Cyberknife: Has anyone had experience... - Advanced Prostate...

Advanced Prostate Cancer

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Cyberknife

Scorpio53 profile image
23 Replies

Has anyone had experience with cyberknife and prostate tumors?

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Scorpio53 profile image
Scorpio53
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23 Replies
Tall_Allen profile image
Tall_Allen

I know several men who received it. What do you want to know?

Scorpio53 profile image
Scorpio53 in reply toTall_Allen

canceJust wondering if this is a good alternative to surgery. I'm sure some of the reasons for/against will depend on a number of different factors, but have not found anyone who can offer advice on traeatment comparison/results.

Tall_Allen profile image
Tall_Allen in reply toScorpio53

I had SBRT (CyberKnife is one brand of SBRT) 13 years ago for localized PCa and can answer any questions you have. What are your questions? If you are trying to decide between radiation and surgery for your "favorable risk intermediate PCa", oncological results are similar, but side effects can be very different.

Read this:

prostatecancer.news/2018/10...

Here are some questions to ask yourself:

prostatecancer.news/2017/12...

Scorpio53 profile image
Scorpio53 in reply toTall_Allen

Thank you for the links. Extremely helpful. I have only had minimal meeting time with my urologist, whcih seems to be at odds with what others have expereinced. From my expereince, it kind of seems once you say 'yes' to surgery, you're on a production line, scheduled, given pre-op instructions and then wait for the date.

I'm not sure if a prostectomy is the right/best option, so I'm seeing an oncologist in the next two weeks and will use the questions posed in the links as a guide. (To be honest as I do more rsearch, the more I have become informed but also wary--there are many options that conflict.)

Happy to take any further advice.

Tall_Allen profile image
Tall_Allen in reply toScorpio53

Medical oncologists are not experts in this - they might have opinions but are really not qualified. You should talk to radiation oncologists, though. Don't expect any doctor to make the decision for you. Only you are qualified to decide. Every doctor is biased.

jackwfrench profile image
jackwfrench in reply toScorpio53

I evaluated radiation and went the prostatectomy route 2.5 years ago and had biomedical recurrence 2 years later and now having to to address metastatic spread with hormone therapy. Just alerting you to the fact that 1/3 of the time RP yields recurrence - I did not think my surgical staff at Hopkins alerted me enough to this possibility.

Scorpio53 profile image
Scorpio53 in reply tojackwfrench

My brother has his prostatectomy done at Hopkins 13 months ago. I'm not sure if his surgeon mentioned this to him. I do know that my urlogist never did to me. Good luck with the new treatment. Thank you for the advice.

PedroPedro profile image
PedroPedro

Hello, I had cyberknife therapy in May 2021. It was very good - basically destroyed the primary tumour in the prostate gland and also a number of metastases on the ribs and spine. A beneficial aspect was that there was no damage to any other organs. The only adverse side effects were a little nausea which did not last long and constipation which lasted a few days.

It can be quite expensive but very beneficial - certainly worth considering.

Scorpio53 profile image
Scorpio53 in reply toPedroPedro

Thank you. I'm not sure what I will decide but all that I have been offered was a radical prostectomy and lymph node removal so far by my urologist. So am doing my reserch and the cyberknife option came up. Thanks.

SeattleDan profile image
SeattleDan

My brother went with Cyberknife quite successfully. As with surgery, best done in talented, well-experienced hands.

Scorpio53 profile image
Scorpio53 in reply toSeattleDan

Thank you. The oncologist I will be seeing on the 29th will hopefully offer a number of treatment options. I have the feeling cyberknife might be one of them but wanted to know more about it.

in reply toScorpio53

Your oncologist will not know too much about Radiation, you'll need to see an RO for options there.

Scorpio53 profile image
Scorpio53 in reply to

Thank you. Will see an RO.

jcarey79 profile image
jcarey79

I had Cyberknife done and had little side effects except during the 5 days of radiation and 5 following when I was very fatigued. That went away. Painless, simple, quick in my case.

Scorpio53 profile image
Scorpio53 in reply tojcarey79

Thank you. I take it the results were good. Can you let me know?

jcarey79 profile image
jcarey79

The results were good for 5 years. The cancer has returned and metastasized.

Scorpio53 profile image
Scorpio53 in reply tojcarey79

Sorry to hearthat the cancer has returned. Next steps? Radiation/surgery?

jcarey79 profile image
jcarey79 in reply toScorpio53

I have been on ADT since October, 2021. Orgovyx and Xtandi.

jackwfrench profile image
jackwfrench in reply tojcarey79

Hello I had recurrence from my RP and just started ADT with Lupron and soon, Zytiga/abiraterone. Just curious if your professionals had much to say about Orgovyx vs. Lupron when you started?

jcarey79 profile image
jcarey79 in reply tojackwfrench

Not initially. I was overwhelmed and trusted my oncologist. However, I did not do well with the Xtandi and Eligard so they switched to Orgovyx and stopped the Xtandi. Said this would be easier on my cardiovascular system.

Quick2019 profile image
Quick2019

Yes, I had cyberknife treatment of lesion on my T11 . It was painless. The PSMA scan 16 months after the procedure showed much reduced activity. No more back pain and PSA has went back to undetectable.

Scorpio53 profile image
Scorpio53 in reply toQuick2019

Thnk you.

ron_bucher profile image
ron_bucher

If you are in your sixties or less, you might be interested in reviewing my history. If your Gleason is 7 or higher, you're probably in for a life long battle. I'm very glad I've had all the treatments I've had. Get the best specialists your money can buy.

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