having lots of pain. Dr prescribed oxycodone. But i react poorly to this drug. After one low dose I have full body shakes, then high fever for about 12 hours.
anyone suggest a pain med that is not codine based that i coukd try?
pain management: having lots of pain... - Advanced Prostate...
pain management
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Fightinghard
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Have you tried gabapentin?
no. I thought that gabapentin was focused on neuropathy?
Gabapentin is for different types of pain.
thank you
It does help pain but it is psychoactive so I recommend starting at lower than the owrst dose and if it doesn't work even if you only took a weak go superslow.
I have had great luck with Psilocybin. Totally eliminated my pain. Just tough to get for some people
I live n Ca. and psilocybin gummies are found , otc, in local CBD stores , cannabis storefronts and all home delivery services. You can make one call here and have it in your driveway in 15 minutes.
My experience is that psilocybin builds a VERY rapid tolerance level tho. Dunno what happens with daily medicinal use. In these parts psilocybin gummies are rather expensive. Possibly due to low supply / high demand ( high 😂😂 ) .
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I might have a friend that grows multiple strains, and capsulizes them for me. 3 days of micro dose then 1 heavy dose and 3 micro again did the trick. All done over 2 weeks. I was skeptical but darn if it didn't work.
a lot of people are saying that these days. There is more availability and more cross section of users nowadays too. If everything people say is even partially correct , medically, I wouldn’t be surprised to see a new drug hit the market.
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When I told my MO I was using, her response was "we know so little about mushrooms. If it works keep doing it"
yayahahahaya yayahahahaya … man where can I get one of those doctors ? Kaiser makes me sign a “ opiate contract “ ( to be prescribed opiates ) which is three single spaced pages of drugs / chemicals I can’t use . Next week I have to go in to Kaiser for large batch of blood and urine tests. They are called “ the pain management drug tests “ and the two big panels of DAP ( drug abuse, panel ) testing. There are chemicals / drugs on there I’ve never heard of. Yayahahahaya.
Probably wanting to make sure you are using the drugs and not selling them. Got a great story about that I can't tell here. Hahaha. 3 of my doctors that see me are ok with the use of shrooms. They all said we just don't know about it and if it works for you use it. I have lots of input in my care plan. Not so rigid as Kaiser
What dose do take?
my low dose is 2mg. I do that for 3 days, every other day, then large dose of 8-10 mg, the back to every other day 2mg then back to heavy dose. by second large dose pain was almost gone. Did 3 more low dose and pain was gone
Do you mean .2mg and .8 to 1mg? just seems like alot
no, as stated, the low dose doesn't make me hallucinate, however the high dose does. Just sit back in my recliner and watch my world turn blue and purple. It is a pleasant high not scary or anything like that. I am using that dose at 200lbs so adjust accordingly. The particular strain i use is Golden Teacher and Maui Platinum. Will be exploring some other ones that my friend recommends for cancer. Best part is no "hangover" and for the next day am in a very good mood.
if you have pain / discomfort enough to warrant an oxy script, but react poorly to it ….. consider asking your prescribing doctor to give you a trial of morphine pain killer. It’s the “ standard “ all pain meds are measures by, well tolerated by almost everyone and ….. especially important …. scalable over time to retain effectiveness. Unlike oxy, which produces an intense high and pretty rapid tolerance, … morphine is much less so. With morphine start out with micro - small doses …just enough to get the job done. This keeps the opiate jitters and “ high “ at minimal levels. Very effective if used wisely. Just IMHO. This is what I have done and it worked for me.
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k
What is the lowest micro dose that you have found helps?
I’m on norco / vikes and ( omg ) Dilaudids ( for break thru pains, it’s very effective - powerful for me ) right now. In my case, sometimes it helps to switch up alkaloids to retain a fresh sensitivity to the drug. But … I think I got them in 2.5s , 5s and later 10s ( and up , 40s or more are available , time release etc. had them all ) initially. Kaiser gave me one of those little “ pill slicer “ box’s …. I have cut the smaller dose pills into halves and quarters and upped the pieces, waited an hour and took more if I needed it. My pcp was thrilled to see me take smaller doses if possible. My experience in the long term is use as little as possible to get the job done. Eating them for the buzz is blatantly foolish. It wastes your precious meds and can lead to stunning difficult issues between you and your prescriber , later on.
With me , it just depends on the day when I wake up or the “ discomfort “ wakes me up. Today I was forced to get up early ( 5:30 a.m. ) to attend to “ discomforts “ ( yayahahahaya why don’t we just say pain !!! ) but everything OK now at 9 a.m. local.. I’m good to go any get out there for some sunshine and fresh air. For me it’s an indispensable medication.
Excellent question BTW.
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My dad had great luck with Methadone
yea , I agree, … my friend Mark ( I’ve spoken about ) and myself ( I tried it for a few months as a change up against tolerance) both had good results with it too. Almost no buzz-high and jitters. For me it was an effective pain mgt drug when my pain mgt pcp gave it to me.
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Thats funny what you say about discomforts. When asked about pain I always say no. Some discomforts. My MO said to let them know about any pain that persists for a week. So thats what I am working with. My RO seems open to giving me pain meds but I won't take anything until I need it. I will use the pain scale I acquired when dealing with gout.
you might Google : Moonwlkr.com and /or just : psilocybin gummies … for mail delivery. Moonwlkr ( among many ) has several very excellent cancer discomfort - depression relief products well suited for aPCa guys like us. All their products are , totally legal nation wide , hemp sourced alkaloids …all mostly in delicious trepine infused gummies. Moonwlkr is a popular , reliable, otc brand here in central Ca. Heck hemp derived “ anything “ is legal everywhere as far as I know. The whole cannabis “ scene “ has dramatically changed with the federal government differentiating between hemp and marijuana nowadays. Hemp it’s good to go anywhere, and marijuana has taboo all over the place. Yayahahahaya the new “ hemp “ products , like 3X delta-8 hemp gummies and hemp derived THC-O psychedelic mushroom like gummie products are available freely .
Oddly , we might be seeing the end of the line for Marijuana as we knew it for decades. A soldier of the past facing retirement. “ hemp “ derived products WAY more powerful and especially targeted in their content. If you need mood uplifting ( and who among us doesn’t need that sometimes ) … with 3X delta-8 gummies you can spend the afternoon , or all day , laughing your arse off to the point of overdoing it. Yayahahahaya. Just an introspective for us aPCa guys. This is probably the most important change in THC to come along ever.
Just say’in
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Thanks guys for replying. Unfortunatly i am in fl where things like shrooms and thc are hard to get at corner markets
But finally got thru to my pain management dr They suggest switching from oxy that i just cant take, to try hydromorphone.
Sounds like what K was suggesting.
I will try the lowest dose of the hydromorophone and see if it helps without the really bad side effects
Thanks again!
I used a product for sciatic pain that was debilitating back in December. Bought it in California --- THC-100 the bottle has no contents or any other info. One capsule gave me complete relief in 1 hour and lasted for 24 hours, it also made me a zombie as it felt like it completely shut down my nervous system.
I agree that morphine would kill the pain. Other options are methadone and fentanyl. I know fentanyl gets a very bad rap in the media, but it will get rid of the pain. Unfortunately, these meds also dim some of your lucidity. Best of luck. Please keep us updated.
hydromorphone is 4 to 10 times more potent than morphine , depending upon where you are asking. It’s related more often to Fentanyl, these days , than morphine.
The more powerful “ ANY “ opiate the far uglier the withdrawal…. It would be easy to need inpatient drug detox withdrawal treatment with hydromorphone if you ran out some place or tried to quit on your own too quickly, if you were taking very much or using it long term. As experienced as I am , even I am VERY careful with dilaudid ( hydromorphone ) … it’s both wonderfully effective and dangerously physically addictive. This just my anecdotal IMHO perspective. Go morphine pills - hydromorphone backup is a wise way to proceed.
Needless said, any-all of this with your pcp at the helm. Expect scheduled AND random drug testing and consulting with both of these drugs.
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will heed your advice. Im a lowest dose only when needed guy
forgot to mention that hydromorphone is a quick acting , short duration medication. Couple of hours or so relief. It is so strong that , for me, even the “ afterglow “ is still quite helpful.
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There is also HYDROMORPH CONTIN WHICH LAST UP TO 12 HRES.
I started at 15mg (morning & supper)
that sounds like a good one. It’s much handier to not have to mess with a lot of pills during the day.
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i have so many pills all day that i have to keep a log of what/when
Sometimes i write down a dose, then not sure if i took the pill or just wrote it down
yayahahahaya yayahahahaya. I hear that. My immediate short term memory is …. Uh …. Er …. Uh ….😁
Actually that sounds like a great idea.
Boy your pain post is a good one … lots of action, guys contributing… a lot of camaraderie . Great pain mgt info. Bunch’a kewl guys smok’in, jok’in and croak’in together. Doesn’t get any better than ……uh ….uh …er …. 😵💫
Yayahahahaya
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Yesssser. Yeppper. Got that right. Ain't it the truth. Been there done that.
my info is only “ IMHO “ and my own personal experience with many years of taking many of these drugs. Your experience and circumstances might be much different. Like T_A says talking to your pcp or pain management specialist is always the best choice.
Know too, that pain management specialist , not being as familiar with you as your pcp and being handcuffed by soc , is almost certainly likely to make you rerun the gauntlet of , Tylenol - aspirins , prescription NSAIDS , gabapentin , exercise etc. …. ( usually ineffective ) for most of us … this even in deep palliative care…. All this to make your way to opiates. What we imagine in our minds and the soc reality of things can be quite a contrast. At least this is it at Kaiser. Your pcp usually already knows all this, and knows you intimately and has different soc requirements.
In my case, being offered inpatient “ hospice “ as my first line of treatment at DX …this changed up everything for my line of pain management… every case is different tho and does require medical supervision. In other words, don’t be stupid and run down to the corner and buy half a pound of fentanyl pills off the street and self medicate. Just say’in yayay yayayay.
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Talk to a pain management specialist.
I love how you cut to the chase
Hydromorphone 2mg kills my joint pain in minutes and as an addictive natured person I’ve found it easy to come off. Booze was my preferred pain reliever. I no longer consume alcohol. However, Dilaudid is my go to med for level 7/10 pain relief. Hope you can get relief soon.🌸
pain dr ordering me some Diludid. Today i hope.
keep your eye on your “ regularity “. You’ll prolly be ok at first for a while but if your BMs disappear or become difficult - plugged, some Sienna laxitives daily can smooth every thing back out. MoM now and then for a purge if needed. Discuss it with your pcp if it happens , of course.
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I use this system daily for pain and much much more without side effect problem;
I've had issues with oxycodone as well, particularly nausea and vomiting. But I've found hydrocodone (aka Vicodin) useful. I usually start with half of a 5mg Norco tablet of hydrcodone.
a lot of people do not tolerate gabapentin well. i have no problem with it. for those who do there are the pre-gabalins like Lyrica? My husband does not tolerate gaba but is fine with Lyrica.
I take plain old morphine sulphate 15 mg for night time pain that keeps me awake.
one interesting thing i found out and i think it is true? if you are taking abiraterone it will prevent the codeine based drugs from working. i found this somewhere so check it out yourself if it does not make sense. it seems that codeine is not a pain killer but it breaks down into morpheme which then does the job. abiraterone stops this from happening and causes codeine to not work. I was prescribed oxy codone and it did absolutely nothing while i was taking abiraterone. this site and others talk about the reduced effect of codeine. i did not try larger doses just switched to morphine. to me morphine is more natural and i would think has fewer side effects other than addiction 
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