NHS patient information leaflet on Lu177

[Sailing-Todd]

A basic but clear information leaflet on Lu177 treatment which I found useful.

uhs.nhs.uk/Media/UHS-websit...

[Finlay66]

Is your partner going to start LU177?

[Sailing-Todd in reply to Finlay66]

Hi Finlay66.

No, he’s doing well on Lupron and Apalutamide at the moment, but I always like to understand other treatments in case they become an option in the future. Are you considering or have started this?

[Finlay66 in reply to Sailing-Todd]

Certainly considering. It doesn't look good for NHS funding though.

[BluesmanNick]

Thanks. Very interesting.

[GreenStreet]

interesting thanks for posting

[HopingForTheBest1]

The document was published in May 2021. Maybe things have changed since then as I was released to go home shortly after injection, instead of "We will then ask you to remain in the room alone for approximately four to six hours". I did need to quarantine for 3 days, and stay away from small children and pets for at least a week.

Waiting for my 3rd dose.

[Sailing-Todd in reply to HopingForTheBest1]

Thank you for the additional information. How’s it going?

[Sailing-Todd]

Thank you for the additional information. How’s it going?

[HopingForTheBest1]

After 2 treatments PSA has gone from 98 to 14. Scans show disease is stable. Next treatment should be within next week or so.

[Sailing-Todd in reply to HopingForTheBest1]

This is really useful thank you. Is it bad in the way of side effects?

[HopingForTheBest1]

After 1st a lot of nausea, which dropped significantly after #2. Plenty of ongoing fatigue and walking difficulty.

[Mcrpca]

Thanks. This is probably our next step