I have had an array of symptoms, some off and on, for well over a month that have hinted at some sort of viral infection. Neither my MO or PCP put them together to come to any conclusion, but after looking at many possibilities I feel like I am looking like a poster boy for Epstein Barr/mononucleosis.
Symptoms include fatigue, elevated AST, anemia, constipation, loss of appetite and feeling full, thirst/drymouth, pain in the area of the spleen, recurrent sore throat with white spots, headache/earache, swollen nodes, etc.
Some of these could of course be related to my cancer or its treatments, but the whole array suggests more than just that.
The hope is that such a virus passes over a few weeks and symptoms clear, but that does not seem to be happening for me. Trouble is, even if I get tested and the virus is confirmed present, there appears to be no real treatment other than addressing individual symptoms. Anybody here either have this or know anybody who has, and how was it treated? Alternative (non-SOC) therapy suggestions are welcome!
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noahware
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Sorry Noah, I realize that this is not the proper forum to use for this warning. I am considered to be at the extreme reaches of people concerned with Covid fears and you may simply disregard this comment and the imbedded YouTube video. I urge you not to do this and instead take the thirteen minutes required to watch it. The doctor explains a lot of reasons why many of us are so cautious about any exposure to the present Covid viruses. This video was obtained from one of the comments in a Washington Post article this morning written by Eric Topol, the cardiologist. I hope you will send it to other friends and associates whom you care about. Please post it far a wide. m.youtube.com/watch?v=XKE1Q... I wonder constantly if some of the ailments we have are complicated by the shape shifting Covid viruses.
Thanks for the link, Jeff... I certainly think it is appropriate in relation to my post, because EBV reactivation has been linked to getting COVID. After the full month+ of recovering from COVID this past summer, I definitely considered COVID a likely influence in the recurrence of symptoms over the past few months, especially when I had extreme fatigue and shortness of breath (which are now at least temporarily gone, probably thank to being on a short course of high-dose dex).
Aside from the disturbing fact that this may be so widespread, there is the even more disturbing fact that doctors don't seem to have much in the way of definitive treatments. I think the point she made about a rise in disability, even as deaths may decline, is going to become painfully obvious to all over coming years. Bad news for individuals and for society at large.
Millions of people are also getting EBV, skin cancer increases (20 fold), and Shingles etc, after getting 2 or more experimental covid jabs. The facts are out there. Getting boosters at this point is higher cost than reward for almost everyone because the jabs are hyper focused (for about 2 months) on covid, but they weaken the rest of the immune system in a large portion of the people who get those shots. I experienced it, and witnessed several other close friends and family have these issues.
For treatments to your problems, you should consider a functional medicine doctor. I went to one after Levaquin severely damaged my entire body in 2020. One of the consequences was the reappearance of EBV, as well as other issues related to the damage from the horrific antibiotic/fluroquinolone. I did several kinds of IVs, exercise with oxygen, sauna treatments etc and that got me back on track with the EBV. There have been numerous accounts of people using Vitamin C IVs to raise blood levels, and restore health. I actually got one today because my neutrophils tested at 1.0 last week due to unknown reasons. I think I have seasonal flu or an infection but who knows, maybe it's due to the cancer. I'm going to do Vitamin C IVs for about three weeks and see how it goes. I can't throw away another year from an overly powerful immune system bomb, like levaquin.
"Although the disease is treated with supportive care only, diagnosis is vital to initiate prevention of complications and ineffective or potentially dangerous treatments may be avoided."
Specifics? By what means is prevention of complications realized?
Seems the main point of testing is to confirm one does NOT have something like strep, and can avoid unneeded antibiotics. If a disease is supposedly self-limiting but not really treatable, the assumption that one has it seems just about as useful as an actual test that confirms it... which is to say, not very.
My friends and I as well as my wife have had a respiratory infection that seems to last about 3 weeks. Sounds similar. My wife had it turn into a nasty case of Bronchitis. We also all got the flu together, been a tough new year
By this age we have all had EBV infection so we are talking about reactivation of EBV . Mono spot tests do not help because they only detect the first infection. You can look at antibody profiles to see if you seem to have an acute antibody response. Whether reactivation causes symptoms and how often is unknown and a bit controversial. We can detect reactivation in many people but the vast majority of the time it does not cause symptoms. Acyclovir shuts the virus down. I just read a paper where it requires a long time to really get viral tigers to 0. Like 28 weeks. No data it makes people feel better but no clinical studies have looked at 28 weeks that I know of. Your symptoms are very nonspecific and this could be many viruses. CMV causes these same symptoms for example.
Thanks for the info! I am seeing a doc today just to check for strep or thrush to see if an antibiotic or anti-fungal might help. I'll ask about CMV, too.
Can one test for CMV or EBV or other viral infections the way one tests for mono, and is there a benefit to testing if there are not disease-specific treatments?
Do you know, is Acyclovir effective as an antiviral and worth taking even when the exact virus remains unknown (and can it work at any point in reactivation of a virus)?
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