. It is a combination of Artemether and Lumefatrine. I chew with cod liver oil more than 2000 of these tablets. It is really helpful when the cancer is active and aggressive. It is not really effective when the cancer is small and in hiding, because the Artemether can't 'see' the cancer cell. Cancer cells that just stared don't have enough iron content that the Artemether can see the cancer.
well that’s interesting …. Think I’m gonna make a little of that to put on my wife’s cooking to make it healthy and taste better ….Or try to at least. Just say’in
@GabF Sorry about your health conditions. It is a reminder we are all mortal but most of us don't know how what is likely to end it. I lost a good friend to ALS.
One of the toughest things for my husband, diagnosed four years ago, is the frustration with the loss of function and communication. He recently told me "you don't understand". I responded, "you are right,I do not....But I am trying with everything I have". It is that gap between being a Caretaker and significant other. we started ALS/MND programme from vinehealthcentre. com 5 months ago, he has regain some functionalities, we noticed his speaking has gotten better since we started on this treatment programme, it didn’t make the ALS go away but it gave him a better quality of life. I also understand that God does not give us more than we can handle...
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