Palliative Care

[Coopertino]

Does anyone know a palliative care doctors in Boca Raton or Delray Beach Florida.

[Schwah]

Have you decided to stop all other treatments? Lots of ideas and knowledge here if you are open to it?

Schwah

[Coopertino in reply to Schwah]

As of now yes. Open to new ideas. He was going to try Erleada by itself but the side effects were beyond scary.

[Schwah in reply to Coopertino]

Why don’t you start a new post on this site and describe the history of the disease , treatments to date (along with how it went) and current status. Then ask if anyone here has any suggested treatments or clinical trials to consider.

Schwah

[Ggpa]

Looking for an oncologist in the same area for a backup to review treatment for adt recom-mended by Mayo clinic . Ggpa

[Coopertino in reply to Ggpa]

We are using Lloyd Berkowitz at Lynn Cancer. He’s a very good doctor

[Ggpa]

Boca Raton, FL

[Coopertino]

Thank you I found a group of palliative care doctors in the Boca Raton area.

[j-o-h-n]

Tell us more.... All info is voluntary, but it helps us help you and helps us too. Thank you.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 02/04/2020 5:40 PM EST

[Coopertino]

My husband did HIFU in 2010 and it failed because the cancer was on the margins. He has done Lupron, Radiation three or four times, Lupron and Casodex together. It has metasized to the bones inches back and ribs. Further treatments have been Taxotere chemo, Zometa and Xofigo. He is tired of the treatments. He finishes one and something else pops up. We call it Whack A Mole. You hit one thing and another happens. Decided quality over quantity. He is tired of being a pin cushion and going to doctors so hence the palliative care.

[Ggpa]

Thank you--I'm familiar with Holy Cross, had both my knees replaced there. Will look into them for a second opinion. I'm new on this site. Had pc surgery in 8/05 and radiation from Nov. '08--Jan. '09. Doc wanted to start lupron , but I declined as I had enough quality of life issues (ed & incontinence) and the many potential side affects was enough to turn me off. Started with Mayo in Jacksonville four years ago when psa began to rise--now at 10.1 and now they want to start with lupron shot for 4 months. I have had 15 pretty good years and now I am alone , my wife of 58+ years passed away 3 years ago today. I'm 85 in two days and I need some serious convincing to do anything at this point. Played ping-pong tonight and golf once a week. Tough to think of changes at this stage of the game.

[Coopertino in reply to Ggpa]

I’m with you. Leave it alone and enjoy life. Ping pong, golf all good hobbies. Lupron will cause fatigue and memory issues not at the first shot it’s cumulative. If you would like the list of palliative care doctors I will be happy to share.