Lu177 UK / Heidelberg : Update on my... - Advanced Prostate...

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Lu177 UK / Heidelberg

Miguelnumerouno profile image
14 Replies

Update on my enquiry:

The London Clinic ( Devonshire Place) is NOT doing the Lu177 procedure for the "foreseeable" future .( as of mid March 2019) .

VISION Trial at Guys London is NOT up and running ( contrary to what is suggested on net and that is directly from one of the lead investigators there to me ) and generally the considered candidate for the trial will have exhausted

" all other avenues" of treatment before having Lu177 even though there may be indications that early use of it may prove more beneficial. I cannot comment whether Royal Marsden or Bristol are up and running with VISION

yet .

Germany : I am having first

Lu 177 / Actinium 225 treatment Monday 18th March at University Hospital Heidelberg and will post updates on that along the way.

To arrange treatment there it is better ,and faster , to go to their

"International Page" where your enquiry , together with documents and files, can be uploaded to a folder personal to you which will be given a number and a case officer allocated to it. Stick to that procedure only , ie no direct e mails which will be ignored , and you will receive a rapid and efficient response from the team at Heidelberg. Cost for first treatment including 2 nights stay and procedure ( no PSMA pet scan included) is £11450 ....13150 euros.

More to follow.

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Miguelnumerouno profile image
Miguelnumerouno
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14 Replies
whatsinaname profile image
whatsinaname

Which treatment are you taking ??

The Lu-177 or the Ac-225 ?? Or a combination of both ?

Miguelnumerouno profile image
Miguelnumerouno in reply towhatsinaname

Combination......

.

whatsinaname profile image
whatsinaname in reply toMiguelnumerouno

Ok, thanks, Miguelnumerouno :-)

All the very best !!

Miguelnumerouno profile image
Miguelnumerouno in reply towhatsinaname

Cheers!.....I will update on here on this.....I realise how topical the subject is.

Mk

in reply toMiguelnumerouno

Thanks for being willing to share. I am very interested as I know other. We appreciate your input as it may help some of us make a decision. Truly a beautiful town....I was there on vacation in September.

Sriyantra profile image
Sriyantra

Going back to Heidelberg on Mar 21 for my second Actinium/Lu177 infusion. Had a pretty rough time the first few weeks after first.. so wiped out with fatigue headaches and mildly nauseous a lot of time. Appetite was weak as a result.

Make sure you drink lots of water every day after treatments...really is needed to flush out the kidneys and reduce toxicity.

Miguelnumerouno profile image
Miguelnumerouno in reply toSriyantra

I'll miss you by a day....all being well I will leave on 20th.

May I ask please....

Were you given any ice pack consideration for the salivary glands?

Were you able to take food in with you to the hospital?

Was there food available...and drinks.....upon request?

Was a mini fridge in the room?

Were you given information or a document for use at the airport?....I'm thinking of setting off security alerts with the radiation.

Did you have a scan at the clinic on the morning of the treatment?

Blood tests on arrival?....and leaving?

Did they supply you anti sickness medication during your stay?.....and for use on journey home?

Sorry to ask so many questions but any answers will be much appreciated.

Many thanks.

Michael UK

j-o-h-n profile image
j-o-h-n in reply toSriyantra

Hey Sriyantra you didn't answer Michael#1 questions.... come on now!

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 03/14/2014 EDT

Not a bad price.. pray it works well,. If you can ever find the strength while in Heidelsburg got to the castle and check out the dance floor that the king put on top of a giant wine barrel casket . That guy partied .. Good luck.

Miguelnumerouno profile image
Miguelnumerouno in reply to

Cheers....I will revisit the castle....I was there as a kid learning German!

I'll update on here when I can.

Michael

in reply toMiguelnumerouno

Guntentag , good luck Miguelnumerouno.. Paz

in reply to

What goes good for you now could be good news for others later. Even myself. Pray for healing...

j-o-h-n profile image
j-o-h-n

carbon copy✔

Hey Sriyantra you didn't answer Michael#1 questions.... come on now!

Good Luck, Good Health and Good Humor.

j-o-h-n Thursday 03/14/2014 EDT

Miguelnumerouno profile image
Miguelnumerouno

Nicely put John!

I will give a very concise picture of Heidelberg Lu177/Ac225 experience ,travel

arrangements ,accommodation etc following treatment there 20th March 19.

Michael

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